Fathers and First-Borns

Jamie is often asked by dads of newly diagnosed boys…’was it hard not having the typical experiences with your first born?’ Jamie is so honest about it. So matter of fact with his answer. He doesn’t sugar coat it. Or dance around with his answers. He’ll talk about pitching baseballs with his own father. For hours and hours. Day after day. He will tell stories of jumping his bike, catching fish and camping. He will go on and on about his old man being his best friend for so many…

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It’s Not You Son, It’s Us

You’ve been walking quite a bit these days. You like walking; it calms you. You like to look at the birds, the sky. You open your mouth to take in the wind. Puddles are too good to pass by without engagement. You usually hold my hand. We talk about what we see. You repeat. You look, you smile, you laugh. Sometimes you point. But this day you let go of my hand. Unafraid and free. You needed to move at your pace, faster than me. You needed to feel the…

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Endless Nights

There are 24 hours in a day.  Every hour is 60 minutes.  But I am quite sure the hours between 1:00 and 6:00 AM are at LEAST 6000 minutes each. Lonely hours spent alone with my thoughts. I have been awake during these hours because I am feeding an infant. I have been up because I have insomnia and can’t sleep.  I have been awake because I suffer from chronic pain or a cold and so I just can’t get comfortable. A sick and hospitalized child or other loved one…

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Today, I Failed

Today, I failed you. I yelled. You cried. I cried. As we were doing our normal morning routine, fighting about putting your jeans on, I was already anxious.  Worried about how school drop offs would be, worried if you were going to get upset as I walked down the hall to leave the school… all the normal morning anxiety.  After the jeans debacle, you were finally dressed. Not without a little negotiation, of course. “First jeans, then bunny socks!” Harper has some socks with a bunny on the side… he is…

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The Secret to Parenting is to Love Them Through

I have a secret for you. Most of the time I don’t know what I’m doing in the world of parenting. Nor have I ever claimed too. I mean I obviously know to brush my kid’s teeth and feed them fruit once in a while. I know to put sunscreen on them, hug and kiss them a dozen times a day, and not giggle when they say swears, but beyond that, I am mostly just winging it. Especially when it comes to my first born. I joke that my autism…

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The Rewards of Parenting

Yesterday my father in law reached out over text message to see how we were doing. It has been an unusually busy and chaotic time for our family and he was just checking in.  I told him we were doing Ok, hanging in there at least. He responded with empathy stating he remembers how hard it is parenting three small children and having zero energy left at the end of the day to do anything for yourself.  He went on to say “You sort of put your life on hold,…

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The Skills We Have

When you were about six, we had a party at our house. By this point, you talked pretty well. You were still behind other kids your age, but you could get your point across for the most part and ask for juice and tell us which DVD you wanted to watch. Jack-a-boo, language has always been hard for you. You didn’t say a word until you were well past three. Sentences were slow to come. Even now, as a teenager, you hesitate for a few beats when someone asks you…

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I Never Knew Being A Mother Would Be So Hard For You

Hi, my name is Kate and I am 36 and I’m having a serious case of lost identity. Or maybe it’s a midlife crisis. Or a little post-partum depression. Or maybe I’m just tired, overweight and mentally drained. Who knows which one. I have three boys, a husband, a home, and a job I love. I am beyond blessed. I have devoted my life to the humans in my life. And again, most days, I am happy to do it. But some days, some weeks, I don’t feel that way.…

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At Least He Doesn’t…

“At least he doesn’t…” When you “at least” me as a complex parent. I feel minimized. I feel shut up. I feel shut down. I feel unheard. I feel compared. I feel invalidated. I don’t let very many people into our lives, at least not in person. Mostly because I’m spent. I’ve been spent for a darn long time. And one of the reasons I’m spent is because of things like “at least”. I know people mean well, I give them the benefit of the doubt. And I also realize…

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Invisible Disabilities: What You Can’t See in This Perfect Family Photo

They say a picture is worth a thousand words, but what exactly are those words? What’s the worth of something that’s carefully curated, filtered, and posed? I’ll tell you. I’m a recovering pretend-post addict, after all. Our most recent family photos were met with many words of praise: “Your children are beautiful!” “You look so gorgeous!” And the most gutting: “You have the perfect family.” No one could’ve known I was reading those comments with a pit in my throat, probably from the comfort of my bed, the one I…

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