My family visited my dad last week. With covid precautions, it’s been quite some time since we’ve seen him. As I sat with him, and the boys destroyed his house as grandchild do, I found myself thinking back. Nearly three years ago, my stepmom lost her battle with pancreatic cancer. The night before we lost her, I was driving my dad back to his house, from the nursing home where she would spend her last days. It was nearing midnight. He was exhausted, close to 80 himself. He needed to…
Today is my son Sawyer’s ninth birthday. Which is a really big deal. Because according to him he’s basically 16. I am a storyteller. At least I consider myself one. I think our stories are what complete us. And telling stories about Sawyer are my favorite. And I write them down so one day, when I am old and grey, we will have them to look at. This is my favorite Sawyer story… We had arrived at Cooper’s school to pick him up for the day. It was Jamie, Sawyer,…
This guy turns nine tomorrow. Which is a pretty big deal over here. We take birthdays very seriously in this household. And every time Sawyer mentions something about it, Cooper cheers and tries to convince me it’s his birthday. Nonverbally of course. I wish I could stop time sometimes. But I know I can’t. So instead I try to soak up every part of him I can. Even the part that yelled at me this morning about socks. I saw this memory on Facebook from 2 years ago today…. Sawyer…
I went to an event a while back, before COVID-19, to honor and celebrate special needs moms. It was one of the first times I realized how lucky I was that my son just had ‘autism.’ He isn’t medically complex. He isn’t terminal. He can run and eat, and we don’t live a chunk of our lives at Children’s Hospital. We are the lucky ones because he is happy and healthy. Story after story was told. Mother after mother. All unique. All important. One of the moms spoke about the…
A while back we visited an arcade. It was a big adventure for our little family. Our middle son loves all things game. The baby loves tagging after his older brother. And Cooper, our eldest son, he is just starting to take in the world outside of our home. He loves exploring and experiencing the world on his own terms. He is eleven years old. He loves trains and postcards with animals on them. He also has autism. He is autistic. And according to some, nonspeaking. But he has so…
When it’s just Cooper and his dad and I, the house is pretty quiet. No brothers fighting for attention. No talk of monster trucks in mud or hockey practice. No little sisters babbling and cooing. Well, I mean, Blue Mountain Mystery is usually singing from an iPad and I’m constantly saying, ‘turn it down Cooper.’ But besides that, it’s pretty quiet. You will hear an occasional laugh and giggle. A gasp. A question from me. But chatter back and forth…nope. Cooper is eleven years old. On paper his diagnosis is…
Cooper has always communicated by touch. I like to believe it’s a nonverbal thing. His autism thing. And a Cooper thing. In my mind it’s a way to feel and show someone emotion when it’s hard to understand the words. Or facial expressions. It’s a way to say ‘I love you’ or ‘I am mad’ when the words can’t come out. It’s a way to get someone’s attention too. Listen to me. Look at me. Notice me. If Cooper really likes you, he will touch your face ever so gently.…
Angela, my precious wife, friend, partner, and soulmate, I sit here, looking back over our life, together, having known you for literally half of my own lifetime. I am in awe. I remember your head poking out of the window of that van, and your goofy, funny, amazing, beautiful smile, the day we met. You waved to me, as your ride was parking. I felt a kind of burst, in that moment. I knew I could do this. I knew I could meet you and your companion, and I would…
A few days ago, our family returned from our first ever Spring Break vacation. Because we are unable to fly right now (it’s a huge goal for Cooper but he’s not there ‘yet) we decided to visit the Wisconsin Dells. A destination about 3 hours away from us that has the best waterparks. All three of our boy’s love swimming and it’s an activity that we can all do together. And our absolutely hands down favorite place to stay and swim in the Dell is The Wilderness Resort. For many…
This Saturday, on the 15th, Lifetime will be premiering Safe Room, a thriller that centers on recently widowed Lila Jackson (Nicole Ari Parker) and her 14-year-old autistic son Ian (Nik Sanchez). Since the death of her husband, Lila is grateful for their kind neighbor Neil (Boris Kodjoe), who looks out for them. After Ian accidentally witnesses a break-in in the house across the street and records the horrific murder of the homeowner, Lila becomes embroiled in a deadly struggle to protect her son from intruders Dominic (Mackenzie Astin) and Rocco…
