We’ve gotten pretty good at saying no over the past five years. Turning down things with friends. Things with family. Because sometimes autism is just too much. Sometimes the overstimulation and the repercussions aren’t worth it. But today, Jackson made huge strides. We’re trying to climb out of our comfort zones and learn to live again. Opportunity pops up… Dock diving with Jackson and Max with the dog trainers we’re currently working with through Smokin Guns Working Dog Club . Scuba Steve’s Maligator Swamp opened for business today for local…
Picture it: It is October 31st. Your neighborhood is alive with the buzz of kids trick-or-treating from house-to-house. You are walking hand-in-hand with your child, who is looking cuter than ever in their over-the-top costume. But instead of excitement as a parent, you feel something quite different: Fear. Anxiety. Worry. Why? Because as a parent of a child with autism, trick-or-treating brings with it much more than fun. It brings with it the need to protect your child at all costs. Protect them from overstimulation. From people who misunderstand their…
You are welcome here. I see so many posts online telling parents how to feel about their child’s diagnosis. Some tell them to only see the positive. To celebrate every part of it. Some shame them for saying they are scared. Or hard. Or that they are worried. Some tell them they are awful parents. Some ridicule them for thinking a certain way. Some act self riotous because they didn’t shed a tear when their child was diagnosed. And they shame anyone who did. I read those posts and they…
Some days I want more. Hi there. My name is Kate. I am a mother to four children. I share that because my life is full. Fuller than full. There is very little quiet. There is never a day without laundry. And I get no less than a hundred hugs a day. I am an expert in putting bandaids on owies, blowing on mac and cheese, and finding blankets before bed. Skills I never knew would be so important and vital to life. My first born, Cooper, is ten. He…
Today was not a good day. Yesterday or the the day before was not a good day. My faith is shrinking. My patience is thin. My heart heavy and sad. And a lump in my throat is persistent. I sit with my head in my hands, holding back the tears. Tears of sadness, anger or frustration..I don’t know, maybe all at once. He is so unhappy. He is so angry. Why does he always scream? Why does he always want to hurt us? His OCD is so severe, it causes me anxiety.…
Today, while driving in the car, we heard these lyrics: “He said I’ve been watching you dad, ain’t that cool…I’m your buckaroo, I wanna be like you….And eat all my food and grow as tall as you are…We like fixing things and holding mama’s hand…Yeah we’re just alike, hey ain’t we dad…I wanna do everything you do…So I’ve been watching you.” I started to tear up. I got to thinking about our little boy. Nathan is 5 and is non-verbal with autism. He can say some words when prompted but cannot…
This kid. He has never played with a toy. At least not typically. It sounds funny to say out loud. Maybe almost unbelievable. But it’s important to remember that he doesn’t see objects like you and I do. He could care less about trucks and cars. He has no desire to throw a ball. Building with Legos has never crossed his mind. Make believe food for pretend picnics seems ridiculous. He adores train magazines. The older the better. He loves books about animals. Whales and penguins. Books about things that…
Dear Autism, I’m writing this because some days you’re challenging and hectic. I can’t stand to see my son in pain…the lights are too bright or the sounds are too loud. I see my son trying to cover his face. And I can’t help but think..what can I do to stop him from feeling this way? I see strangers glare from across the store. I hear the whispers of what a bad mom I must be. How if I would discipline my son…then maybe they could get a little peace.…
You Must Be Sad… I’ve heard and read that phrase a few times over the past couple weeks. You must be sad your son rides the shorter bus… You must be sad he’s not in the gen ed room at school… And the zinger, the one I felt like a shot was fired and received, you must be sad you will never have a normal life… These statements, they don’t necessarily come from a place of hate or anger. They come from a place of misunderstanding. They simply don’t understand.…
It may not get easier, and some things may not get better, but you have the power to create a world that works for your family. I wish someone would have told me that when my son was first diagnosed with autism. Because, initially, and in the challenging years that followed, I will admit that we felt stuck in a lot of ways. We couldn’t do this or that. Like go to restaurants or church or fly on an airplane, go for walks, visit the mall. We said no to…
