Yet, I Worried

Imagine living each day surrounded by reminders of the challenges you face. School, and therapy, and even Mom and Dad, all well-intentioned but whose best efforts revolve a great deal around examining those challenges, and how best to address them. And then there’s baby sissy. Who by all accounts doesn’t understand that Leo is considered “different” by some. She doesn’t see challenges, delays, or stims, or even lack of language as a negative…Instead, she hangs on every one of his vocalizations. Every stim and every move he makes. She doesn’t…

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A Bittersweet Sixteenth Birthday

My son Brian’s birthday is next week. 16 years. 16 love-filled anxiety ridden years. 16 years that I could never have predicted in my most worrisome of scenarios, but the 16 years I’ve grown the most in my life. Some times you need knocked around to know what you are made of and knocked around is exactly how I feel as we turn the calendar to Brian’s birthday month. Brian’s birthday, 12-12, is the most bittersweet day of the year for me. It is more meaningful than any holiday, anniversary, or…

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Hello 3 AM, We Meet Again

Hello 3 am. We meet again. I can’t remember the last time I slept fully and peacefully without seeing you and getting stuck here in these lonely early hours, while the rest of the world sleeps. I’m not sure what wakes me, maybe it’s a dream. Or maybe my brain is just more active at this time of the morning, when everyone else is still sleeping and the quiet space gives me time for the anxieties and worries to creep in. I am blessed with a good sleeper. My almost…

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Here I am Again

Quietly I sit listening to the silence of our home. I hear the peaceful sounds of my family’s dreams. Yet here I sit. Wide eyed with an exhausted body and mind. How could I shut my eyes when all I see are my fears of his unknown future? Worrying. Praying. Researching. Learning. This is my time. My time the thoughts I push away in the daylight creep in. I hate how they settle in for the night and determine their own curfew—when to call it good and let my mind…

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What I Know is Different than How I Feel

I know he was born in 2010 on a cold, icy winter day after what felt like days of pushing. His birth was traumatic. At least that’s how it felt to me. I remember them saying he’s not breathing. I watched them gather around the table. So many hands. All rubbing him. I was waiting for the cry. I kept looking at my doctors face to see if he was panicked. He was an old pro. He’d been doing this for years. He seemed fine. Never sweating. Never appearing frazzled.…

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Fellow Mom, I will Pray for your Peace

I’ve prayed for peace a lot. When you have anxiety, you learn how to manage it and be more calm. Prayer is my favorite and most regularly used tool. If you’re a mom of a child with autism, I will pray for your peace too. When I pray, I usually spend a lot of time in gratitude. It’s hard to worry about anything when you are being thankful for the present. If you’re in conflict with anything or anyone, you can’t be at peace. Anger is not a peaceful place…

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The 'One Degree of Cooper' Game

Have you ever heard of the Six Degrees of Kevin Bacon game? Basically it’s this game where every person in Hollywood is somewhat connected with Kevin Bacon. My life is like this…except I would call it the ‘One Degree of Cooper’. Every single thought that goes through my head goes back to Cooper and my non-stop worry. I’m not joking. I see Cooper in every kid. Every person actually. And I have noticed that it’s starting to get out of control. I worry during the day. I worry at night.…

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