To the Woman Who Loved My Daughter Like Her Own

Today is 20 years since you have passed, and the void is forever there. The love you stamped our hearts with is carried with us every day. You are forever missed. A that tribute doesn’t even come close to explaining how amazing and how loved you are. More than a grandmother. Watching my daughter sit on your lap as you sit at the table seems like the most natural thing in the world.  Except sometimes it’s not. A nana sitting with her grand baby is something you can take for…

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The True Meaning of Christmas

My Husband. I love him with all my heart. Every fiber of my being. I have loved Him since I was 16 years old. I don’t really know anything else. And to be honest, sometimes I don’t even like him. We don’t see eye to eye on many things. We fight a lot. He doesn’t think the things I think are important matter. At all. And frankly, it irritates me that he can’t pretend to go along. He will humor me, but still, not happily. This was going to be…

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Trick or Treating – Age is Just a Number

With Halloween coming up there has been a lot of debate about trick or treating. I have seen a lot of really positive posts making people aware of all different styles of communication and different expectations for trick or treaters.  There have also been a lot of negative posts regarding age. I just want to point out how difficult these special occasions are for children with special needs and their parents.  It doesn’t matter where you fall on the spectrum or whether there are other types of special needs. There…

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My Fears for My Autistic Daughter

There are so many things I worry about when it comes to my autistic daughter. Raising a vulnerable child comes with so many fears. Some of these things are things we all worry about.  I have four children and I worry about them all.  The intensity and degree of worry when it comes to Alyssa is so intensified. My biggest fear is what will happen when I’m gone. This brings me to my knees, it terrifies me.  Me and autism have long battled with control. I like control and so…

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I Wondered Why Autism

Earlier in my journey I would often wonder why. Why my daughter, our family? It seemed unjust, unfair, why did this happen to her? It didn’t make sense, when I looked around I saw other families and their children and everything looked different from ours. Easy, simple, typical We were anything but. We were loud, chaotic, and everything was challenging. I searched for a reason, for something that could explain it. There wasn’t an answer. This was the life she was given, the life we were all given. I didn’t…

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Just the Way You Are

She looked like a typical little girl, bright curious eyes, adorable curls, a laugh that made you instantly smile. She loved water, spinning in circles and all things Barney. She loved dirt and rocks and playing with bubbles. She would swing on her belly for long periods of time. All these things didn’t seem that out of the ordinary for a two year old. Although when you looked closer; You could see she wasn’t talking or even saying words. Her food choices were extremely limited. Her understanding was inconsistent and…

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