Even in the Dark, You Are Not Alone

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I’ll sit with you in the dark, when you know, but you have to wait.

Wait for others to believe you.

Wait for insurance approvals.

Wait for evaluations.

Always waiting to hear what you already know.

I’ll sit with you in the dark when you feel alone.

When others tell you they’ll pray for you.

When they tell you stories of how they know someone who knows someone.

When they tell you that God gives special kids to special people.

When they tell you, “but they’re so cute” or “they’re so smart” like it’s a consolation prize.

I’ll sit with you in the dark when friends and family slowly drop off when things get harder.

They’re ‘there for you’ until they aren’t. Because the reality is too hard for them to grasp, so it becomes only your burden to bare.

I’ll sit with you in the dark when you’re so tired of speaking and not being heard.

When you repeat yourself into a void and then you’re told “you never said that”. When you cry yourself to sleep every night and no one even notices – I do, because I am you.

I’ll sit with you in the dark when others don’t know how dark the dark can be.

When you pretend everything is fine when it’s far from it. When you fight for services. When you fight the school system. When you fight your own family who refuse to see things for what they actually are.

I’ll sit with you in the dark when the cuteness starts to wear off.

When things that were shrugged off as, “all kids do that” become “why does your kid do that?”

I’ll sit with you in the dark when you start to drown yourself in wine and food and try to sleep as much as you can so you don’t have to think.

I know this happens. I know because it all happened to me, and I don’t want it to happen to anyone else.

I’ll sit with you in the dark when the sadness of “why my kid?” slowly turns to the anger of “why not my kid?” and you realize how important inclusion and acceptance are.

You are not alone, ever, even in the dark.

Written by, Vesna Pulford

Vesna is a 37 year old single mom to two little autistic boys. She is a pharmacist and in her spare time likes to share her love of make you. You can follow her on Instagram at vesofalltrades and on FB

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Finding Cooper’s Voice is a safe, humorous, caring and honest place where you can celebrate the unique challenges of parenting a special needs child. Because you’re never alone in the struggles you face. And once you find your people, your allies, your village….all the challenges and struggles will seem just a little bit easier. Welcome to our journey. You can also follow us on Facebook, subscribe for exclusive videos, and subscribe to our newsletter.

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Kate Swenson

Kate Swenson lives in Minnesota with her husband Jamie, and four children, Cooper, Sawyer, Harbor and Wynnie. Kate launched Finding Cooper's Voice from her couch while her now 11-year-old son Cooper was being diagnosed with autism. Back then it was a place to write. Today it is a living, thriving community of people who want to not only advocate for autism, but also make the world a better place for individuals with disabilities and their families. Her first book, Forever Boy, will be released, April 5, 2022.

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