Posts Tagged ‘autism’
If You Are Struggling, Find Your Person
I am a wallflower. An introvert. Painfully shy. Making new friends in your thirties is hard. For many reasons, it seems even harder when you are Mom to a child with disabilities. Cloaked in a facade of smiles and ‘He’s coming alongs’, it can be mentally exhausting to keep cheerful and happy and all the things that make someone want to be friends with you. My dear friend Kristin calls this her mask and I think it is the best way to describe how many Moms feel on this journey.…
Read MoreTo the Friend Who Persisted Through my Son’s Autism Diagnosis
“Let me know if you need anything. I know what it’s like. When my son was two years old, he also had to have surgery.” Those are words very few people can say to someone whose baby is recovering from a major surgery and their entire world has just been flipped upside down. My friend spoke those words to me when my son had brain surgery. Brain surgery. Words I cannot even believe I can type so nonchalantly, because in retrospect, that wasn’t even the hardest part of our journey. The hardest…
Read MoreMedical Cannabis and Autism: Month Two Update
I promised I would give a weekly update on our journey with medical cannabis for our severely autistic son. We are just over two months in! We’ve seen amazing, huge, gigantic, breakthroughs. I am so excited to tell you all of them. But with that, we’ve also seen a huge increase in behaviors. We’ve learned that while awareness is an AMAZING thing, it can bring issues that we’ve never had before. In week one we saw a reduction in anxiety. In week two we saw improved engagement with his surroundings.…
Read MoreI’m Thankful for My Niece
My husband and I are parents to an amazing, energetic, mischievous, almost three year old boy, Logan. We started to notice speech regression around 20 months, and I brought it up to his pediatrician at our next routine visit. I remember her saying that speech regression is related to autism, but she didn’t really see any other “red flags” that alarmed her. She referred us to Early Steps to see if he would qualify for speech therapy, and then we would see if he started to make any progress and…
Read MoreMy Husband, Thank You for your Sacrifice
I am thankful for my husband Steve. We’ve had an amazing journey thus far. November 27th will be our families Autism anniversary. The day one of our twin boys, Maverick, was diagnosed. At the time of Maverick’s diagnosis, we were living in central Washington. A peaceful, rural area, filled with apple orchards and wineries. A beautiful place to raise a family, just maybe not our family. Acquiring services in an underserved area is difficult. Maverick was receiving early intervention services through a local organization. It consisted of two speech therapy…
Read MoreA Mom’s Letter to Autism
DEAR AUTISM, I have had this letter in my heart addressed to you for some time now. I’m ready to tell you how I really feel. Almost three years ago to the day, you hit this family like a run-away train veering off track. We were simply trying to understand how to be parents, trying to figure out how to balance life, money, work and a relationship as husband/wife. We were slowly getting the hang of what being a family was all about. Then you came knocking at OUR door….…
Read MoreTo the Person Who Judged Me
To the person who judged me, How could you say it’s my fault my child has Autism? How could you go so low. When I am already at my lowest. You have no idea the struggles we have went through. You have no idea all the hurdles we’ve had to jump. All the sleepless nights. All the meltdowns. All the frustration. Being so emotional because your child doesn’t speak, and you have no idea what is wrong. All the doctors and therapy appointments. Feeling so isolated. Wanting to cry 24/7.…
Read MoreThe Parts I Wasn’t Prepared For…
When my son was diagnosed with autism at age three, I was initially devastated. I think that’s normal for a parent. The word was big and scary. It made me feel out of control. It made me feel helpless. I knew nothing about autism. Or where to begin. Or even what the future held. I felt that way for at least a year. But once the dust settled, I dove in. My kid was awesome. He was adorable and smart. He just needed more time. More help. Autism didn’t change…
Read MoreThinking About Forever
A few nights ago we attempted to take Cooper trick-or-treating. We prepared. We planned. We encouraged and motivated. We set realistic expectations. We tried. We failed. And Jamie and I found ourselves sitting on our porch thinking about forever. Thinking about the next fifty years of autism. We aren’t new to this. We’ve been doing it for seven years. We live realistic hope better than anyone I know. And yet, we were there again. Looking at forever. Saying the worries out loud that only a parent of a severely disabled…
Read MoreI’m Thankful for our Local Fire Departments
I am so very thankful for the Mentor Ohio Fire Department, especially firefighter Jerry Craddock, and the Willoughby Ohio Fire Department, especially firefighters Ricky Stuart and Mark Leisure. We are so thankful for them because with their help we have started a special needs safety program that meets one time per month at both the Mentor and Willoughby locations to help teach kids of all ages with special needs about fire and other safety issues! We started with firefighter Jerry at the Mentor location. He has been so great with…
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