Posts Tagged ‘nonverbal autism’
Our 2017 Year in Review
I often find myself talking about all the things my autistic son can’t do. I don’t mean too. I’m not negative. I’m just human. And when you get together with a friend who also has an autistic child you start listing out where they are at. Yes, they are nonverbal. No, this and yes, this. And before you know it the things they can’t do outweigh the things they can do. I worry about where he is at. I get overwhelmed by how far he has to go. Sometimes I…
Read MoreI Changed My Way of Thinking and it Changed My Life
As a mom to a little boy with autism I live by the quote: ‘I changed my way of thinking and it changed my life.’ I haven’t done a video in over a week! In this (long) video I give an update on our life and then discuss my evolution as a mom to a child with a lifelong disability. I get asked daily if I really am as happy and positive as I appear in my videos. The answer is yes. 95% of the time my sons disability motivates…
Read More9 Big Mistakes Parents of Autistic Children Can Avoid
I often think of my son’s autism as a journey. A journey that not only he is on, but our family as well. A journey with many, many challenges. And holes and cliffs. And of course it’s slippery. The hills have jagged rocks and most of the time I feel like I am hanging on for dear life. There is no safety harness or map. I typically don’t know if I am even going in the right direction. And perhaps at times I fear that I might be going backwards.…
Read MoreA Letter to the Mother of a Child With Autism
Dear mama, I want you to know that when you leave your child with me, he will be safe, loved, and encouraged. I want you to know that I see you and you are not alone. I also want you to know mom, that I see behind your smile and want to hug you every day. When you leave your child at my door I sometimes secretly hope that you are going to do something wonderful for yourself and that you don’t forget to take care of yourself. I want…
Read MoreTeaching Play To Children With Autism
At age seven my son has very few play skills and no imaginative play. This means keeping him entertained without technology is a real challenge. What I wouldn’t give to be able to say to my son, ‘go play.’ Right now that phrase doesn’t make sense to him. He needs to be taught the skills first. For years we have worked on puzzles and anything alphabet related. But both of those types of play meant that I was sitting next to him and engaging with him. I had hoped by…
Read MoreWill It Always Be This Hard?
I read a blog post today. It was written by a super exhausted mama for the super exhausted mama. Which obviously caught my eye. That’s me. I work full time. Two kids. One with autism. Three dogs. Home owner. Friend. Daughter. Spouse. I spend my days sharing autism, advocating, attempting to have a social life, trying to drink enough water, playing with my kids, exercising, fighting with Cooper over eating and communication, cooking dinner, cleaning my house, wishing I could walk my dogs, get a good night sleep and pee…
Read MoreHow to Borrow a Speech Device in your State
My son Cooper received his speech device when he was four years old. At the time I was overwhelmed by it. Not only did I feel the emotional strains of it I felt like getting one was such a huge commitment. Would it work? Should we try it? Will he even use it? I just didn’t know. I didn’t know how much energy I should put into advocating for a device either. I’ve felt this same way with many assistive technology devices. I wanted to try before buying. I recently…
Read MoreA Mother’s Letter to Santa
Dear Santa, What I want, can’t be bought in a store. No, what I want, means so much more. It’s something I have waited so long to hear. I really hope my wish is granted, this year. It seems to come so easily for most kids. I hope this wasn’t caused, by something I did. I have cried, and whispered many prayers. Sometimes, I feel like no one is there. The pain is real, and hard to bear. Please, Santa, show me that you care. I’m trying really hard to…
Read MoreA Conversation with Sawyer: Is My Brother Coming With?
A few nights ago, Jamie and I attended our four-year-olds first Christmas pageant. I can’t even tell you how excited I was to attend. Sawyer had been talking about it for weeks. I knew it was going to be special. Sawyer nailed it. Just like he always does. He stood, sang, participated and hammed it up. And we watched. It was wonderful. It was pretty special to watch him. My little Sawyer’s first Christmas concert. He’s a star! And also appears to have some emotions midway through. He’s on the…
Read MoreDoes Parenting A Child With Special Needs Get Easier As They Age?
Have you ever wondered that? I used to all the time. I would be at a particularly low point in our Autism journey and I would ask that question to my mom or a friend or a doctor. And no one would tell me the truth. I just needed to hear if it was going to get easier or get harder. I needed an honest answer. The problem was I was asking the wrong people. I’m not surprised I get asked this question every day by parents of newly diagnosed…
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