Archive for April 2020
Her Anxiety and Fourteen Steps
There are fourteen steps leading to the second story bedroom. Fourteen. That doesn’t seem like a huge number, but in our world, it is. My daughter Samantha is a brilliant, happy, loving, and beautiful 13 year old girl who was born with CHARGE Syndrome, and later diagnosed with Autism. She doesn’t speak much, and not many people can understand the words that she uses, but I can. She is not a typical teenage girl, she doesn’t understand make-up, Snap Chat, or why it’s important to have so many friends. She…
Read MoreWhat a Wonderful World
What a Wonderful World, by Louis Armstrong. A beautiful song. I danced to it with my father at my wedding. Recently, I watched a friend dance with his mother to that exact song at his wedding. Her face beamed with pride. He had the biggest grin the entire time they danced together. I bet in that moment she was remembering that same boyish grin she watched transform from a toothless smile as a baby, to a snaggle toothed little boy, to braces as a teen and now this handsome son…
Read MoreA Promposal 15 Years in the Making
A single act of kindness may seem isolated in the moment, but kindness often paves the way for beautiful things to happen for years to come. Sometimes this beauty may not be revealed until over a decade later. At least this was the case with my daughter, Lizzie, a boy named Sam, and kindness shown to me by his mom, Angie. I was introduced to Angie in a state of desperation. I had just been told some unsettling news by a speech pathologist family friend. “Your daughter is showing all the…
Read MoreBecause of the Lockdown, I Can’t See my Son
Yesterday was Autism Awareness Day. Autism awareness month is hitting our family hard this year, and frankly, my heart is broken. Many of you may know that my son Christopher is enrolled in a residential school for Autism, a school for kiddos with heightened behavioral challenges. We visit there every Wednesday, and bring him home on the weekends…every weekend, without fail. Until now. His school informed us that they are in lockdown. He has been there, hunkering down, with his peers, teachers, and therapists. We were told if we brought…
Read MoreI Am Autism
I am autism. I am funny loud big. Yet I am quiet. I am a slippery riddle—a puzzle piece upon the bumper of a car, a black sentence upon white paper, a curious phenomenon. I am the month of April, and the color blue. I am a number. A statistic. A stereotype. I am a social story before July fireworks. A schedule fixed to the refrigerator. I am speech, and ABA, and occupational therapy. I am autism. I am a boy. I can be silly. I can be serious. I…
Read MoreDon’t Take Mom For Granted
I’ve heard it so many times. “Just wait until they start talking, you’ll just want them to be quiet”. I see memes like this and while I know it’s said in good humor, it’s also a little heartbreaking. Not everyone hears “mom”. Some children are deaf, non-communicative, non-verbal…parents lose children every day, and would give their whole life just to hear “mom” one more time. My daughter doesn’t have a name for me. The last time she said “mama” she was 10 months old. In fact, neither of my kids…
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