Posts Tagged ‘autism and minnesota’
A Thankless Job
Yesterday we had another weekly visit from Cooper’s crisis social worker. It was great as usual. We laughed and told stories and talked about ways to help Cooper. More specifically ways to make life easier. I mentioned how the week before the electricity was out at the house and I lasted 15 minutes before I threw him the truck to watch a movie. That kid cannot survive without technology. In a 15 minute period he melted completely down over no WI-FI, useless remotes, VCR’s, DVD players, TV’s, kindles, etc. It…
Read MoreCooper's Talking Device
Hi all, I wanted to share a video of Cooper’s talking device. Cooper has been using it at school for a little over 3 months and we are just starting to use it at home. Much like everything else I find it to be a little overwhelming. Sometimes I feel like it’s just ‘another’ thing we are trying. But in saying that his speech therapists are RAVING about his successes with it. He can say up to 6 word sentences. An example would be: ‘I want to eat yogurt please.’…
Read MoreI See You…Perfect For Today
I am so glad I saw this today. On the way to work this morning I was thinking about how hard it is to raise babies. It’s exhausting and challenging and tiring and wonderful and amazing. For any of you that know me you probably saw on Facebook that Sawyer put sand in my lawn mower gas tank last night. And then stripped down naked and ran around my front yard destroying plants. As I chased him around my yard screaming I had a silent chuckle at the neighbors watching…
Read MoreLearning to Say Yes…
I know I’ve been gone forever. I go through these droughts where I don’t know what to say about Cooper. Trust me I have hundreds of things I could write about but the words don’t seem to flow out. Maybe I am too tired. Or overwhelmed. I don’t really have an answer. We are still having major potty training struggles and successes. Cooper is pee trained but his pooping is worse than ever. We have made the decision to keep Cooper at Fraser day treatment for one more year. So…
Read MoreA Super Cooper Update
I haven’t given an old fashioned Cooper update in a long time. I remember reading updates when I used to follow a lot of autism blogs and comparing my kiddo to theirs. I would be like, Cooper can do that but wait, oh, shit, he can’t do that. It was good and bad. So, don’t do that. No comparing. Each kiddo is different. Language: No words at all. He doesn’t even have a sound for a word. Nothing consistent at all. That’s hard. I always wanted him to make a…
Read MoreDeciding to Be Brave
I had a friend ask me yesterday what made me decide to be brave. I love that question. I don’t feel brave. Ever. I feel afraid. And unheard. And lost. And completely unprepared and unequipped to handle what autism is throwing my way. But this sweet friend of mine saw it as bravery. And I loved her for it. I was filling her in on the whirlwind of the last week. I had my mini meltdown at Cooper’s pediatrician. I demanded that he helped me. I was a cross between…
Read MoreAutism and Changing Behaviors
I recently read a study that found moms that have children with autism, have also been shown to have stress levels similar to combat soldiers. I have felt this for years but I could never admit it. If I admitted that I couldn’t handle Cooper than I was admitting he was severely autistic. Admitting meant defeat. Or failure. There are a lot of emotions that go into asking for help. I am strong. Seriously. This blog is the ONLY place I break down. Not in real life. Not to friends.…
Read MoreWhy Did I Stop Writing….
I get so many emails from people wondering where I am. Emails wondering if Cooper is ok. If I am ok? People that genuinely care about Cooper and his development reach out to me on a daily basis. These emails and messages warm my heart. And I am so thankful for them. It reminds me that Cooper’s journey is helping others. That is amazing. I can remember the blogs that got me through. I would read them from start to finish in a night while drinking a bottle or two…
Read MoreSeeing the Ignorance First Hand
I had a conversation this past weekend that I can’t stop thinking about. It just keeps coming back. Not negatively. Not positively. Just more thought provoking I guess. It opened my eyes to the ignorance out there. I don’t share Cooper’s autism with most people. You would never meet a new person and immediately say…I have two kids…one is deaf. Or one is blind. Or whatever. I get to be choosy about who I share my Cooper story with. And I use it wisely. Maybe that’s weird. I’m not embarrassed.…
Read MoreThe Proverbial Straw
There are four sides to autism. At least that’s the way I see it. There is Cooper. He has autism. Then there is me and his dad and his brother and family. We have different expectations and emotions about Cooper. There is the rest of the world and how they perceive Cooper. There are teachers and aids and therapists and insurance companies. Doctors, financial aid workers. You name it. Cooper has it. And then there is the business side. Yesterday, while working an 8 hour day, I answered 4 phone…
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