This has always been our special place. It’s the one place I could bring both boys from an early age. It’s the one place that my nonstop moving boy would sit. He would be still. Sifting sand. And my younger son could play too, finding friends within seconds. And I could stop holding my breath. Even just for a minute. Cooper would look at the beach and choose a spot as far away from the kids as possible. He’d hunch over. And enter his happy place. Sawyer would look at…
My step-mom died recently. Of cancer. The really bad one. Although I know there are no good versions of cancer. Pancreatic. The survival rate is almost zero. I learned that after I googled. No one would say it out loud. It ate her alive right before our eyes. She went from a larger-than-life, loud, happy, busy woman to a shell. To a 67 year old woman in a nursing home bed. 14 months is all it took. 14 months to eat someone alive. Sawyer recently asked me why it did…
We chatted today. I was the mom next to you in the neurologists office with the two redheaded girls. Even if my girls weren’t loud and imposing in small spaces, I’m sure you would still remember us. I saw you watching them as you nervously waited for your appointment. And after seeing your beautiful little girl, I’m pretty sure we share more than a love of Wawa frozen cappuccinos. As your little lady sat on the floor with her kindle, I’m guessing I saw more than most moms would in this…
To the mama whose baby isn’t starting school today. To the parent who is wondering if they should take the picture. And wondering if they should celebrate just another day. To the dad whose sending some kids back to school but not the others. To the parent feeling a twinge of sadness today. Or a lot. I understand Your child doesn’t go to a typical school. They go to therapy. There are no grade levels. Just continuous time. Or maybe they do but they aren’t really in a grade. On…
Valerie Jerram, a Newark mom, posted a letter to Facebook on Saturday about an anonymous letter she received asking her to keep Mickey, her special needs daughter, away from a little league ballpark. The letter was left taped to her mailbox by a nameless local resident, presumably also a parent of a child in the Midway Little League where Jerram’s son has played for nine years. In fact, the family consider the Midway ballpark a second home – confirmed by the hand-painted wooden sign adorned with a pretty ribbon on the front…
I remember it like it was yesterday. It will be 30 years this month that I experienced rejection for the very first time in my life. I was beginning my grade 9 school year. After a summer being away from home, I was nervous to come back to school for some reason. I tried to comfort myself by saying, ‘Wendy, don’t be silly, you have been best friends with these girls for 4 years, everything is going to be fine. You are in the popular group. Everything will be great.’…
“You are a little too big to be sitting in there don’t you think?” So said the elderly woman at Target, with a chuckle and a wink, to my Isla as she sat with her knees grazing her chest in the shopping cart. I was tired. My body, my spirit, tired. The summer has been so long. I had zero make-up on but I had brushed my teeth, put a cap on to hide my unkept hair and managed sufficient deodorant swipes so I was totally winning the day in…
I wish I could sugar coat it, but raising a child with Autism comes with quite a few unique struggles to face. But there are unique joys as well, so let that be the light at the end of the tunnel as you and your child keep chugging along through emotional, financial, and physical challenges, especially when incontinence is also involved. Saving With Autism And Incontinence Supplies Autism and incontinence are connected due to a variety of reasons. Some children may experience learning disabilities that delay toilet training or may…
Last year about this time I posted a blog about inclusion. See, I am not a strong proponent either way as I feel everyone should be included to the best of their ability no matter what their extra needs or disabilities. Certainly, a child with disabilities should not bring trauma to your own typical child but reality is, my own children have had more struggles with typical children than they ever have with a child with extra needs and actually have learned more from them than their typical peers. That…
“Today has been tough. Aubrey has told me all day long, “I don’t want a brother.” Multiple times, and always very serious and sad. I asked her why she felt that way and she said, “Because he just cries too much.” I froze. Aside from wanting to tell her that she does the same and yet we still keep her around, I decided to give her grace instead. I tried to explain to her why her brother gets upset sometimes, and has a hard time staying calm, and that it’s…
