There Is Always Next Year: A Journey of Hope and Progress

There is always next year…At age two we went to a restaurant for the last time. We started early intervention and learned how different our son was from his peers.At age three he was diagnosed with severe nonverbal autism, and we were told all the things he would never do.At age four we locked our house down. Three locks on every single door. Window alarms. Fences. We realized we couldn’t go places outside of our home. We started having aggressions and self injuring behavior. At age five it got really…

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A Family Full of Love: Why We Had More Kids, Not Replacements

Someone once told me that my husband and I had a third and fourth children as replacements for our oldest son. See the little one on the left there with the mischievous smile? And the little princess in the yellow dress? Those two. I assume they wrote that comment to hurt me. Or to remind me what a crappy mom I am. Or maybe they were just angry and miserable. Who knows I guess. What a ridiculous statement though. A replacement child. I’m not sure why we would ever replace…

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How to Advocate for Your Child: A Parent’s Letter to the IEP Team

It is time to prepare for my daughter Olivia’s annual IEP meeting. I need to go over all of her goal updates and the data taken so we can move forward in the best way for her individual needs. Here is a letter I wrote that conveys all the things about Olivia to her team. To the education staff working with my child, Olivia is a very complex person. She was diagnosed with autism and sensory processing disorder. She also has anxiety and will become obsessive-compulsive in certain situations. I…

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Why Time and Love Matter: Sibling Connection and Autism

Last night after putting my four kids to bed, I found myself staring at this picture from across my living room. Cooper was 8. Sawyer was 6. And my third was just a few days old. The perfect photo of three brothers. Except, it wasn’t perfect. Not in anyway. Cooper refused to touch the baby. He was very scared of him. The baby had been home 7 days at that point and Cooper had yet to really even acknowledge him. He refused to lie down when the photographer asked. He…

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A Friendship Beyond Words: The Love Story That Truly Matters

What is love? Or even a love story? I guess we all know the traditional one. The stereotypical one.But I know a better one.A friendship.My son Cooper is 14 years old. He is what they call…nonspeaking. See, at three years old they told me he had autism. And then around age six the professionals told me he would most likely never speak. And somewhere along that way, a daycare provider told me he would never make a friend. I’ll never forget it. It’s one of those moments who made me…

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Dancing in the Rain: The Truth About ‘This Too Shall Pass’ for Special Needs Parents

There is a saying that is said at one time or another to every parent. This too shall pass. I remember being told those words as I held each of my newborns, exhausted from cluster feeding and lack of sleep. Again during the never ending messes that kids make. During potty training woes and tantrums over blue cups and the wrong shoes. And I guess in most cases it’s true right? The hard moments do pass. Usually. Babies start sleeping. Messes stop. Little humans learn to communicate. Kids get more…

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A Year of Purpose: Finding Joy and Strength as a Lifelong Caregiver

I recently marked one year since I took early retirement from my career to stay home with my son, Zachary who lives with severe autism. I have always worked full-time throughout his life, but once we realized he would always require 24/7 care, our goal was for me to care for Zachary full-time after he graduated high school. As a senior, he started saying, “Stay home, Mama,” every morning, so we knew he had the same goal. It took us about three years after he graduated to meet that goal.…

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Two Brothers, One Game: A Special Moment 14 Years in the Making

This picture. The older brother watching the younger brother play goalie. Probably seems like nothing special. But it is. It’s hugely special. It’s a diagnosis of autism for the older one. The younger one learning alongside him. It’s years of hard work and practice. It’s deep breaths and waiting patiently. It’s noise and sound and cold. It’s also a family, all together, watching a hockey game. I don’t know a lot about autism. I am no expert. I can’t tell you the mysteries of my son for sure. Nor can…

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Finding Faith Through Autism: A Mother’s Journey of Prayer

I just came from church. I went alone today. I could have brought my two younger children but honestly, I needed 60 minutes to myself to sit and think. I chuckle at what I consider to be a ‘relaxing break’ now. Anyhow I don’t often talk about church on this page. Because like politics and vaccinating and puzzle pieces and the color blue, it can anger people. And that isn’t what my mission is about. I refuse to argue about autism. Not anymore. I’m too busy making sure my son…

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Unlocking My Son’s World: The Joy of Texts from My Nonverbal Teen

I have a story to share with you. A little long possibly, but worth the read. My son Cooper is 14 years old. He has a diagnosis of nonverbal/nonspeaking autism. He loves trains and swimming and asks me every single day to go to outer space with his friends, the Little Einsteins.He is in 8th grade. He communicates in a variety of ways. Some words and sounds. Gestures. A speech device. Sign language. Typing. And most recently a cell phone.He’s never quiet. He loves to take photographs. When he’s feeling…

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