Posts Tagged ‘Special Needs Child’

Autism Spectrum Disorder became a constant companion in our life one April day a five years back. I think back to that day and realize both how naive and how unprepared I was for the journey ahead. There are a lot of things I would go back and tell myself on that day that I sat with tear-filled eyes not knowing which way was up. These are just a few I would tell myself or a new mama sitting in the dark with a fresh diagnosis… First, take a deep…

When you have a child diagnosed with autism, it’s not about you as the parent. At least that’s what we are told. Your sole focus becomes helping your child. Getting them the help they need. Services. Supports. Therapies. Education. And so on. That’s the role of a parent. And that’s how it should be. But one part that is overlooked, I think, is the evolution of the parent. Their journey. And the patience that should be given to them when everything changes suddenly. It’s not easy ya know. Stepping off…

I could tell you a hundred things this kid has taught me in his thirteen years. More than most adults I know honestly. I had no idea when I was pregnant with my first born that he would end up being the teacher that I needed. Or that a child would turn me into the person I was meant to be. Funny to think about how I actually fought it at first. See, that’s the fear of the unknown. It’s a natural human reaction I suppose. I was scared. It’s…

At the park last night, one of these boys played with boys his own age. He went up the slide and scaled the jungle gym like an acrobat. One of these boys chased after the older boys. They tickled him and he loved the attention. He went down the slide a hundred times and said…’mommy watch this!’ The other boy felt the mulch with his fingers, went down the slide twice because his mom asked him too, and spent the majority of his time tapping the metal garbage can and…

The thing with growing tiny humans is they are always changing. Learning. Absorbing. Getting bigger. My son Cooper is 13 years old. He wants to ride an Amtrak train more than anything. He wants to have a party with his three friends, Dexter, Peyton, and Landon. He loves going to school. He also is autistic and technically nonspeaking on paper. But if you know him you know he has loads of words and sounds and signs and he can spell and read and even use movie scenes to tell us…

For me, as a mom, this parenting autism life, especially alongside my neurotypical children, has often like a contradiction. A double-edged sword or sorts. A constant contradiction of joy and grief, both coexisting and intertwined. Neither wrong. A few days ago, I walked into a gym full of fifth graders and their parents and teachers. A living wax museum it was called. And my son, Sawyer. He was Barack Obama. Or Barry as we learned he liked to be called. He was lined up amongst his peers. He was ready…

We practice. We practice everything. I remember in the beginning l, after the diagnosis of autism was said out loud, feeling overwhelmed about all of the things my son needed to learn. Things that came seemingly easy for most children. Walking safely, using silverware, speaking, playing, self care, I could go on and on. When I thought about all of it I almost couldn’t breathe at times. I didn’t know how to do it all. So, I did what any logical person would do…I made a list. I ranked them.…