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Welcome to the Secret World of Autism

Finding Cooper's Voice is a safe, humorous, caring and honest place where you can celebrate the unique challenges of parenting a special needs child.  Because you're never alone in the struggles you face. And once you find your people, your allies, your village....all the challenges and struggles will seem just a little bit easier.

You're Telling Me Cooper Will Never Hear A Bird Chirp?

By Kate Swenson / November 29, 2013 /

The day of Cooper’s tube surgery (Wednesday), the audiologist promised that she would call us back. She never did. I called and left her a message. She finally called me back on Thursday afternoon and asked us to come in on Friday and we could talk more. One important thing to note is that Dr. Alice told me in this conversation that our information had been shared with the school district, the county and the state. I felt weird when she told me that. I asked if it was a…

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Tubes Changed Cooper's Life

By Kate Swenson / November 26, 2013 /

So I’ll tell you a few things before I talk about the hearing aids. Cooper came out of surgery mad as hell. Gosh that kid is a fighter. He had an IV and was super distraught. We literally took his gown off, threw a t-shirt on him and took him home. We wanted to be home. We were tired. And overhwhelemed. And so freaking scared that we couldn’t think. On the ride home I kept saying, “he’s going to get teased. I’m not doing it. I’m not putting him in…

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Tube Surgery From Hell

By Kate Swenson / November 26, 2013 /

So that title might be a little extreme. But Cooper’s tube surgery was one of the worst experiences of my life. First, the days before the surgery, Cooper stopped sleeping. He stopped playing with his toys. He stopped interacting. He turned into a complete crying, whiny mess. He was a different kid. The only thing he would do was watch cartoons on PBS. I would try and get him to set up his train or read or engage him in activities that he liked and it wouldn’t work. My husband…

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And Then There Were Four

By Kate Swenson / November 26, 2013 /

In January 2013, our second son was born. Sawyer came into this world happy smiling and learning. He is so different than Cooper. He slept all the time. Thank God. I don’t think I could have handled two babies not sleeping. He loved to nurse and eat. Even now at 10 months he is an amazing eater. And most importantly, Sawyer is babbling. I didn’t know how emotional it would be for me the first time he babbled mama and dada. I wish I could describe how I felt. First,…

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Everybody Talks

By Kate Swenson / November 26, 2013 /

I call my mother crying all the time about Cooper. I can’t accept that he doesn’t talk. I can’t accept that he might not talk. Why do I have to have a son that doesn’t talk? My mother always tells me the same thing…”Everybody talks Katie. How many people do you really, honestly know that don’t talk?” And she’s right. I know she’s right. Cooper is smart and bright and happy. He IS going to talk. Right? No one can tell us one way or another if he will or…

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The Beginning-Part 3

By Kate Swenson / November 26, 2013 /

At this point Cooper was 2. It was really apparent that Cooper wasn’t babbling. He communicated but in his own way. If he wanted something he would grab our hand and bring us to it or just point. And this is also when the whining started. The whining is the hardest part for my husband and I. We get so exhausted. To help you understand, imagine a child that  can only say vowels and everything is a constant high pitched vowel. It started to get really hard for us to…

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The Beginning-Part 2

By Kate Swenson / November 25, 2013 /

The Help Me Grow (HMG) program came to our house when Cooper was 14 months or so. Everything with Cooper seemed right on track except for the language. As I said earlier, I wasn’t all that comfortable with this whole process. I guess I was scared and sad. I will never forget one part of the evaluation. The teacher asked us what Cooper liked to do. I responded with, ‘play ball, read books, play with trucks.’ She immediately cut me off and said, “WHAT DOES HE DO WITH THE TRUCKS?” And…

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The Beginning

By Kate Swenson / November 25, 2013 /

I know when I tell Cooper’s story I need to start from the very beginning. When I am frantically searching for blogs that have to do with Apraxia, Autism, Sensory Processing Disorder, ect, I always go to the beginning of the blog roll. I want to know if the child is like mine. Do they share traits? Are there similarities? I had a completely normal pregnancy with Cooper (besides gaining A LOT of weight…ugh). Nine pound Cooper came into this world not breathing. I will never, in all of my life,…

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Cooper and Mama

By Kate Swenson / November 25, 2013 /

This picture describes everything that is Cooper. A perfect little devil.

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Cooper is just Cooper

By Kate Swenson / November 25, 2013 /

This is Cooper. How can you not love that face. He is sweet and naughty and sassy and smart and all the qualities you want in a little boy. But there is one pretty noticable difference about Cooper. He doesn’t talk. As it stands, Cooper will be 3 years old on December 6th and he still has no words. Usually when I tell people this all the same questions are asked. Can he hear? Does he have autism? Does he mimic? Does he have a desire to talk? Well, yes…

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