Posts Tagged ‘Parenting’
Is this Motherhood?
I just smoked my funny bone on the door to my laundry room. It literally took my breath away. And had me wondering if someone was watching me, laughing, like The Truman Show. I was cursing about the laundry. And apparently flailing my arms. It just blows my mind how 5 people can have so much laundry. Wet swimsuits, stinky towels, pee sheets, stained up t-shirts, gym clothes. Clothes ranging from a 12 month onesie to an XL t-shirt. Baseball uniforms and hockey jerseys. Clothes piled on the floor of…
Read MoreTo my Fellow Target Shopper
“You are a little too big to be sitting in there don’t you think?” So said the elderly woman at Target, with a chuckle and a wink, to my Isla as she sat with her knees grazing her chest in the shopping cart. I was tired. My body, my spirit, tired. The summer has been so long. I had zero make-up on but I had brushed my teeth, put a cap on to hide my unkept hair and managed sufficient deodorant swipes so I was totally winning the day in…
Read MoreTo the Parents who Admit it’s Hard
To the parents who say it’s hard. And talk about the hard. The ones who don’t hide. Or lie. Or fake it. But instead learn from it. And let the hard make them stronger. I see you. To the parents that have figured it out. Or at least figured it out enough. Thank you for helping others. For supporting and lifting up. For answering a midnight text saying, ‘I can’t do this anymore. ‘And reminding them, ‘yes, you can.’ To the parents who don’t judge. Who offer a hand, dinner,…
Read MoreWhy Parents of Kids with Special Needs Stay Silent
As parents of kids with special needs we know our lives are different than most. Our highs are higher and our challenges are more significant. While our peers are registering kids for sports we are arguing with the insurance company about the cost of a stroller. Or trying to figure out a new behavior. We are getting babysitters for teenage kids and researching a new medication. We are putting up door alarms and trying to balance the world of special needs with the typical world. And we are celebrating our…
Read MoreWhen Forever Hits You…
I just went for a run. My first run in years. It was terrible. 85 degrees out. Sunny. No breeze. I ran for 30 minutes. I didn’t stop. I cursed myself a few times. I’m 36. And I let myself get this out of shape. I used to run. I used to exercise. But then life got too hard. Too busy. My legs felt like concrete. I was going so slow at times I waited for people to pass me. But I did it. I didn’t make any excuses. Like…
Read MoreA Letter to Myself, an Autism Mommy
Dear Me, I’m sorry I never think you do enough. You go to bed exhausted. Sleep restlessly throughout the night. In between the 3 A.M. googling and night awakenings from you child, you still dream. I’m sorry you still dream. It’s never the exact dream, but that pain in your heart feels the exact same. Your nonverbal child said, “Mom…” “…I love you…” “…I’m good.” Or worse, your child has a whole conversation with you, as if their voice has always been there. Then your tired eyes open. You try to…
Read MoreWhere Would I be Without Autism?
I had an interesting experience this past week. My husband and I volunteered to be apart of a research study looking at how having a child with autism affects our marriage. There were a lot of expected questions like, “what things are more challenging when you have a child with autism compared to other families?”, and “how do you cope with the stress as a married couple”. Some of the questions were hard to answer, some were very easy. There was one question that struck me to the core that…
Read MoreI am so Thankful for my Cheer Squad
Special needs parenting is rough. I’m not gonna sugar coat it anymore. It is the single most hardest thing I’ve ever done in my life. The first two years were pretty typical, I always looked to my friends for mom advice. Diaper cream, sippy cups etc. The last three have been hard. I don’t have anyone to ask for advice anymore. It’s just us. My husband, our pre-verbal ASD son and me. We make a great team and my son is the MVP. He is tough, smart and even though…
Read MoreLong Term Survival Mode and the People who Live it
Recently I found myself in that that spring cleaning mode—the place where I wanted to purge, and organize, and simplify all the things. But as I took a step back to take inventory of our lives I was quickly overwhelmed by what I found. There were so many things that had been left un-done for so long. As I thought about why, the reality of our life came flooding in around me. It all comes down to survival mode. When you come home from the hospital with a newborn in…
Read MoreAutistic Teen left with nowhere to live after his Grandmother Dies
If you ask any special needs parent about their greatest fear surrounding their disabled child, I promise you it will always be the same. Who will care for my child after I am gone? That thought has haunted me many times. And it’s a complicated question as well. My son will need lifelong care. He will be a man, not a small child. I don’t know where he will be cognitively. Or if he’ll be able to bathe himself. Or buckle his own seatbelt. I don’t know if he will…
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