Posts Tagged ‘autism’
When Vacationing Is “Brave”
‘You’re so brave for going on vacation without your kids. I could never do that as a mother.’ Hold up. Stop the train. What a thing to read at 3 am. That is what we call a backhanded compliment. I get them all the time. But this one, well, it struck a nerve. See, I did go on vacation. I abandoned my three sweet boys and husband to go to Disney for four blissful days. I pushed pause on my own work, canceled therapy appointments and organized what I could…
Read MoreHe Said He Can’t Breathe, Mama
Last night, I was glued to the local news, when my son came paddling down the stairs in his pajamas. His hair was crazy messed and his skin tan from the sun already, even though it is still only May. It was 10:17 pm. He should have been sleeping. He knew that. I knew that. But he also knew that there was some sort of flashy light noise thingy keeping him awake. At least that is what he tried to convince me of. I was tired of bedtime negotiations and…
Read MoreSomedays, It’s Hard to Find the Joy
“I wish my son was happy all the time like Bubba.” As I read those words, my heart instantly began to race. My stomach started twisting in knots. I’ve heard these words before. And although well intended, I couldn’t help but think to myself…Is that how people think he is ALL the time? If so, then I’m doing something wrong. I’d be doing a disservice to you, my family and the autism community if all I talked about was the positive. I created this space, this community, to inspire others…
Read MoreAutism as a Full Time Single Mom
My five year old son has autism. I am currently a full time single mom, who used to be a part time dog mom, and that about sums up my little world. We are a little over two years into the diagnosis and up until seven months ago, my son was considered nonverbal. He has made huge strides in so many areas, mostly in speech, and I am so, so, so grateful for the therapy and resources we have used to get us to where we are today. I don’t…
Read MoreWhat Autism Took From Me
It’s hard to write this — As I look at our wedding photo from 31 years ago, I almost don’t recognize the woman in the photo. I can’t help but think what autism took from me…from us. There were so many years I spent my nights sitting in front of my computer, trying to find a way to help our son. I lost count of how many hours I spent. I was going to help him even if it meant I lost you. I couldn’t do both and I hoped…
Read MoreIf He Get’s Sick
Here in New Hampshire, we are on day 6,382,091 of quarantine. Okay, okay. I’m exaggerating. Its only day 5,847,235 of quarantine. Either way, it’s been a long time. Hi. My name is Carrie. I have five kids. I live in New Hampshire. Our state has been under a shelter-in-place since March 13th. We are tired of it. We are tired of ourselves, and our house, and our yard. We are tired of walking around the neighborhood. Our dog, Wolfie, is especially tired of walking around the neighborhood. He runs to…
Read MoreThe Power of Words
“I like good strong words that mean something…” ― Louisa May Alcott, Little Women The quote above is from one of my favorite stories as a child. Little Women reminded me of my youth. I loved the story, and I still do. I think what I liked most about it was the way the story was told. The beautiful words and details that Louisa May Alcott chose to tell her story. I am infatuated with words. I love to write them and hear the intoxicating way they coalesce to form…
Read MoreFind Hope and Hold Onto it With All You Have
I wasn’t one of those mothers who saw it coming. I was blindsided when I heard the word autism. It hit my like a freight train and shattered my soul into a billion pieces instantly. That horrible feeling of not being able to breath, unwavering fear, fear of the unknowing, and worst of all, hopelessness, took over every inch of me. I thought at that moment I would never feel as horrible as I did then. As many of you know that would not be the case. That feeling would…
Read MoreMy Son Does Not Have To Hide
I’ve had a couple of moms ask me lately if I consider how my son Jackson might feel about me speaking publicly about his struggles. And they’ve asked if I’m considering his feelings and if it might hurt him if he reads these words one day. I thought about their question long and hard before I started journaling about him privately for myself. And I thought about it even harder before I put my words out there for others to hear. I felt slightly attacked and caught off guard and…
Read MoreMamas, All Will Be Okay
Preschool graduation…onto Kindergarten. Probably doesn’t sound like a big deal to most, but let me tell you about our Jack. From the very beginning of his diagnosis, I have felt compelled to be a voice, an advocate for not only him, but all diagnosed with ASD. To share stories of our experiences, of our life, in hopes to raise awareness and acceptance of autism. Almost 2 years ago now, Jack was accepted into an amazing special needs program, that also runs in the summers as well – so year round…
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