Posts

Facing a Weekend Alone with Autism

May 12, 2017

I like to give insight into my world because I think it’s really eye opening. I heard a quote once that an Autism Parent is prepared for war at all times. I think that is true. As a mom to an Autistic six year old and incredibly active four year old, I know our limits. Cooper’s daddy is going on a fishing trip this weekend and I’m flying solo with the boys. This means no going to grocery stores, no drive thru’s, no gas stations, or parks and I have…

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Educating Police Officers About Autistic Behaviors

May 9, 2017

Autism and law enforcement is a hot topic in the news right now. Stories like the one about the ten year old boy with Autism who was arrested at his school in Florida are all over my Facebook news-feed. I continue to get questioned about it by friends and family. How do I feel about it? As a mom to a little boy with severe, nonverbal Autism my answer is…SCARED. And it’s not just about law enforcement. It’s by teachers, therapists, doctors and even strangers. I could go on and…

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When the Autism Checklists are Wrong

May 8, 2017

I like to talk about common misconceptions surrounding Autism because I was lead astray by well-meaning friends, loving family members, a guilty, worried conscious, and the damn internet. I like to talk about misconceptions around autism because I was so confused before I knew. Before I REALLY knew.  And lost. And scared. I was so desperate for my son to NOT be autistic that I believed anything I read on the internet…or that was told to me. I was a new mom with a beautiful, smart, cuddly baby boy. A baby…

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I Never Lost My Son…In A Way, It Felt Like I Never Had Him.

May 1, 2017

I want to talk about the first three years of Cooper’s life because they were the saddest of mine. I had dreamt of becoming a mother for years. It was the thing I wanted most in my life. And then in the blink of an eye I was a mama to a beautiful, healthy baby boy.  Except from day one something wasn’t right. Only, I couldn’t describe it and to make it worse it was like no one believed me. My son didn’t need me for anything besides a bottle…

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Invisible No More: Day 30 of 30

April 30, 2017

April is Autism Awareness Month and my Invisible No More Project. Autism, like many other disabilities, is an Invisible Disability. I have shared the pictures and stories of 29 beautiful children with the intention of inspiring you and providing hope. The isolation that parents of disabled children feel can be suffocating. I feel it often as well. You are not alone. Other parents are experiencing the same things. Today is day 30 of 30. Here is my son’s story. The Beginning Cooper was diagnosed with ASD at age three. As…

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Leaving The House With An Autistic Child

April 21, 2017

I want to talk about leaving the house with my severely Autistic, six year old son. I think there are misconceptions about why we choose too and not too bring him places. I’ve been accused of hiding my son. Of being embarrassed of his behavior. I’ve been accused of letting the bullies win. On the other side, I’ve been praised for continuing to try and bring my super challenging son to stores. Everyone has an opinion. Measures of Success Last night we had a really tough outing. And if I’m…

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Understanding The Entire Spectrum Of Autism

April 20, 2017

I had the honor of doing an interview with Kerry Magro. He is an Autism Advocate who is truly making a difference in the world. Here is our conversation. This guest Q&A is with Kate Swenson who is the mother to two amazing little boys. Her son Cooper is on the severe end of the spectrum. She shares a glimpse into her secret world through videos at Finding Cooper’s Voice. Q. How did the idea of filming your story first come about? I started blogging about Autism when my son was…

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Aiden, A Story of Costumes and Love

April 17, 2017

I would like to introduce you to Aiden. This little boy is one of the most interesting and amazing kids I have came across on this journey. And his mother shared his story in a way that made me laugh and cry. Read his story. You will fall in love. Aiden Aiden was diagnosed with Autism, severe ADHD, a sleep disorder, and OCD when he was four years old.  It was a long journey to that diagnosis and I somehow believed that once we had a confirmed diagnosis everything would…

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Putting Your Mask On First

April 7, 2017

I’ve been having some minor medical stuff going on. Nothing huge but still slightly concerning. My fatigue and exhaustion were starting to affect my outlook on life and parenting so I broke down and went to the doctor. Of course it took me a while…like six months. I have no time for medical appointments when my son has so many of his own. You get it. I feel guilt about missing work so often already and then adding in another appointment. It’s just a lot. But like I said, my…

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The Secret World of Autism

April 5, 2017

April is Autism Awareness Month. Prior to my son’s diagnosis, I never knew this month even existed. That’s how it typically goes I guess. People don’t pay attention until it’s their life. I get it. That was me pre-Autism. Now, my whole world is an Autism Awareness Month. I have a six-year old with nonverbal, severe Autism, and I invite you to take a peek inside our secret world. Autism can be scary, isolating, beautiful, humorous, amazing and sad. I, along with many other families, live in this world. Honestly, having…

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