Posts Tagged ‘autism blog’
Many Sunny Days Ahead…
I don’t want to get out of bed today. It’s going to be another dreary, cloud filled day. My room is dark and there is not an ounce of light peeking through the cracks of my window shade. I am so tired but I know in a few short minutes that I will be needed. I am going to hear my daughter Sunny screaming for me. It’s going to be another hard day of therapy sessions, begging to get her to eat something and begging her not to hurt herself.…
Read MoreDon’t Give Up On Me—Always Take Me Along
My sweet Tristan, You amaze me everyday. Even on our hard days I hope you see how much I love you. I love your silly side. I love your playful independence and how you seek joy in your own amazing way. Take me along, sweet boy. Always take your mama along. I want to see how you see and feel how you feel. Tristan, a moment in embedded in my heart. I was singing to you. You started to scream. I said “Do you want me to stop?” You signed…
Read MoreWhat I See when I Look at You
Before you were diagnosed sweet boy, I prayed for a lot of things. I prayed for answers. I prayed to find doctors that would listen to me. I prayed for strength to never give up. And I will admit, that I was so scared of the ‘word’ autism, that I prayed it was anything else. A speech delay. A developmental delay. A hearing loss. I prayed that you were just a late bloomer. That you were strong willed. Anything but that word that people were afraid to say out loud.…
Read MoreThe Woman in the I-Hop Parking Lot
My son Colt is 6 years old with severe non-verbal autism. He is the youngest of 3 boys. It is not easy for all of us to go out together as a family. Going to the movies with Colt is just out of the question. He would rock in his seat and vocalize loudly (if he even stayed in his seat). Bowling? No way, I can just imagine chasing him through the lanes while dodging bowling balls. Going anywhere that is crowded and loud is a huge gamble and takes…
Read MoreAutism and Puberty: Our Own Perfect Storm
Puberty has started to rear its head in our home again. We’ve already gotten a taste of it with our 14-year-old son, but now we have a 12-year-old girl in the throes of it; a 12-year-old girl who also happens to have autism. We are only about six months in, and I have already come to the conclusion that autism and puberty go together like oil and water. It’s hard enough for a typical kid to understand all the changes going on within them. Life becomes an emotional whirlwind as…
Read MoreAn Open Letter to Moms of Special Kiddos
Dear Special Needs Moms, I see you at the grocery store, the town office, the parking lots, the pediatric office, the WIC office. I know you are everywhere. I see you with those dark circles under your eyes. I see you with that calm and frazzled expression. I see you trying to hold your child and those big feelings together because the meltdown is coming for your child, or you ( or both) but you are in public. I see you celebrating that moment the world missed because they didn’t…
Read MoreI’m not Sorry
Many times I have heard and read about how parents of children on the autism spectrum absolutely hate it when someone who has just learned his/her child has autism says, “I´m sorry”. I don´t feel the same way. I´m actually grateful when someone has a polite or sympathetic comment to make when they learn my 5 year old daughter has autism. Some people don´t know what to say and instead of being quiet they say things like, “I saw Rain man”, “she can talk, she´s not autistic”, “she looks so…
Read MoreIn the Blink of an Eye
When I pictured my life 10 years ago kids were not in the picture. I just could not picture myself as a mom, then one almost breast augmentation later, I was pregnant with my first. Finding that out on the operating table was one of the most comical experience I’ve been through – let’s just say plastic surgeons are not used to telling people they are pregnant! Nonetheless, now I am a mom to two beautiful boys. Our road to getting here has not been easy, my husband is an…
Read MoreThey Call him a Monster
When you share your world like I do, you see, read, and hear things that are unbelievable. Things that make me physically ill. Evil finds us. Hate finds us. Which is hard to believe. I just share my kids. Our life. Our funny, beautiful life. And yet they call him a monster. They say he’s a waste. That he’s dangerous. That he’s much worse. Just because he has autism. A diagnosis. A label. A word. An explanation. Not an excuse. Something he was born with. He thinks a little differently.…
Read MoreWhy I Cried Happy Tears when my Son was Diagnosed with Autism
I can remember everything about the day that we received a diagnosis of autism for our Hudson. I can remember that I had to go by myself to that appointment because my husband couldn’t get off work. I can remember sitting at the table across from the psychologist and what felt like a rather sterile environment considering it was a pediatric development office. I sat there with a nervous pit in my stomach, anticipating what we might talk about but at the same time fearful to hear those words. With…
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