Posts Tagged ‘Autism Spectrum Disorder’
Dear Autism
Dear Autism, I’m writing this because some days you’re challenging and hectic. I can’t stand to see my son in pain…the lights are too bright or the sounds are too loud. I see my son trying to cover his face. And I can’t help but think..what can I do to stop him from feeling this way? I see strangers glare from across the store. I hear the whispers of what a bad mom I must be. How if I would discipline my son…then maybe they could get a little peace.…
Read MoreWe are Just More
You Must Be Sad… I’ve heard and read that phrase a few times over the past couple weeks. You must be sad your son rides the shorter bus… You must be sad he’s not in the gen ed room at school… And the zinger, the one I felt like a shot was fired and received, you must be sad you will never have a normal life… These statements, they don’t necessarily come from a place of hate or anger. They come from a place of misunderstanding. They simply don’t understand.…
Read MoreBuild a Life that Works for Your Family
It may not get easier, and some things may not get better, but you have the power to create a world that works for your family. I wish someone would have told me that when my son was first diagnosed with autism. Because, initially, and in the challenging years that followed, I will admit that we felt stuck in a lot of ways. We couldn’t do this or that. Like go to restaurants or church or fly on an airplane, go for walks, visit the mall. We said no to…
Read MoreI Will Give Him a Magical Life
Last night something monumental happened in our little world. Our middle son Sawyer had a gaggle of friends over playing and as they ran from room to room, crashing and bashing and giggling about farts and butts, our oldest son Cooper ran behind. He was the oldest of the whole group on paper. The big brother and yet not. He will be 11 in a few months. But he has no interest in Nerf Guns or ninja warrior games. He doesn’t acknowledge the coolest shoes or ask for a cell…
Read MoreI Wonder with Excitement
When my son Cooper was first diagnosed with autism, and in the beginning years that followed, I’d spend a lot of time secretly wondering what our relationship would be like. I was told he would never be able to talk. Or live independently. And a whole lot of other things as well. And I’d wonder. And worry. Would we ever have a conversation? Would we ever go grab dinner together at a restaurant? Go to his first concert? And so on. I’d wonder while driving and studying him in the…
Read MoreFocus on the Good
I want to tell you one of the lessons I’ve learned that has helped me be a better parent to my autistic son Cooper. It’s pretty simple really. It’s understanding that he did his best in any situation. It’s listings the positives instead of the negatives. Even if there are only 1 or 2. It’s focusing on the good instead of the bad. Let me explain. Tonight we went to a carnival. All six of us. Our popular social butterfly, our curious wild child, our sweet easy baby, and our…
Read MoreThe Beautiful Gift of Life
We just had one of those great nights. One where you realize what a gift life is. We laughed and giggled on our walk. There was running and teasing and stolen hugs and kisses. There was life. So much beautiful life that I had to pause and say thank you. My oldest son asked for a birthday party and to see a blue whale. All without words. My second oldest rode his dirt bike and climbed trees and tried to convince me that he’s going to be 10 instead of…
Read MoreThe Things I’ve Learned
The Things I’ve Learned… When my son was first diagnosed with autism, and in the early years that followed, I tried really hard to fit in. Into the norm. I wanted so badly for my family to be like the other families. But, well, we weren’t. We couldn’t even pretend. Or fake it till we made it. We were different. Our son was different. Those years that we tried to pretend were the worst. It physically hurt sometimes. To see the differences so loudly. Our son is 10 now. On…
Read MoreThank You for Ordering Forever Boy
Now that the dust has settled on my book cover reveal, I want to say the sincerest thank you to everyone who purchased a copy of my book for preorder. And thank you to all of those who hopefully plan too! Sharing our story in the hopes to help others had always been my dream. I can say for certain that the beginning of my journey into autism would have been entirely different if I had found someone who I could relate to. This book will do that for you.…
Read MoreWhen the Silence feels too Loud
I don’t get a lot of quiet moments in my life. I mean, I’m a mom of four so honestly it just doesn’t happen. My house feels alive most of the time. Laughter. Yelling. iPads blaring. Train whistles. No hockey sticks in the house. Turn that down. Is that a marker? It feels like a three ringed circus most of the time. But a great one. One that the neighborhood kids are drawn too. Yesterday I made a trip to see my dad. He’s 79 and had a stroke a…
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