Posts Tagged ‘speech device’
My Journey Living with Autism
Hey everybody! My name is Liz. I’m 26 years old and I have autism. Imagine being trapped in a maze, mouth duct taped and unable to talk. Each step in your life feels like you are living in a video game and you have to pass levels to eventually find your voice. This has been my experience since I was diagnosed with autism at age two. Many of my developmental skills were delayed. I didn’t speak until I was six and I wasn’t potty trained until age eight. At birth…
Read MoreThe Battle of Perfectionism with a Physical Disability
Perfectionism, everyone has experienced it in some way. For certain people, it commonly occurs within academics, whereas for others, it can be apparent in their job or home. However, for people with disabilities, perfectionism can be heightened due to the need to prove society wrong, and turn the “can’ts” into “cans.” I am a graduate student, studying to be a mental health counselor. How does that statement alone make me unique? Well, I use a communication device due to cerebral palsy. I am the first person in my program to…
Read MoreNonverbal High Schooler Makes History By Giving Speech with Assistive Technology
Before I had a son with nonverbal autism, I naively thought ‘everyone talks.’ I grew up in a world where I didn’t know anyone who was nonverbal. Or honestly, that it was even possible. I remember the first time a therapist said, ‘you need to consider a world where your son doesn’t speak.’ That sentence. It shattered me. As a mom, to an absolutely beautiful 3 year old, how could it not? Flash forward to today. I’ve learned that communication is so much more than spoken words. It can be…
Read MoreThe 4 Things that Helped our Son the Most
Many of you have been following our story for years. Some even since Cooper was three when I started this blog. You’ve seen the ups and downs. The highs and the lows. You watched me struggle. And Cooper too. Severe autism is a roller coaster. There is no doubt about that. Today, he is 8 and doing so great. He is potty trained, sleeping, walking in the community, acknowledging people and his brothers, and starting to communicate. Yes, his diagnosis is still severe, nonverbal autism with a side of Apraxia…
Read MoreThe Questions I Would Ask You
Sometimes, I let myself dream about you talking Cooper. I’ll be honest, it’s less and less lately. And not for sad reasons. Don’t think that for a second. But because you are communicating so well with your speech device. That’s our focus. As long as you can tell us if you are thirsty, or hungry, or if something hurts, then I am good. I care about your needs sweet boy. I need those met. I need to know that you lack for nothing. And I need you happy. Above all.…
Read MoreHe’s Just Like Any Other Boy
I was making sure Austin didn’t follow someone through our gate the other day and this comment was made. “He’s just like any other boy” It’s not the first time this has been said to me, and I know it’s said with the intention to make me feel better and reassure me that Austin isn’t so different. That he is just like any other 5 year old boy. I don’t mind this comment because it is true. Austin can be like any other 5 year old. He wants what he…
Read MoreSilence isn’t Golden
“It will get easier when he talks,” said my mom, to me, a first time mom. I’m rocking my crying newborn and googling reflux, colic, and “breast is best.” “It will get easier when he talks,” said my mom, to me, a slightly concerned mom now. Zachary is barely making milestones on time. The doctor ask, “Is he rolling from his back to belly yet?” “Almost!” I said, trying to convince the doctor and myself. And sure enough a month goes by and he does! I assure myself God is…
Read MoreMy Autistic Son Learning to Spell
Two months ago I knew that my son knew all of his letters. I knew he loved the alphabet with a passion. But I didn’t know what else to do with it. He struggled to pay attention. To focus. To sit and learn. He showed no desire to read or write. But, and there is always a but in our world, I started imagining a world where he could type to me and have a conversation through text. What would he say to me if he could? And before I…
Read MoreHow to Borrow a Speech Device in your State
My son Cooper received his speech device when he was four years old. At the time I was overwhelmed by it. Not only did I feel the emotional strains of it I felt like getting one was such a huge commitment. Would it work? Should we try it? Will he even use it? I just didn’t know. I didn’t know how much energy I should put into advocating for a device either. I’ve felt this same way with many assistive technology devices. I wanted to try before buying. I recently…
Read MoreHelping Nonverbal Kids to Communicate
My son is almost seven years old. He has autism. He was and is nonverbal. I like to mention that because some kiddos with autism speak at some point and lose their speech. I can’t imagine how hard that must be for parents. To hear their child speak one day and not the next must be gut wrenching. Our story is a bit different. My son has never spoke. He has never babbled. He has no approximations. He mostly screeches, screams and hums. I’ve never heard a word like sound…
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