Posts Tagged ‘autism’
I Need You Too
Since the day you were born, I knew that being a Mom was my purpose in life. I loved every single moment. The late nights, the cuddling, even the poopy diapers. That feeling, knowing that someone needs you… is amazing. Although, I thought it would only last for a little while. The needing. The constant. Now, you are four. And you still need me just as much now, as you did when you were a newborn…and I can’t help but wonder if that’s how it will be forever? Will you…
Read MoreAn Open Letter to the Parent of a Child with a Disability
Dear Parent of a Child with a Disability, I saw you today at the local children’s hospital. Your body looked worn from the long days of countless appointments, multiple doctor visits, and always being on watch for another possible seizure stealing your child away. Your hair was pulled up in a ponytail, enabling you to always be able to react to any needed circumstances. Your little one lay her head quietly on your lap, she, herself so worn from the past 75-hour hospital stay. Yet, you smiled kindly on her,…
Read MoreI Wish We Didn’t Have to Fight
Sometimes I wish we didn’t have to fight; fight for services, for inclusion, for equality. But I know that is not the case. We will always have to fight because my 4 year old, nonverbal son diagnosed with autism will never be fully accepted by everyone, and that makes me so incredibly sad. I am reminded of this from time to time and every time it stings. This week I was reminded again how the neurotypical world doesn’t quite understand and accept my son. Franklin has been in an Early…
Read MoreShe’s Just a Kid who Never Learned to Discriminate
An elementary school friend of mine has a daughter not much younger than my own. These days, we only connected through social media and a shared love of our small hometown memories. My daughter had a major speech delay; so did hers. We bonded over the similarities. Her daughter Harper was diagnosed with autism; with a lot of speech therapy–my kid learned to form words. When Kate was old enough to learn about autism, we started discussing it. I mean, we started discussing it before three. She asked all…
Read MoreWe Have Perfected Splitting Up
We were standing in a group of friends. Sawyer and I. Waiting in line with five other families. Dozens of kids. I watched him subconsciously glance around. Taking it all in. I wonder if he ever realizes that most of these kids, his friends, are his brother’s age. 8. They are talking about scary movies, Pokémon cards and mini doughnuts. As kids do. Part of me thinks he doesn’t even realize Cooper’s age. Probably because his favorites are Barney and First Word Books. I get it. He tugged on my…
Read MoreParents, Celebrate It All
There are many first in our children’s lives. Some we take note of and some we don’t. Most just happen without a second thought. It’s not like that in our world. My son has had to work hard for every single milestone. This is the first time I’ve seen my son independently play. He is working towards iPad time. He’s been at it for 15 minutes now. Sitting. Problem solving. Spelling. Puzzling. Trying. Babbling. There are no words to express how shocked and proud I am of him. How natural…
Read MoreThe Fear of Wandering
Last night, I saw my sweet boy for the first time as a grown young man. My dream was so real. Until now, I really hadn’t been able to picture him outside of toddlerhood. I kind of blame that on autism. Maybe it’s the language barrier between us, or the discomfort of not knowing exactly what his future looks like. For some reason I just couldn’t picture him, or didn’t allow myself to try. He was big, taller than me. Happy and gentle. And strong. He clung tightly to my…
Read MoreThe Great Divide
The great autism divide within the special needs community is disheartening. There are those who embrace the neurodiversity movement, who most likely identify as being autistic themselves and who have what would’ve been Aspergers Syndrome prior to the DSM-V changes (now mild autism). Those in this category tend to be proud of who they are and can communicate most of their everyday challenges and struggles. The other category of autism are those who identify as having “moderate autism”, who struggle socially like those who identify with mild autism, but have…
Read MoreAutism, the Invisible Disability
I see you. Walking in front of me. You are here with your family. Your significant other to the right of you and your toddler walking in front of you. It’s the perfect day to visit the aquarium. It’s a Monday and not busy at all. That’s why we are here too, on a Monday. You see, my son, Zachary has autism. Severe nonverbal autism. We like to go to places when the crowds are low and so is the noise. I know you see us too. You have turned…
Read MoreIn a Blink you are a Senior
In a blink, seventeen years have come and gone so quickly. This year is your senior year and I couldn’t be more proud. You are happy and finding your way. You have friends, are learning skills to work and even talk about living with friends, not to mention you talk nonstop. It brings me to tears for more reasons than one. Those earlier years were so tough. You couldn’t talk until you were seven, but now I swear you make up for lost time. Time seemed to go by so…
Read More