Posts Tagged ‘autism blog’
Let’s Talk About Stimming
My son is six year’s old and on the severe end of the autism spectrum. When he was diagnosed, I had heard about stimming. I think we’ve all heard that word. To be perfectly honest though, I didn’t even know what stimming was. The definition is interesting: ‘Stim, stims or stimming is short for “self-stimulation”. Almost everyone does it (tapping feet, cracking knuckles, twiddling thumbs), but in autistic people these behaviors are more pronounced and may seem downright strange. Autistic people often engage in stimming when they are stressed, to…
Read MoreMy Son’s Disability Isn’t Always Beautiful
A very nice woman approached me over the weekend and thanked me for talking about autism. She thanked me for being honest and not sugarcoating it. She thanked me for keeping it real. That conversation reminded me why I do what I do. I refuse to lie about my son’s disability or downplay it to make people feel better. When my son was first diagnosed I dove head first into helping him. I turned to other bloggers, Pinterest and Facebook groups because I couldn’t find anyone in real life that…
Read MoreThe Business Side of Autism
A good old fashioned Cooper and Kate video update with a whole lotta conversation around the business side of autism. https://youtu.be/5ChoHnXVIz8 When my son was diagnosed with autism at age three, I was prepared for it to be hard. I knew there would be struggles and challenges. I even suspected it would be stressful and confusing. I wasn’t that naive. And I definitely knew it would be an emotional ride with ups and downs. But what I was not prepared for was the never ending paperwork, phone calls and appointments.…
Read MoreI’m Thankful For You: Miss G
(Editor’s Note: This article was provided by Jenna Newman and is part of Cooper’s, ‘I’m Thankful For You’ Campaign.) This November I would like to nominate and honor my son’s preschool teacher, Miss Guerrini, or as we call her, Miss G! When my son Tommy was born, he had a very hard time breathing on his own and was put on breathing machine. Thankfully, he was only on it for a days and in the NICU for about a week. Today, Tommy is six years old and is autistic and…
Read MoreMy Son, I’ve Failed You
My dearest son, Today, I failed you. I failed as your voice, your advocate, and your mother. Since you know me kid, if you could speak, you would probably say, ‘Oh, mama…You are too hard on yourself‘. And, maybe I am. I just love you so much and I cannot stand the thought of the world not giving you a chance. Or learning about your disability. I cannot stand the fact that they refuse to acknowledge the real you. You have autism kid. It’s okay to say that. It’s even…
Read MoreWhen are the Autistic Behaviors ‘Normal’?
This morning my autistic son crawled into bed with me at 1 AM. This is very, very rare for Cooper. One year ago, yes, he was a terrible sleeper. He would wake up a dozen times a night and start his days at 3 AM. But, not anymore. My kid is a sleeper now. My first thought…he is in pain. As Cooper’s mom, I’ve learned that when behaviors change in a child on the spectrum, finding the reasons why can feel like trying to find a needle in a haystack.…
Read MoreDear Friends and Family Outside of Our Autism World
Dear friends and family outside of autism world, I want to thank you for loving my son. And no, this isn’t another letter about my little superhero Cooper. It’s a letter about my other son. My son Sawyer. He is my wild, adventurous, exhausting, never-stop-talking, little angel. The one who doesn’t understand autism and all of its constraints. The one who doesn’t understand why it feels like our world revolves around his brother. I Want To Thank You I simply want to thank you for loving him and for stepping…
Read MoreThe Emotions That Accompany Special Needs Parenting
One of the main reasons I started blogging about my life with an autistic child was to help other parents learn to talk about the emotions that go into raising a child with a lifelong disability. I knew what I was feeling and I knew I couldn’t be alone. Yet, it felt that way. The Roller Coaster If you are anything like me the whole thing feels like a rollercoaster. In the beginning you would’ve done anything for your child to not be on the spectrum. Maybe you were in denial.…
Read MoreWe Made It Over The Potty Training Mountain
There are moments I know I am going to remember forever. And one of them is reading this text message from Cooper’s school. He did it. He pooped at school. I want to be honest when I say I never fully believed that my autistic son would be potty trained. That’s how high the mountain was for him. At age six it felt like he was nowhere close. He loved his diapers. He refused to sit on the toilet for longer than 15 seconds and he’d scream and kick and…
Read MoreThe Emotional Weight of Autism
I am the mom to an amazing kiddo. He is almost seven. He also happens to be autistic. We have a bond that is indescribable. I am his voice. He is my purpose. I can read his mind. I can understand every scream, grunt, flap and hum. I know what he needs when he points to his Kindle. I know when he’s hungry and thirsty just by the look on his face. I just know. It’s my job to know. It’s my life. Parenting in general is not easy. We…
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