Posts

The Reality of Autism: Hard, Beautiful, and Everything in Between

September 18, 2024

When my son was diagnosed with autism eleven years ago, I knew nothing of the diagnosis. Not a thing. I researched of course. I found Rain Man. And dark grainy videos on YouTube of individuals on the spectrum struggling. I wondered where my son would land. The savant side? The hard to watch side from those videos? Or somewhere in between? As time went on Hollywood brought us Love on the Spectrum and The Good Doctor. Eventually other shows too. Our autism looked nothing like those shows. I worried and…

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Finding Peace After Years of Struggle: Our Autism Story

September 16, 2024

‘The best feeling is watching things finally fall into place after watching them fall apart for so long.’ The beginning was so hard. Before the diagnosis. The unknown. The hating myself for suspecting something was wrong. The watching all of his peers and even younger kids pass him by. The fighting with my husband because I saw something he refused to see. The hoping it was anything but autism. Late bloomer. Boys will be boys. Then the diagnosis. The praying it was wrong. Praying it wasn’t severe. Telling myself I…

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Advocating for Autism Employment Worldwide

September 13, 2024

I advocate for autism employment worldwide because autistic adults deserve a chance to succeed just like anyone else. Growing up autistic, I wasn’t sure what my future would look like when employed. I knew I had vital interests in sports and theater, but I didn’t know if some of my challenges, such as the inability to read body language, needing breaks at times due to long periods of social interaction, or inconsistent eye contact, would be accepted in a workplace setting. I went from a Sports Management degree at Seton…

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What a Gift This Little Girl Is

September 13, 2024

I am watching my three year old daughter dance right now. She is tapping. And twirling. Sitting when needed. And following directions. This morning she asked to brush her teeth. And clip her nails too. She quacked like a duck. Last night she pointed to a star and said ‘mama, look at the wishing star.’ She puts her own shoes on. She dresses herself when she adamantly wants to wear something. She walked with me and her brother Cooper to the bus the other day and said ‘bye Pooper on…

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Helicopter Parenting and Autism: Keeping My Child Safe and Happy

September 11, 2024

I’m that mum, the helicopter mum that follows my child around the park the whole time. The one you roll your eyes at when you see the worried look on my face if I lose sight of my child for a split second. Getting to the park itself took so much energy. We had to fight through his anxiety. It was such an achievement to even get him out of the car. To you and your friends, I look overprotective. You might even think at first glance that I need…

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A Little Sister’s Big Heart: Loving and Protecting Her Autistic Brother

September 3, 2024

There’s something about the way she she holds onto him in this photo. It tugs at my heartstrings every time I see it. She’s the younger one, the little sister, but there’s nothing “little” about the way she loves him. Her brother has autism and she knows sometimes he needs a little extra guidance, love and protection. When she takes his hand, wrapping her arm around him with a sense of protection that seems far beyond her years, it’s as if she’s shielding him from a world that doesn’t always…

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To the Mama Whose Baby Isn’t Starting School Today

September 3, 2024

To the mama whose baby isn’t starting school today. To the parent who is wondering if they should take the picture. And wondering if they should celebrate just another day. To the dad whose sending some kids back to school but not the others. To the parent feeling a twinge of sadness today. Or a lot. I understand. Your child doesn’t go to a typical school. They go to therapy. There are no grade levels. Just continuous time. Or maybe they do but they aren’t really in a grade. On…

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My Autistic Son’s Unexpected Show of Love

September 2, 2024

Something beautiful happened today with my oldest son, Cooper. He is 13 years old and has a disability. He was three years old when they told me he had autism. Severe nonverbal autism they said. What followed was a list of all the things he would supposedly never do. Brick by brick the predictions were made. Each one crushed me. I’ll tell you at age 13 he amazes me every single day. I won’t say it’s easy. For him. For us. But it’s good. Amazing even. Today I was upset.…

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Camping in His Own Way: My Son’s Journey to Happiness

September 1, 2024

I often say having a son with nonverbal autism has given me the gift of sight. Before him I didn’t truly see people or the world. Now I do. I see the good and the kindness. He’s also taught me that there is more than one way to live. To enjoy. To experience. To be joyful. Cooper has been asking us, nonverbally of course, for weeks, maybe even months, to sleep in his grandparent’s camper. He showed me videos on YouTube of camping. He used his speech device to present…

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Decoding My Body’s Signals: Navigating Autism and Interoception

August 26, 2024

I’m twenty five and still don’t know what my own systems are trying to tell me. Why? Because I have autism, and that brings problems with one’s interoception. Which tells you if you are you are hot, you are cold, or when you have to go to the bathroom, or when you should be feeling pain. One night this week, my mom and I were up about every two hours; I was in immense pain. We agreed not to go in the middle of the night because of the deer…

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