Posts Tagged ‘severe autism’
A Guide for Visiting the Dentist With Your Autistic Child
Visits to the Dentist can be very stressful when you have an autistic child. And not just for the child! Parents feel the stress as well. They know how their kid is most likely going to react and then add in other unknowns like a new place, hygienists and dentists touching their kiddo, inability to follow directions, other people at the dentist office, screaming, kicking, sensory processing disorder, anxiety…eek. It’s a lot to prepare for and think about. I brought my autistic son to his first dentist appointment last month.…
Read MoreMy Greatest Fear As An Autism Mom
Raising a kiddo with an unknown future is tough. It takes a toll on a parent’s sanity and emotions. I have fears for my autistic son that I would never have for my typical son. And, I think it is important to say these fears out loud. When my son was diagnosed I just wanted to find someone that talked about autism realistically. I needed someone to say they were scared and that they were tired and worried. But I couldn’t find that person which in turn, made me feel…
Read MoreI Will Sit With You In The Dark
“When you can’t look on the bright side, I will sit with you in the dark.” Alice in Wonderland Hearing that your child has autism, or any neurological disorder, is so unbelievably scary. Maybe you knew deep down. Or maybe you were oblivious. It honestly doesn’t matter because in an instant everything is different. Same kid…different future. Different path. And not just for your kiddo. But for your whole family. For me I felt like a label was tattooed on my son’s forehead. And ultimately mine. I thought the label…
Read MoreLet’s Talk About Stimming
My son is six year’s old and on the severe end of the autism spectrum. When he was diagnosed, I had heard about stimming. I think we’ve all heard that word. To be perfectly honest though, I didn’t even know what stimming was. The definition is interesting: ‘Stim, stims or stimming is short for “self-stimulation”. Almost everyone does it (tapping feet, cracking knuckles, twiddling thumbs), but in autistic people these behaviors are more pronounced and may seem downright strange. Autistic people often engage in stimming when they are stressed, to…
Read MoreThree Videos That Changed My Life
When my son was diagnosed with autism I spent hours, days, maybe even months, scouring the internet for information about autism. I wanted to know everything. I wanted to know the best diets, therapies, tactics and resources. This was the business side of me. I knew we needed help and I was going to find it. That part was relatively easy. The help is out there…you just have to find it. But as a mom, I also wanted to find stories of hope. I wanted to find out what autism…
Read MoreI’m Thankful For You: My Husband
(Editor’s Note: This article was provided by Penny Mack and is part of Cooper’s, ‘I’m Thankful For You’ Campaign.) The November I want to thank my husband Joe, my village in the isolating world of autism. This spring we found out our son Henry has severe nonverbal autism. Before the diagnosis we had signs of autism. For one we could not go anywhere without a severe meltdown. Our son loves trains and we learned the hard way that he does not like train rides. We sat on the Christmas train…
Read MoreWhy I Said Goodbye To Hope
I just changed my six year old’s diaper. It was messy. There was poop dripping down his leg. It was on his jeans. His socks. The poop got on my hand, couch and carpet. This is the side of autism that no one talks about. The kind that challenges your hope and sanity. This was the tenth diaper I have changed this morning. It is 6:37 am. I am exhausted. I am almost crying. I thought, why me, why us, and why my kid. Why. What did I do wrong? And…
Read MoreMy Son’s Disability Isn’t Always Beautiful
A very nice woman approached me over the weekend and thanked me for talking about autism. She thanked me for being honest and not sugarcoating it. She thanked me for keeping it real. That conversation reminded me why I do what I do. I refuse to lie about my son’s disability or downplay it to make people feel better. When my son was first diagnosed I dove head first into helping him. I turned to other bloggers, Pinterest and Facebook groups because I couldn’t find anyone in real life that…
Read More10 Tips to Ask For a Sensory Event
I am constantly asked how my family attends so many sensory events. People will say…’You must live in a really understanding community.’ I just laugh. Every sensory event that we attend is because I asked them to have one. And then I asked ten more times. My son is nearing seven years old. We have been missing out for way too long. We want to join the community and have fun too. Yes, my son has autism. Yes, he is loud and rammy and busy. Yes, he processes joy and…
Read MoreThe Dreaded Question: ‘Do You Medicate Your Son With Autism?’
I hate this question. I hate it so much that even typing the sentence ‘do you medicate your son‘ gives me anxiety. It’s not that I mind sharing the answer with you. I am an open book. I also firmly believe that as parents we can help our children even more by speaking opening and honestly about what’s working and what’s not. I remember years ago when Cooper was first diagnosed I just wanted someone to tell me what to do. Tell me the best course of action to help…
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