Posts Tagged ‘autism blog’
My Child is More Than a Diagnosis
Autism. Borderline Intellectual Functioning. Anxiety. Complex Medical Profile. Severe Speech Delay. Risk for ADHD. As I sit and read my five year old daughter’s recent neuropsych evaluation, I can’t help but feel helpless when I repeat these words in a continuous loop in my head. My daughter was diagnosed with autism at the age of 2 (rare for a girl) and we have moved the moon and stars to give her what she needs to be successful and most importantly, happy. And she is. She’s come so far. The…
Read MoreThe Side I Don’t Share
This is a mom on the verge. A mom completely out of patience, and it’s nowhere near noon, on Halloween, in a pandemic…so the magic is up to me – a mom who does NOT have the energy needed to make today memorable. I’ll somehow muster little sparks, because I always do, because I have to, because if I don’t, the darkness will swallow me whole. I’m not allowed to say how freaking hard it is to be a mother to an autistic 4 year old. Because it’s up to…
Read MoreVery Nice Boy
Yesterday my son rode the bus for the first time to school. I was nervous. I thought about getting in my car and following but didn’t because I knew it would be great. When the bus pulled in the driveway after his school day I was waiting as the big doors opened. My first question…’how did he do?’ As a mom of a kid who has struggled in the past, and still does at times, I was ready. I’ve built up this armor you could say. Waiting for the negative.…
Read MoreThe First Ride
Two weeks ago, this kid asked me to ride the bus. Sorta out of the blue. He verbalized it…’H-U-SSS.’ (B’s are hard for him.) He showed me busses on YouTube. He showed me busses in books. He pointed them out in the community. And me, being the mom I am, smiled, cheered, and thought…no way. I’m too scared. He’s too vulnerable. I can’t do it. Nope. But his dad, well he reminded me how I preach about independence. Nonstop. I want my son to make his own choices. I want…
Read MoreVictories At The Orchard
Today was a big day for this kid and our family. We went to the Afton Apple Orchard. You know the kind with lots of noise and people and waiting and walking. And we went as a family. We invited our friends to come along as well. See in our world, we need help. We know that now. We know our strengths and our weaknesses. And our Cooper, he requires both mom and dad sometimes. We had a lot of wins today. Cooper petted his first llama, sheep, donkey and goat!…
Read MoreWe Are More
You must be sad… I’ve heard that phrase a few times over the past couple weeks. You must be sad your son rides the shorter bus… You must be sad he’s not in the gen ed room at school… And the zinger, the one I felt like a shot was fired and received, you must be sad you will never have a normal life… These statements, they don’t necessarily come from a place of hate or anger. They come from a place of misunderstanding. They simply don’t understand. I am…
Read MoreThank You For You
Sawyer, I am writing down the stories of you so that someday, when you are older, we can look back together at them.———Sawyer, your brother Cooper started at your school last week. At first I didn’t know what you would think. Would you be nervous? Excited? Worried? Of course, you amazed me. Your response when I told you was….’now I can watch out for my brother, mama.’ You were so excited. I was a bit worried though. I want you to be a kid and not have to worry about…
Read MoreStronger Than Anxiety
Happy Sunday from this kid. We’ve had an interesting day. He asked me for a train guide from 2007. I told him I’d do my best but reminded him that he was most likely setting me up for failure. He asks me for the most obscure things. He had faith in me though. I know because he asked me well over 100 times. He also asked me to go shopping. And for Amazon. And paper. And Target. When the Amazon van drove by I knew we were in trouble. I…
Read More‘I Want To Look Out For Him’
Someone once said to me…’siblings to children with disabilities are not special. And they shouldn’t be treated as such.’ I’ll tell you this…in all my years of sharing on social media, very few statements have bothered me as much as that one. I adamantly disagree. This kid. His life is different. Not bad by any means. Wonderful if you ask me. But it’s different than most of his peers. He sees and hears and experiences things most people never will. And we choose to call that a blessing. We work…
Read MoreWhat Brings Him Joy
I think a lot about the things that make this kid happy. And bring him joy. Because for a lot of years, the list was pretty small. It’s gotten bigger though, thankfully. If I was to build a world for him, one that was entirely for him…what would it look like? Well, it would be full of color. Bright reds and blues and yellows. Our clothes would all be bright too. Our houses and the objects inside as well. Music would always be playing. Happy, fun, LOUD music. We would…
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