Posts Tagged ‘autism blog’
Pushed to Crazy to Help My Autistic Son
“Our Nurse Practitioner said she would not speak with you. She doesn’t even know you. She sees no reason to speak with you outside of the appointment.” “You can leave your son in the waiting room for five minutes and talk to the nurse before.” “Our Nurse Practitioner has no time to speak with you between now and the end of February. She also has no time to read your emails.” ‘You can come to the appointment instead of your son and speak to our Nurse Practitioner but then you’ll…
Read MoreObservations From an Autism Mom
Off he went in a flash in the big open gym. He darted away not to play with other kids at the birthday party, but instead to play with a curtain on the far right side of the room that separates the small space from the big gym. He happily pulled the curtain open and closed it again. Over and over. He then darted off to throw a basketball in the hoop. He laughed as he picked up the ball and threw it in. Within a few seconds, he was…
Read MoreSome Days I Have Nothing Left
I brought Cooper to the doctor this morning. He’s had chronic ear infections for years and I need to know why. My son is living in pain and he shouldn’t have too. His behaviors sky rocket the worse he feels. Fix the pain, fix the behaviors. Seems pretty easy right? I knew this appointment was going to be bad. I never take Cooper anywhere alone anymore. At nearly 70 pounds I struggle to have control of him. He is fast and sneaky and a runner. One of Cooper’s biggest struggles…
Read MoreDenying What Was Right in Front of Me
I don’t really want to be writing this, because it’s not pretty. I’m somewhat ashamed of this moment, but it’s my truth. “Why can’t you just be normal??” This is what I yelled at my sixteen month old beautiful baby boy. The look on his face is forever sketched in my memory, as it should be. I should never be allowed to forget how awfully broken I was then. Noah had been seeking sensory input at an all time high. Spinning, head stands, making non stop noises {not babbling, big…
Read MoreAll About My Son’s Chronic Ear Struggles
My son has had chronic ear infections since he was 12 months old. Although, for most of the time, I didn’t know. He didn’t communicate it. He showed no signs. He never pulled on his ears. He never had a fever or a cold with them. He was showing us in other ways we just didn’t see it. Ways that are almost impossible to detect in a nonverbal child who may or may not have autism. I am still angry to this day that his pediatrician never figured it out.…
Read MoreAutism, Isolation and Inclusion
I want to talk about a topic near and dear to my heart and very real in our autism world…isolation. I remember it started when my son was very young. Back in those days though, we thought he was just a challenging toddler. Autism wasn’t even in our vocabulary yet. We’d joke that he couldn’t sit still or about how busy he was and dream about the days when we could actually leave the house again. We thought by age 4 and 5 he would for sure be able to…
Read MoreI Don’t Mind Being Your Mom
As a mom of a child with autism, I often feel burnt out, disconnected and stressed. I often feel like a shell of who I used to be. I feel like someone who’s just struggling to make everyday a good day, even when the dark cloud looming over me is incredibly heavy. I’m not fun anymore. I’m rarely spontaneous or enjoyable to be around. I’m not as positive as I used to be and I don’t always see the good in the things that should bring me joy. I feel…
Read MoreBuilding Your Special Needs Mom Tribe
How do you build your mom tribe? What a question right? Making friends after 30 feels impossible. And then add in a child with special needs and it feels even more impossible. You can’t leave your house. You are perceptually exhausted. No one you know has a child with special needs. It feels like you can’t relate to anyone anymore. I get it. Take a listen as I discuss why it is hard to find friendships and maintain them when you have a child with special needs and how I…
Read MoreThe Moment My World Stood Still
It was a Sunday night. I had locked myself in the guest room with my mac book. I had had this feeling gnawing at me that something was not right with Sander. He was 2 years and 4 months old. I was a first time mother. I sat staring at the blank space in “dr” google. I thought back on my conversations that I had been having with friends, family members and acquaintances. Talking to my Mom on Christmas, “But Mom, why does Sander only like the wrapping paper and…
Read MoreMy Best Advice? Prioritize Time With Your Partner
Last week Jamie and I were sitting on the couch after a particularly long day. We had finally got the boys in their beds and had just sat down to watch television. Although, neither of us had the energy to turn it on quite yet. Finally, quiet. Our home is never quiet. Suddenly, Cooper burst out of his bedroom, buck naked, dancing to his Kindle. He twirled. Shouted. Laughed. At one point he realized that he was barefoot and marveled at the feel of the carpet on his feet. I’m…
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