Posts Tagged ‘Life after an autism diagnosis’
The Brick Wall of Autism Advocacy
What does it truly mean to fill your life with advocacy? As parents of autistic children, we spend hours upon hours advocating for our children. I often think of it as two sides of a brick wall. On one side, you have all the people you sit across from in different settings. On the other side, you are standing holding the hand of your child. In this brick wall, one brick is missing. Through the hole, you try to use your words to explain a mountain of concepts you wish…
Read MoreLife Changed With Autism, But He Stayed The Same
Five years. It seems unbelievable it’s been that long. After a four month wait we made our way down to Minneapolis. It was one of those weird days in August that was cool and dreary. We were early of course. I don’t like feeling rushed. The place we were going was close to the fair grounds. The “Great Minnesota Get Together” had just started and I didn’t want to be late. We had waited too long for this appointment. I remember driving by wishing it was Sunday. The day we planned to attend…
Read MoreMama, Take Time To Absorb This New Life
Autism is unconditional love. Autism is hard. Autism is constant struggles. Autism is often full of denials. I received a message from a new mama struggling to accept her son’s diagnosis and trying to find the words to tell her family. I couldn’t give her a magical answer. All I could say was the words will come when you’re ready. Do not rush the emotions. Take time for yourself to absorb the diagnosis. It is life altering. It is shattering. I can honestly say I didn’t accept the Autism diagnosis…
Read MoreAutism Tricked Me
Prior to Cooper, and even up until a few months ago, I had very specific thoughts about autism. I am pretty sure I was using information from TV shows or from conversations with other people. I assumed all autistic kids had repetitive behaviors. That they all lined things up or spent time spinning wheels or pinwheels or anything round. I also assumed they were very highly intelligent. I also pictured a lot of self soothing or stimming. Most specifically, a lot of rocking back and forth. And I always thought…
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