Posts Tagged ‘autism child’
I Wonder
My son, I wonder if you will always reach for my hand when we are walking. I wonder if you will always be precious and innocent. I wonder if you will always gasp at birds and at squirrels. I wonder if you will always point to airplanes. And wave to strangers. And bark when puppies walk by. I wonder if you will always run up to a mud puddle with such joy and excitement and then look back to get my attention before you jump in. I wonder if we…
Read MoreSilence and Sunshine
My son, This morning was one of those great mornings. You and I, sitting side-by-side, taking in the morning in our own familiar way. You on the couch surrounded by 7 fleece blankets and treasures. Me, right next to you in the recliner, feet up, drinking coffee. The news was going on about something or another but I couldn’t really hear it over the music blaring from your iPad. You were dancing to it. Every few seconds you would pick up my arm and move it with yours to the…
Read MoreHe Waits for Me
For the last few weeks, I have been spending a lot of my time driving back and forth to visit my dad in the hospital. And it’s no short trip. It’s nearly 3 hours one way. This means I’ve missed being home when my boys get off of the bus. Which is okay, my dad needs me. And these boys are in more than capable hands with their dad. But it’s hard. It makes me feel out of wack, like I can’t get my bearings. I don’t like missing anything…
Read MoreTearing Down the Walls
I read a quote a while back that told older moms to be the friend they needed when they were younger. I think about it often in relation to my kids. My son Cooper is 10. He was diagnosed with autism 8 years ago. And later severe and nonverbal and a whole lot of other words were thrown into the mix. And overnight our world got a lot smaller. It seemed to shrink. It seemed to go on without us. And yet my son was exactly who he was born…
Read MoreBehold, the Autism Mama
My son Jack has autism. He was born on Mother’s Day, in 2004. Over the past sixteen-almost-seventeen-years, I have had to tell and re-tell his diagnosis so many times, I’ve lost count. By now, I’m pretty sure I’ve heard it all when it comes to autism. I’ve heard about the vaccines, and the poor maternal bonding, and the gluten and the horse therapy. One kindly older woman even suggested Windex could be to blame. Windex? I thought. The problem is, can be hard to know what to say, or how to…
Read MoreThis is Acceptance
Let me tell you about a boy I know…His name is Cooper. Today, we had a party in our front yard and we celebrated him. We had ice cream and sprinkles and chocolate syrup and cupcakes. We invited all the kids in the neighborhood and their parents. And we celebrated this boy. The one who was born seeing and hearing and feeling and thinking in his own unique way. Some people tried to tell me that his life was going to be sad and lonely. They told me all of…
Read MoreOn Our 10th World Autism Day, We Celebrate
Today is World Autism Day. This is our 10th one. As my son has gotten older, the meaning of the day has morphed for me. It used to be about education. Today, it’s about celebrating. Celebrating differences, celebrating progress, and celebrating a boy who has climbed far more mountains than I have. And ice cream and dancing. I have three boys. Three crazy, wild, busy, smart boys. Each of them is exactly who they are supposed to be. My oldest is autistic. There are a lot more words used to…
Read MoreThis is Why We Celebrate Everything
The email I just received said ‘I wish I had video of Cooper walking into school today. No one walked past him without him reaching out and then tapping his head to show off his new haircut. He was very proud!’ Last night Cooper had his hair cut. In our home. By a family friend. It was his best haircut ever. He sat the whole time and watched his iPad. We counted during the hard parts. Chatted about his rewards for being so amazing. Held hands. Took lots of deep…
Read MoreMy Son is Not Failing; Your System is Failing Him
They said, “your son has the highest needs of anyone in the school”. And as a mother, what I heard was, “your son is the most challenging child we have”. Like an almost “admission of irritation” on their part; Or so it felt. That statement wasn’t necessary. In a meeting that I called; me, myself, as a concerned parent, as a special needs Mother, those words didn’t need to fall from anyone’s lips. Because it’s a statement made without a practical solution. Unnecessary. “Your son has the highest needs of anyone…
Read MoreErase The Word
There are many things that you start to realize when becoming a mother to special needs children. You learn all in the ins and outs of your child. You learn how to survive from day to day. You learn all the official terms and acronyms…..IEP, BCBA, PCA, TSS, OT, PT, self-contained, inclusion, etc. You start to realize some things that were not even thought twice about, earlier in life. I started to see really quick how the world views people in the special needs community. I see how the world…
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