Posts Tagged ‘autism and nonverbal’
Am I Confident?
Being a confident mother to a child with a disability didn’t always come natural to me. Even though it may appear that way. On social media. Or if you see me sitting on the ground in Target next to my son, lovingly holding his frantic hands as he absorbs the sounds and smells and sights. I may appear fearless. As I sit there, my back absorbing the stares. But often I feel out of control. Like I’m standing in a room spinning a dozen plates in the air. And praying…
Read MoreNormalizing Our World
I found myself sitting next to a woman today. I was out in the community. She has three children and seven grandkids. She lives in a big city. She is in town for Thanksgiving. Visiting family. We got to chatting. Like strangers often do when they find themselves sitting side by side. She asked me about my life. Do I have kids? Where am I from? She really wanted to talk kids. I could tell. She was a very sweet woman. Like my own mother. ‘I do! Three boys and…
Read MoreThey Don’t Need Words
These two had it out last night. Like brothers have been known to do. It was over an iPad. There was a truck involved too. Lots of screaming and wrestling. They were eventually separated. One was put in the bath and told me the whole story, nonverbally of course. He asked for hugs and kisses as his alligator tears filled the tub. The other one, the tough guy, he didn’t need a hug or a kiss. But he did tell, and by that I mean yell, his side of the…
Read MoreControl What You can Control
I had the honor of speaking to a room full of mothers a few weekends ago. To say it was a group of amazing women is an understatement. These moms are strong, resilient, brave, kind, and have the ability to find humor and joy even on their darkest days. They are no stranger to disability. Or stepping into the role of nurse/therapist/teacher. And driving to and from therapy centers. Living in waiting rooms. Children’s Hospital. And living on hope. They became advocates simply by giving birth. They inspire me. These…
Read MoreI Just Live It
We were sitting with the realtor about to discuss what we were looking for in a new home. I know she wanted to know about bedrooms and bathrooms and location. I didn’t care about that stuff. Not really. In the grand scheme of things that stuff wasn’t a priority. “We can’t be near a busy road. The house has to have a fence or the ability to add one BEFORE we move in. And most importantly, we cannot, under any circumstances, be near water. Non negotiable. I worry about windows…
Read MoreSawyer, You are the Best Brother
Dear Sawyer, You are eight and I am writing down the stories I want to share with you when you are a grown man. So you know about our secret world. Last night I went to your bedroom to tuck you in but you weren’t there. So, I made my way to your older brother Cooper’s room and saw you holding him. It brought tears to my eyes. The protective way you were holding him was beautiful. He’s been driving you bonkers lately. He has this desire to be near…
Read MoreHis Magical World
One of the things I hear the most often from parents of newly diagnosed children is…I can’t figure out how to get my child to play with me. Or, I can’t find an activity for us to do together. This is coming from moms and dads who are trying so hard. They are desperate to get inside. But they don’t know how. Not yet anyways. Boy does that resonate with me. I was that mom years ago. My son wouldn’t play with me. In fact, he didn’t play at all.…
Read MoreThe Right Amount of Hope
I’ve been thinking a lot about hope lately. And the right amount to have. Which is a funny thing to think about really. Because, how can one have the wrong amount of hope? My son has autism. He is autistic. And that means his life will follow a different path than most. It means he has lots of unknowns. And parts that are hard for him. He has been robbed of a lot of the big things too. The ones that most parents take for granted for their children. And…
Read MoreHis World Makes Him Happy
Let me tell you about this boy. He is one of a kind for starters. Which is one of my most favorite things about him. He dances to music no one else can hear with courage and joy. He is more himself than any person I have ever met. Unapologetically. But he also comes with some pretty strict rules. Ones he has created himself. He does not stay up late. Nope. By 9 pm he is in bed every night. He watches the same movies on repeat. And has since…
Read MoreYou are Welcome Here
You are welcome here. I see so many posts online telling parents how to feel about their child’s diagnosis. Some tell them to only see the positive. To celebrate every part of it. Some shame them for saying they are scared. Or hard. Or that they are worried. Some tell them they are awful parents. Some ridicule them for thinking a certain way. Some act self riotous because they didn’t shed a tear when their child was diagnosed. And they shame anyone who did. I read those posts and they…
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