Posts Tagged ‘nonverbal autism’
Cooper the Photographer
For so long I hoped and prayed that my son would develop a hobby. At age ten, he didn’t appear to be interested in anything besides his iPad. On one hand all that matters is his happiness. But. We also want him to experience bits and pieces of the world around him. I want him to have something he enjoys. I want something me and his dad and brothers could enjoy with him. I also very much want a glimpse inside of his world and the things he cares about.…
Read More‘The Reason I Jump’ Film Gives a Platform to Discuss Nonverbal Autism
Have you watched this film yet? When I heard that they were turning the best-selling book ‘The Reason I Jump’ into a full-length documentary film I was SO excited. For those who haven’t read the book, yet, it was written in 2007 from the perspective of a nonspeaking 13-year-old boy, Naoki Higashida. The book was later translated to English which made it rise in popularity even further! I gave it a read after seeing Jon Stewart mention it when he was the host of The Daily Show. The 82-minute documentary…
Read MoreA Colorful Life
Children are survival pros. Immediately after birth, they usually come to their desired goal by screaming. I admit, the needs are still manageable and easily met: they are either hungry or thirsty, have a stomach ache or need a diaper change. As soon as the need is met and there is no longer an existential crisis, babies are relaxed. And so are the parents. When children get to the age in which screaming is no longer effective or has the opposite effect (“if you keep screaming, you won’t get anything!”), they change their tactics. Smart! They…
Read MoreThe Mistakes I’ve Made
I’m going to tell you a not-so-secret secret. I have made some mistakes over the years in my parenting journey. Shocker, right? Not really I suppose. There are no perfect parents, and this stuff is hard. I have three boys. They are 10, 8, and 2. I also am 28 weeks pregnant with a baby girl. Life is about to get a whole lot crazier. My ten-year-old has autism and on paper is nonverbal. My 8-year-old is my emotional guy. And the toddler, don’t even get me started on him.…
Read MoreThat Old Famous Line
Close your eyes. And just for a moment think back to the most important piece of advice you got when you were younger, on how to treat others. This is mine, and I know you’ll recognize it… We were all told that famous line as children, “if you don’t have anything nice to say, don’t say anything at all”. And yet, I find myself exhaling extra deep when I hear specific hateful, mindless words fall from the mouths of children and adults alike, still, at this day in age. Words…
Read MoreOur Silent Journey
My sweet boy, We just got back from a car ride. We do that sometimes. You and me. We used to ride around to help you calm down. A much needed break for both of us to reset. Now we drive around and hunt for trains. Not a lot has changed over the years except now you are ten. And you can buckle your own seatbelt. A skill we worked on for years. A skill that you are incredibly proud of. We still ride mostly in silence. When you were…
Read MoreTurn Your Worry Into Wonder
There is a term I like to use. It’s blissfully unaware. It’s a place and feeling rolled into one. Many of us do this at different times in our lives. We live blissfully unaware. For example, I knew nothing of the emotional pain of a miscarriage until I lost my first baby. I knew nothing of the worry that comes with a child that isn’t developing typically until it was my own son. I knew nothing of the cruelness and brutality of cancer until it took my stepmom. I knew…
Read MoreYou Don’t Have to Earn the Right to Inclusion
Will my daughter ever have a friend? Will other kids see how funny and smart she is even if she never speaks? Will they tease and ignore her? Will they be scared of her? When she gets older, will she join a team or a club? Will she meet a kindred spirit who sees her for all that she is and what she can do, instead of who she isn’t and the things that she can’t? Most parents worry about their kids belonging at some point in their parenting journey,…
Read MoreErase the Word
A few holidays ago, a friend and I were chatting, when she said it. ‘That’s so retarded’ in reference to something happening in her life. At first I was floored. I hadn’t heard anyone say that word in I don’t know how long. She wasn’t done though. The story went on. She described a place and people. As I listened to her, waiting to see if she’d notice my face, I thought about how she is an educated woman. She is a kind woman. She is not malicious or evil.…
Read MoreShades of Grey
I never gave much thought to social norms before I had my son Cooper. Although I do remember a college professor speaking about them and advising each of us to stand backwards in an elevator and watch people squirm. Besides that though, I guess I have just always done them so they rarely cross my mind. That is until autism. My sweet boy is 10. He has blonde hair that is coarse like straw and ruddy cheeks, and he is entirely himself in every way. He doesn’t know how to…
Read More