‘The Reason I Jump’ Film Gives a Platform to Discuss Nonverbal Autism

Have you watched this film yet? When I heard that they were turning the best-selling book ‘The Reason I Jump’ into a full-length documentary film I was SO excited. For those who haven’t read the book, yet, it was written in 2007 from the perspective of a nonspeaking 13-year-old boy, Naoki Higashida. The book was later translated to English which made it rise in popularity even further! I gave it a read after seeing Jon Stewart mention it when he was the host of The Daily Show. The 82-minute documentary…

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Sometimes You Just Do Not Need Words

My daughter does not speak as much as a three and half year old should.   She thinks a lot. She understands. She is very bright but she cannot express her feelings and experiences into words.  She has never said her belly hurts or that she is scared.  I have never heard about her day. She has never asked me why a sound of something is super loud, in fact she has never asked me a question about anything, not one single time.  The other day I picked her up…

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The Power of Words

“I like good strong words that mean something…” ― Louisa May Alcott, Little Women The quote above is from one of my favorite stories as a child. Little Women reminded me of my youth. I loved the story, and I still do. I think what I liked most about it was the way the story was told. The beautiful words and details that Louisa May Alcott chose to tell her story. I am infatuated with words. I love to write them and hear the intoxicating way they coalesce to form…

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A Nonverbal Thank You

Cooper has never asked me for a birthday present. He’s never asked me for anything really. If I was to show him something cool or ask him a question about what I think he might want, he most likely will always answer yes. He likes to answer yes. But it isn’t always accurate. Unless I ask him something ridiculous like…do you want broccoli for dinner? Then it’s a definite NO. Over the years we’ve never talked about the presents I’ve given him. Not a word. I’ve never gotten an excited…

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Give Your Child A Voice

This morning I had a conversation with my nonverbal son. A real one without words. To all of the mamas and dads out there with children who do not speak verbally, hang on. Never give up hope. Keep working towards functional communication. I sat on the couch drinking my coffee. He sat next to me immersed in his trains. I asked him if something happened at school yesterday. He grunted ‘yea.’ I asked him if there was a little boy who frustrates him. He grunted ‘yea.’ Now this isn’t the…

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Will You Talk Then?

I don’t often talk about God or heaven or religion on this blog. I don’t because the few times I have…people yell at me. Or it makes people feel uncomfortable. And I don’t want to do that. People can believe whatever they want to believe. So, I made the decision to not openly talk about religion. But I will tell you, that I went through a period where I was angry at God. I didn’t understand why my son was picked to have autism. It didn’t feel fair to him.…

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Behaviors are Communication

My autistic son can’t tell me what he’s feeling. He can’t tell me if he’s scared or nervous. The words don’t come out. So he shows me instead. And those feelings usually come out in bizarre ways. We call them behaviors. They are typically frustrating. They usually drive a person crazy. That’s the hard part about severe autism. My message today…behaviors are communication. A few nights ago, Cooper patted the chair next to me. He smiled. And climbed his body up onto my lap. He wedged his way in…in the…

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Let Your Child Show You The Way

As a young child, my son Cody was always full of energy and often became dysregulated and would have meltdowns and tantrums for hours at a time. I remember sitting against his bedroom wall just watching him during one of these meltdowns to make sure he didn’t hurt himself. There was really nothing I could do. I just made sure he was safe. Those were very hard times in our journey. I didn’t know what he needed and felt so helpless. I can say I look back and I now…

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How I Encourage My Nonverbal Son to use his Speech Device

I have many goals for my nonverbal son. Obviously, I want him to speak one day. But even more than that I want him to be able to communicate and in more than just a ‘preferred request’ sort of way. I want him to be conversational. I want him to ask me questions. I want him to be heard and understood. Right now, since he is nonverbal and struggles with Apraxia on top of his Autism, reaching these goals means encouraging the use of his Speech Device. Cooper uses a…

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Helping Nonverbal Kids to Communicate

My son is almost seven years old. He has autism. He was and is nonverbal. I like to mention that because some kiddos with autism speak at some point and lose their speech. I can’t imagine how hard that must be for parents. To hear their child speak one day and not the next must be gut wrenching. Our story is a bit different. My son has never spoke. He has never babbled. He has no approximations. He mostly screeches, screams and hums. I’ve never heard a word like sound…

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