Posts Tagged ‘autism’
My 10 Novel, and Not So Novel, Tips for SUCCESSFUL Self Distancing (survival)
LOCK UP THE PANTRY: Yup, you read that right. If your children are anything like mine, they are always hungry. And on chaotic days with no real rhyme or reason, they tend to be even hungrier. I will find little hoard piles of food throughout my house and wrappers hidden in couch cushions. It makes me crazy. Remove the impulse and lock the food up unless it’s meal time. GET OUTSIDE: Go for a walk. Hunt for rocks or leaves. Set up a trampoline or a water table. Go for a…
Read MoreSometimes Autism Keeps You From Me
I’ve wondered, when did autism purloin you? Did it creep in one night, and snatch the words from your tongue? When did it show up, and make it so hard for you to look at me? I want to hold you. I want to hug you. I want to play with you and sing with you. I want to hear you say you love me… Autism. Sometimes it keeps you from me. You don’t always want to look at me. You don’t always want to be held, or hugged, or…
Read MoreMore Than Just A Word
I find myself talking a lot lately about speaking up for those who cannot speak for themselves. For me it’s personal. I feel things now and see things now in a way I never did before I was a mom, but truthfully mostly before I was Brendan’s mom. I often wish I could scream at the world…don’t you see it, how can you not? And then I remind myself, I didn’t always see it either. And not because I didn’t care. I didn’t see it because it didn’t affect me.…
Read MoreWe’re Still Blaming Mothers
In the 1950s, it was “refrigerator mother” syndrome. Autism, they said, was the result of a mother’s relational coolness. Today, it’s “toxic mother” syndrome. Autism, they say, is the result of a mother’s toxic burden. I spoke with a homeopath over Skype this week. As I started to tell her a little about my eight-year-old son, who has nonverbal autism, she interrupted me. “You’ve got a face full of acne, eh?” I just stared at the computer screen. “Eh?” she repeated, gesturing to her own face. “Right,” I admitted. “And…
Read MoreIs My Son Happy?
‘Everyone has a different idea of what happiness looks like.’ Is my son happy? I think about that a lot. As do many parents of children who struggle to communicate. Who can’t show us. For a lot of years I honestly didn’t know the answer to that question. At age five my son didn’t laugh or smile much. He didn’t enjoy leaving our house. At home, he isolated himself a lot. He didn’t play or interact really. He was full of anxiety, only we didn’t know because anytime we asked…
Read MoreSocial Distancing With Autism
I’m getting a tiny chuckle (with love of course) at the people panicking about social distancing. We have been social distancing for nine years. Not by choice of course. No one told us we had to do it. It more happened out of necessity. Because of autism. When someone in your family doesn’t understand the world we live in and the world doesn’t understand him or her in return…well, you stay home more often than not. Because home is safe. You learn to social isolate real fast. See, my sweet…
Read MoreFrom Non-Verbal to Verbal
I decided to take a much needed nap yesterday while my baby slept. You know that old saying…sleep when the baby sleeps? I was practicing that. For the first time in ages. Because my baby, well, he is giving me a run for my money in the sleep department. I thought my older son was a bad sleeper? Ha. The newest Swenson says, ‘watch this.’ Anyhow, I slept for two glorious hours. And I woke up to the most beautiful sound. One I had never heard before. One I had only…
Read MoreNever Give Up
It’s funny how life seems to happen. And sometimes in the most bizarre ways. For nine years you social isolate, so much in fact, you almost forget how to socialize. You know you can’t go to Walmart, or candy stores or parks or even walk down the street safely. If there are crowds or lines or loud sounds it ain’t happening. So, you adjust. You figure it out. You learn to live and keep going. Then, suddenly, it seems to get easier. Not overnight. Far from it really. Instead after…
Read MoreWe’re On An Adventure
I can’t tell you the last spontaneous thing we have done as a family. I reckon it’s been eight years. Trips and outings are planned meticulously to help our kiddo be successful. But, well, when you realize you forgot his favorite paper to stim on, and you need to get out of the house so you don’t all lose your minds…you take a trip to town. (That’s what you say when you live in the country…you go to town!) You risk it. We are doing it. We couldn’t have even dared…
Read MoreMy Quarantine Hero
My wife and I are nurses and have been at work during this pandemic. With schools closed we contemplated who would care for Grayson, our 5-year old son with autism. In our pre-Covid life, he attended school for a full day and received OT, PT, Speech, Counseling, Music, Art and Yoga Therapy in addition to the core academics. School was followed by ABA at home for 3 hours/day Monday-Friday. You guys know the drill…it’s A LOT!! We also have Nicolas our 19-year old neurotypical son who is in his 2nd…
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