Posts Tagged ‘autism’
Questions for an Autism Dad
Happy Father’s Day to all the amazing dad’s out there that are raising Autistic kiddos. It can be a selfless job and often seems more like a caregiver role than a father. I’d like to introduce you to my son’s dad, Jamie. He is a patient and caring man and is always willing to change a diaper, spoon feed his son and take a punch when needed. Questions for an Autism Dad Happy Father’s Day to all that amazing dad’s out there that are caring for autistic children. These are…
Read MoreWhen Persistence Finally Starts To Pay Off
Many of you will look at this picture and see a boy drinking out of a cup and think…so what? This is a normal thing. How is that a big deal? To a parent that has a kiddo that struggles with using a straw, drinking water, using a cup, swallowing, pooping, using his lips, frustration, fear, rigidity, learning, trying new things, regressing…this is so much more than a picture of a boy drinking out of a cup. This is a picture of five long years of struggles finally coming together.…
Read MoreCost Effective Health Insurance
I want to share some of the craziness that is managing my Autistic son’s benefits. I am very vocal about how everything is a fight…and the services are in a vacuum. The right hand isn’t talking to the left hand. And it’s exhausting. To be honest, managing my son’s benefits is a full time job. I mean that wholeheartedly. Six months ago I learned about Cost Effective Health Insurance Premium Reimbursement. So, listen up if you live in the state of Minnesota. And, if you live in another state, it’s…
Read MoreAutism and Age
Have you stopped thinking of your Autistic child as a certain age? I think I sorta have. While Cooper is six…cognitively, socially, behaviorally, emotionally, he is all over the board. He ranges from six months to probably four years old. Yes, he wears 6T clothes. And yes, he was born in 2010. On paper he is six years old. But in my mind, he is almost his own unique age. And, I don’t think it even is a number. In my world…age and autism don’t correlate. Having a disabled child…
Read MoreI Never Lost My Son…In A Way, It Felt Like I Never Had Him.
I want to talk about the first three years of Cooper’s life because they were the saddest of mine. I had dreamt of becoming a mother for years. It was the thing I wanted most in my life. And then in the blink of an eye I was a mama to a beautiful, healthy baby boy. Except from day one something wasn’t right. Only, I couldn’t describe it and to make it worse it was like no one believed me. My son didn’t need me for anything besides a bottle…
Read MoreInvisible No More: Day 30 of 30
April is Autism Awareness Month and my Invisible No More Project. Autism, like many other disabilities, is an Invisible Disability. I have shared the pictures and stories of 29 beautiful children with the intention of inspiring you and providing hope. The isolation that parents of disabled children feel can be suffocating. I feel it often as well. You are not alone. Other parents are experiencing the same things. Today is day 30 of 30. Here is my son’s story. The Beginning Cooper was diagnosed with ASD at age three. As…
Read MoreLeaving The House With An Autistic Child
I want to talk about leaving the house with my severely Autistic, six year old son. I think there are misconceptions about why we choose too and not too bring him places. I’ve been accused of hiding my son. Of being embarrassed of his behavior. I’ve been accused of letting the bullies win. On the other side, I’ve been praised for continuing to try and bring my super challenging son to stores. Everyone has an opinion. Measures of Success Last night we had a really tough outing. And if I’m…
Read MoreUnderstanding The Entire Spectrum Of Autism
I had the honor of doing an interview with Kerry Magro. He is an Autism Advocate who is truly making a difference in the world. Here is our conversation. This guest Q&A is with Kate Swenson who is the mother to two amazing little boys. Her son Cooper is on the severe end of the spectrum. She shares a glimpse into her secret world through videos at Finding Cooper’s Voice. Q. How did the idea of filming your story first come about? I started blogging about Autism when my son was…
Read MoreAiden, A Story of Costumes and Love
I would like to introduce you to Aiden. This little boy is one of the most interesting and amazing kids I have came across on this journey. And his mother shared his story in a way that made me laugh and cry. Read his story. You will fall in love. Aiden Aiden was diagnosed with Autism, severe ADHD, a sleep disorder, and OCD when he was four years old. It was a long journey to that diagnosis and I somehow believed that once we had a confirmed diagnosis everything would…
Read MorePutting Your Mask On First
I’ve been having some minor medical stuff going on. Nothing huge but still slightly concerning. My fatigue and exhaustion were starting to affect my outlook on life and parenting so I broke down and went to the doctor. Of course it took me a while…like six months. I have no time for medical appointments when my son has so many of his own. You get it. I feel guilt about missing work so often already and then adding in another appointment. It’s just a lot. But like I said, my…
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