Guest Post
The Forgotten Side of Autism
The forgotten side of autism is something my son Cody lives every day. And as his mother, everyday I live the severe, nonverbal, sometimes even aggressive side. You hear so much about the children labeled autistic that go on to become speakers, lawyers or even doctors. And that’s amazing. However, that’s not our autism. I just want my son to be able to put his pants on the right way. I want my son to learn to bathe himself. I want my son to be able to tell me what…
Read MoreA Letter to My Daughter
I see my children’s interactions everyday. But there are some certain moments where I actually “see” it. The bond, the patience, and the unconditional love of a sibling to a special needs child. My dearest girl, For as long as I can remember I wanted to be a mom. I dreamt of you from the time I was a little girl carrying around my favorite baby dolls. I remember how elated I felt when we found out we were having a girl. I imagined the special moments we’d share; dressing…
Read MoreI Would Not Change My Son for the World
“I would not change my son for the world. I would change the world for my son.” I came across this quote the other day and it reminded me: This is why I share my son’s story. There is so much about his autism experience that is out of my control. What I can do though is spread awareness and hope that it leads to a little understanding, patience and compassion. My son, Wilson, is four and a half years old and was diagnosed with autism at three and a…
Read MoreThe Privilege of Being Your Mom
When you see a special needs child the focus often is placed on the hard things. The things she won´t accomplish, the struggles and the challenges. I consider this to be very unfair. Each child is a miracle, a marvel of life who deserves our respect. We should always focus on the possibilities. What they CAN do. What they WILL accomplish. What they ARE good at. We should see the glass half full and look at every child as a diamond in the rough who needs our help to shine…
Read MoreLet’s Talk about Residential Treatment
It was unfathomable just a mere year or so ago that I would ever consider “sending my son away” for treatment. He’d be with people we didn’t know. We wouldn’t know what was happening on an daily basis. It seemed too hard, too cruel, too long. UNTHINKABLE. Yet here we are. We have tried EVERYTHING. Inpatient hospitalization, day treatment, shorter school days, EBD program with small class size and lots of support. Occupational therapy, crisis therapy in our home, intensive in home therapy, outpatient therapy. We have invited home skills…
Read MoreWhy Did God Make Me This Way?
It was totally unexpected when it happened. June 23rd. The night my six year-old son realized he has autism. He didn’t know the exact word yet, but he knew viscerally what it meant to be “different.” It was the first weekend of summer break, and my two boys and I were visiting my best friend and her two boys. It was bedtime, and he was tired. As I was trying to convince him to go brush his teeth, he suddenly collapsed in bed beside me, groaning, his body convulsing. His…
Read MoreAs Autism Awareness Month Comes to a Close
As we come to the end of Autism Awareness Month, I feel inclined to write this. I have read opinions from both sides of the fence on this topic that are in abundance lately (probably something to do with Autism Awareness Month, ya think?), so I feel the need to offer up my two cents. I know you can hardly contain yourself! I, like many other autism parents, follow a lot of Facebook support pages and other social media pages for parents who have children on the spectrum, as well as various other bloggers. I have seen several…
Read MoreWhat Is Versus What Should Have Been
There is an emotion that lives inside me now that I can’t really describe. It’s a mix of heartache, anxiety, helplessness and a feeling of being overwhelmed. There is actually a term for it. It’s called “Chronic Sorrow”. I feel sometimes like I live a double life. One with my older girls and friends being myself and another in this adaptive world we have created for our daughter Isla. Even when I am away from autism…I still feel like I live it. There is no escape and I have changed. I…
Read MoreThat Moment When
For some reason I thought about autism when my girls were babies. I kept track of their milestones, and as they grew, I was reassured when they continued meeting them within the normal range. A new school for autism was being built just down the street from us when our first was a baby, and I remember thinking to myself, “I sure hope we won’t ever have a need for that school”. I thought about autism with our son Austin as well. Just once when he was a newborn. I remember…
Read MoreLet Your Child Show You The Way
As a young child, my son Cody was always full of energy and often became dysregulated and would have meltdowns and tantrums for hours at a time. I remember sitting against his bedroom wall just watching him during one of these meltdowns to make sure he didn’t hurt himself. There was really nothing I could do. I just made sure he was safe. Those were very hard times in our journey. I didn’t know what he needed and felt so helpless. I can say I look back and I now…
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