Posts Tagged ‘autism and nonverbal’
A Glimpse Into the Non-Speaking World
My son is nonverbal. Although I’m not supposed to use that term anymore. The preferred term is ‘non-speaking.’ I am tired of arguing about descriptions so I will just explain. I think it’s easier that way. My son is ten years old. And he has no actual words. It’s hard to believe but it’s important to understand. It’s important to take a glimpse into someone’s life sometimes. That’s how we learn. He can say his name if asked. Cooper. He makes a sound for each letter. Six sounds. The two…
Read MoreI Wish I Could Have Told You
I think about you sometimes mama. 28 years old. You just had your first baby. You named him Cooper months before he was born. You painted his nursery blue. You went to birthing classes and read What To Expect When You Are Expecting. Your husband bought him a baseball glove and bat. And a Minnesota Wild jersey. You were both so ready for him. I can see you going to the hospital. So excited. So scared. I can see you holding him in your arms for the first time. You…
Read MoreSome Don’t Follow the Beaten Path
Some kids never follow the beaten path…Whether it’s from birth or from a later date, some kids don’t follow the beaten path. They don’t meet milestones on time. They don’t follow the norm. They don’t do what every other kids is seemingly doing. My son Cooper is that way. He takes note of what he is ‘supposed’ to do and does the opposite. Some people call him a free spirit. Some call him stubborn. Even challenging. Autistic, disabled, special needs…all words thrown in. It’s hard sometimes. I won’t lie about…
Read MoreYou are a Gift to all of Us
Dear Daughter, You are such a light in our lives and in the world. You are smart, strong, beautiful and have a heart of gold. You are full of compassion for others (and a pinch of sass). I can only imagine what it must be like growing up with a sibling with autism. I mean, we as adults get stressed, anxious and sometimes scared, so I know it must be the same for you. Kids are supposed to grow up in a calm environment and sometimes that’s just not possible…
Read MoreWhen I Dream I Hear Your Voice
When I dream, I hear your voice. The sweet song that will be snatched away by the light of day and eyes awake. You tell me stories of your life, a life that I have never known and will never know outside of eyes closed. You sing tenderly to me as we walk hand in hand. Your body moves like velvet falling over a keyboard. Smooth. Gentle. Quiet. You point to fascinations and exclaim delight. All the words that you require are no longer lost. You are no longer lost.…
Read MoreHelping Your Children Find Their Way
When your son shouts “Shopping!” at 6:50am, you forget about a lie in, pull on yesterday’s joggers, and get your son dressed. You react to a verbal request with no hesitation. You do it because you have spent years waiting for your son to talk. Years crouching down, holding up picture sequence cards and trying to work out what your son wants. Years praying to hear his voice, the tone, the amplification, the bit of his personality that you have waited to get to know. As you turn into the…
Read MoreA Life Without Words
Six years ago, a therapist tough loved me. My son had recently been diagnosed with autism. On paper he was what they call nonverbal. There are lots of ways to explain what that means. It’s not black and white. It’s a complicated, unique, description. For him, it meant he had no spoken words. Not one. He had no consistent sounds for certain words either. He didn’t use sign language. Or a speech device. He couldn’t type his wants or needs. It meant if his sock was bunched or his head…
Read MoreThree Extraordinary Boys
I just saw something on Facebook that said I’m not supposed to say my autistic son is resilient or brave or strong. I’m not supposed to say his siblings are amazing either. I guess all of that is insulting to a disabled person. And maybe that’s true. I guess I don’t know all of the rules. And I would never want to offend someone. What I do know is I am a really proud mom. My first born, he was diagnosed with autism at age 3. At the time, I…
Read MoreA Parent’s Connection Beyond Words
“Hey best buddy, do you want to play ball with L and I?” Andy asked, as Leo whizzed by, plopping himself firmly on the grass, contagious giggles roaring from deep within his belly. I sat beside my boy, gently scratching his back, while he busily gathered grass and dirt, shuffling them between his fingertips, watching intently as the football whirled by him, back and forth between Andy and our young family member visiting. A game of catch. A past time often enjoyed by father and son; yet, not only challenging…
Read MoreTo the Parents Who Blame Themselves
When I was first born I was everything you had waited for, I was the dream you had both been holding onto for so long. I came when you needed me the most, after loss I was the rainbow that came after an awful storm and I shone brighter than ever. From the moment i joined your family I knew that you would love me more than anything else in this whole wide world. I was such a content baby who always smiled at everything, my favorite thing was just…
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