Posts Tagged ‘autism blog’
Mama, I Don’t Want my Baby Brother to Have Autism
On Sundays we eat dinner at Jamie’s parents. Often, this is our only trip outside of our house as a family. We treasure it. We look forward to it. They only live 10 minutes or so away but sometimes the trips can feel like an eternity. I of course was sitting in the backseat with both boys. On trips longer than a few minutes, I often sit between them. One of Cooper’s biggest struggles is still vehicle safety. When he gets anxious, or his Kindle stops working to his liking,…
Read MoreIt’s About So Much More Than Fireworks
It’s not about watching the fireworks. Or seeing children run around with sparklers. It’s not about the parades. Or eating the hotdogs and potato salad. It’s not about going camping. Because let’s be honest about how much work that really is for parents. It’s not about sitting at the beach. Or riding your bike around the neighborhood. It’s about so much more than those activities. It’s not about parents that are complaining about missing an event. Because I’ve heard that. I’ve read the comments from people outside the world of…
Read MoreDreading Church
I dread going to church. I have not always felt this way. I was a born and raised a church girl. My childhood was delightfully filled with potlucks and pews. I loved church. I grew up and married a man who also loved church. We had two babies and took them to church. When our first daughter, Alaina was three she was diagnosed with autism. We sat in the office of the psychologist on a Wednesday. Our known world was falling apart, but we discovered that church was still there.…
Read MoreAdjusting to Having a Child in Residential Treatment
This is a follow up post to ‘Let’s Talk About Residential Treatment.’ Margaret shares their families experience with making the agonizing decision to place their son in Residential Treatment. I never thought residential would be easy. It’s a whole different kind of roller coaster or maybe the power tower. The up. The down. Surprisingly, I find myself enjoying the “easy” parts. The day to day with just the two other boys, going to my sons baseball games, going out to eat and running errands. I can tell my body and…
Read MoreMy Son Doesn’t Have A Special Talent
We had our son Cody’s transitional IEP meeting today. We talked about the program Cody will be attending after High School and if it will be a good fit for him. As we went around the table everyone introducing themselves, I found myself torn with emotion. Here I sit with the teachers, coordinators, OT, speech pathologist, and caseworkers who all were instrumental in helping Cody get where he is today. And it seems with every IEP meeting I always ask myself the same questions. ‘Am I doing the right thing?’…
Read MoreThe Day I Will Never Forget
It was a beautiful Wednesday June 7, 2017 day. Extremely sunny and warm. Our son Kash was in a great mood. My husband and I were not. We were on edge that day. We were headed to get Kash’s evaluation to see if he was on the autism spectrum. Adam was trying his best to cheer me up, but in the end I couldn’t cheer up. No parent ever wants to go through wondering if your child could be on the spectrum. We arrived and got him all checked in.…
Read MoreAre You Going To Try For A Girl?
‘Are you going to try for a girl after this one?’ I have been getting that question almost daily lately. I get it. People wonder when they find out that you are having your third boy. And in no way am I offended. I am a big enough person to admit it. I would love a daughter. Of course. My mind immediately goes to pink tu-tu’s, gymnastics, prom, and being the mother-of-the-bride. My world right now is mud, dirt, Nerf Guns, Legos and poop. Yes, poop. It’s wonderful and amazing.…
Read MoreAutism Dads: The Men Behind the Scenes
I have talked a lot about how lonely this life is. About how isolated I feel. About how no one I know, gets it. I’m not sure when it happened, but one day recently, I told that selfish voice to shut up. I lay down at night next to the one person in this world who gets it. Why does he get it? Because he is going through the exact same thing. When I met my husband, it wasn’t love at first sight. But once he finally convinced me to…
Read MoreWhat Would Cooper Want?
We met with Cooper’s social worker yesterday for another 6-month evaluation. If you follow our journey, you are probably noticing the uptick in medical appointments and evaluations. It seems to always work like that in our world. It is all or nothing. We will have a few quiet months and then boom. It feels like every day there is something. Evaluations are inevitable when you have a child with needs. We meet every three months for one area, every six months for another and bigger, more meaningful evaluations are yearly.…
Read MoreWhen Time Seems to Stand Still
I went for a walk tonight with my dogs. Like I try to do every night. It’s my sanity after long days. As I was walking I took note of four house being built down the road from mine. So much change. I let myself think about the house we moved into just a month ago and how I plan to live here the rest of my life. No joke. I’ve told Jamie he will have to carry my dead body out of here. I let myself think about our…
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