Posts Tagged ‘Tuberous Sclerosis’
God Still Hears Her
I have four kids and I love being a mom, all my kids are so unique and loved! But from the moment I got pregnant with my first child, I felt God let me feel his heart for my daughter in a extra special way. I felt like she was a worshipper and her heart was going to be connected to God in a super special way. I have a memory when I was in the beginning of labor with her, I looked up after a contraction to see tears in…
Read MoreThe Life He May Never Get To Live
My son, Rowan, will be two in January. At four months old Rowan was diagnosed with Tuberous Sclerosis, a 1/6000, rare, genetic disease that causes epilepsy, tumors to grow in all major organs and development delays including autism. My love for him is bigger than life itself. I want nothing but greatness for him, for him to flourish in every way imaginable. And here it is ladies and gentlemen…the “but” we’ve been waiting for: But… But I hurt FOR him. I cry FOR him. I think about the life he…
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