When my son was diagnosed with autism at age three, I felt like I couldn’t reach him. I felt like he had this world, a secret one that I couldn’t enter. Some days I even felt like I would lose him to it. As if I was fighting to keep him here with me. I was scared of his world. It confused me. It worried me. Some days I felt like I should try and save him from it. He would laugh and cry and feel things that I couldn’t…
You know that meme…the one with the dog drinking coffee at the kitchen table while the house is on fire and the caption reads…’THIS IS FINE.’ That’s my life right now. I don’t complain. I truly, truly don’t. But right now, I’ve lost control of the ship. And the ship is sinking. And also on fire. I’ve been alone with my boys for over a week now. My husband is quarantining after being gone for a few days and it’s been really hard. Three boys. Three schedules. A full time…
Things I’ve learned as a mom to my three boys… It’s nearly impossible to keep them clean. But messes typically equal fun so it’s important to remember you can hose them off later. They love to pee in the woods. There is just something about it. Trees are made for climbing. Little trees. Big trees. Trees with no branches. All trees must climbed. But also know they most likely will not ACTUALLY climb any trees. Just attempt. All found sticks must be thrown, no matter the size. Sticks also make…
My middle son has been having some big feelings lately. He is 8 years old and sandwiched in between two very big personalities. I think sometimes it can be lonely to be the easy one. His dad and I are working for hard to make sure he knows how magnificent and treasured he is. Last night a movie on the couch with popcorn and tickles. This morning a doughnut date before school, just the two of us. And lots of conversation. Which is the best part in my opinion. I…
I’ve been thinking a lot about safety lately. My son is ten years old. He is in the fourth grade. He adores riding the bus too and from. Every afternoon his driver with the kind eyes tells me that Cooper hugs his bus aide. He adores people. Always has. Cooper is a very smart boy. He knows the alphabet, how to search for ‘Hobart and Cosmo’ in YouTube, and how to do some addition. He knows when his baby brother is being naughty and to use a paper towel to…
Nobody’s life is perfect. I think it’s important to say that. In fact, most people’s lives are not easy. But yet social media sets this precedent that every moment must be magical and perfect. And a competition. Holidays. Family photos. Sunday mornings. I see it a lot specifically in the world of special needs parenting. Whose autism is harder? Because I’m happy most of the time, obviously our autism is easy. That’s one game I absolutely refuse to play. I will not compete or compare or rank out autism against…
Do You Feel Like You’re Always Nagging Your Child? So often I hear from parents, “I have to constantly nag or it won’t get done…” Keeping neurotypical kids on track is a struggle and truth is that it’s usually harder with special needs kids. But does it have to be so hard? The answer is no. It doesn’t. There are so many tools out there, we’re just not using them with our kids. You’ve probably seen visual schedules in the classroom and if your kiddo goes to therapy you’ve seen…
Hi. My name is Carrie. I am married to a man named Joe, and we have five kids. Our second child, Jack, is diagnosed with autism. He is almost seventeen years old. We spend a lot of time working on open-ended questions with Jack: who, what, where, when, and why. Who is your favorite teacher? What would you like for dinner? Where did you put your glasses? When do you want to leave for the store? Why do you think Billie Eilish is the greatest singer of all time? See, you can’t answer these kinds of questions with…
I helped my boy get dressed today, as I do each morning. “One foot in sweetheart,” I quietly instructed, going through the familiar motions. I checked the calendar for a quick run down of our day… April 1st. The start of Autism Awareness/Acceptance Month. Letting out a sigh, I hurried off to gather items for Leo’s therapy sessions, my mind wandering to those earlier days, when excitement was all abuzz, as April neared. When we’d wear a certain color to commemorate the day… And Facebook posts and videos depicting individuals…
My son Stalen is almost 6 years old and on the autism spectrum. His safety is my priority, always. He has no sense of safety or danger. He elopes. He is a runner. He is an opportunist. As soon as he sees an opportunity he bolts. When these incidents occur, his strength and speed are super human. He has crossed beyond the tree line into the woods on me a couple of times. He has unlocked the door once and gone outside-luckily-into our fenced in backyard. He has bolted across…
