Encouraging Play with Hasbro and The Autism Project

Play doesn’t come easily for some children. My son Cooper is a perfect example. He is seven years old, on the spectrum and has never played with a toy typically. Playing is so important for brain development, socialization, imagination, etc. I remember filling out evaluation after evaluation before my son was diagnosed and always checking ‘never’ to ‘does he play?’  It was scary and not something we could not fake. Even after years of encouraging and practicing play, we can walk through the toy aisle at Target and he will…

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A Look at Nonverbal, Severe Autism

When my peanut was diagnosed with autism I was so scared. Hell, at times I still am. But most of the time, this is what nonverbal, severe autism looks like for us. Funny, silly, adorable, snuggly, loud and oh, so cute. This is my Cooper. He’s pretty much the best thing ever. And this mama knows to not take one second for granted. We’ve worked for this. Every sound. Every touch. Every look. Sitting. Communicating. Loving. Hoping. Don’t give up my friends. Keep going. If your child is newly diagnosed,…

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And Just Like That, My Baby is Five

Yesterday was Sawyer’s fifth birthday. I know I don’t show all that much about Sawyer on this blog. I try to focus my posts around autism and everything that goes into having a child on the spectrum. I do that because I know that some day Sawyer will read this website. He already talks about Finding Cooper’s Voice with me. I want him to be able to tell his story if and when he is ready. Some day, I hope he spreads autism awareness like me.  Anyhow, I wanted to…

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My Son Is Not Broken, My Son Has Autism

My son has Autism. Whew, boy does that feel good to put it out there! I’ve had an internal battle with myself whether that was something that I wanted to put out there for everyone to know, but I’ve finally asked myself why?? Am I ashamed? Absolutely not. Am I seeking sympathy? That is the last thing I want. So why? Why put it out there so vulnerably? My Son has Autism The answer is simple….for my son. It is all just for him. I’m doing it in hopes that…

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Stop Acting Like Autism is a Death Sentence

I’ve been writing publicly about autism for five years now. Meaning, I’ve opened myself up to the world to educate and share our journey. And with that level of vulnerability comes support and scrutiny. At this point, there isn’t much that I haven’t heard. My son has been called ugly. I’ve been called fat. I’ve been told I should’ve aborted Cooper. He’s been called a retard. Dumb. Ugly. A mistake. A freak. He’s had death threats. Hell, so have I. I’ve been told that Cooper and I are stealing Medicaid…

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Today, Self Care is…

Today, self care is leaving work early to pick up Sawyer from preschool and waiting with him for five minutes while he examined a crack in the sidewalk. Which he was sure was a secret path to the middle of the earth. As I tried to rush him along he told me, ‘NO MAMA. I am doing science.’ So of course, I squatted down beside him, in the cold and drizzle, and looked for the center of the earth. Self care is getting home in the daylight and walking my…

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When your Search for Answers Brings Sadness

Hey friends. First, a huge thank you to everyone that emailed, commented and messaged me after my sad post a few nights ago. I read every word. Second, here is the video I know many of you have been waiting for. A few days ago we took our son Cooper for an appointment at the Mayo Clinic. This was the first of eight appointments over the next couple of months. It’s a big deal in our world. I finally found a doctor that will look at Cooper’s whole case….not just…

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The Quest for Balance in the Midst of Chronic Chaos

Isolation. Special needs parenting is isolating for me. I know it’s my deal. I choose to give my daughter all I have. But I am also just doing what I know to do. I am admittedly exhausted. Burnt out even. People always ask, ‘How is Lexie doing?’ Sometimes, I really just wish they would ask how I am doing. With all of her multiple diagnoses and challenges in many ways she is doing better then her Mama. What do I do everyday? I cook because providing nutritious, delicious food is…

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It’s Okay To Not Be Okay

I know a lot of friends are waiting to hear about our day at the Mayo Clinic. I have so much to say. And tomorrow I will do a video. But tonight I am sad. And I’m just going to be sad for a while. Autism is so unbelievably hard. Some part of me always believed that this was going to get better. I thought maybe, just maybe, someday, he’d snap out of it. He’d start talking. He’d tell me about his day. He’d call me mom. I thought someday…

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I am my Autistic Son’s Person

I am my seven year old autistic son’s person. I have been since the day he was born. He looks for me in a crowd. He seeks me out in our home. He demands me. He is always touching me. If he is wandering he demands that I am the person that follows behind. If I take a break to relax than he is clinging to me until I get up. And until recently he never developed relationships with other people. He didn’t see the value. People in our lives…

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