An Important Lesson

kate 15

My family visited my dad today. With covid precautions, it’s been quite some time since we’ve seen him. As I sat with him today, I found myself thinking back.

Nearly two years ago, my stepmom lost her battle with pancreatic cancer. The night before we lost her, I was driving my dad back to his house, from the nursing home where she would spend her last days.

It was nearing midnight. He was exhausted, close to 80 himself. He needed to rest for a few hours. It was foggy and cold, and I found myself weaving through the backwoods of northern Wisconsin, driving his truck.

I was white knuckling it, focusing the best I could through fuzzy eyes and trying to listen to his sporadic words of grief and say the right things. I felt scared, not knowing how to help him. We both knew she had mere days left.

Watching him sit next to her bed, holding her frail, pale hand, was almost more than I could take. When she would cry, the morphine not enough to dull the pain, he would hunch over her body, whispering ‘go to Jesus’ in her ear.

As we wound around the dark road, I wondered how anyone could watch their partner die that way. The pain she was experiencing was unbelievable. She was not spared. Neither was he. I prayed for it to end for both of them. But I didn’t know if I was praying for the right thing.

He said, ‘she’s still here Katie. She’s not gone yet. Even though she can’t talk, or communicate, she is still here. I can touch her and hold her hand. I can sit near her and I can talk to her. I’m not ready to be without her. I need her. She doesn’t have to speak; I can do the talking.’

At that moment in my life, Cooper was still nearly entirely nonverbal. He wasn’t really trying to communicate either. Maybe a request on a speech device for a cookie or a sign for more but that was about it.

Of course, I talked enough for the both of us. And his dad and brothers never seem to stop making noise either. Our house is filled with love and chatter. But when it’s just the two of us, the silence overwhelms me sometimes.

I am sad sometimes that my son and I had never had a conversation. And possibly never will. But that car ride with my dad, without even knowing it, in his hardest moment, he taught me an important lesson.

I don’t need words; I just need Cooper. I just need him to hold and to love for the rest of my life. I can do the talking. Just as long as he’s with me.

Today, he said to me…’I still miss her so much. I would give anything just to be with her one more time.’

Finding Cooper’s Voice is a safe, humorous, caring and honest place where you can celebrate the unique challenges of parenting a special needs child. Because you’re never alone in the struggles you face. And once you find your people, your allies, your village….all the challenges and struggles will seem just a little bit easier. Welcome to our journey. You can also follow us on Facebook, subscribe for exclusive videos, and subscribe to our newsletter.

Avatar photo

Kate Swenson

Kate Swenson lives in Minnesota with her husband Jamie, and four children, Cooper, Sawyer, Harbor and Wynnie. Kate launched Finding Cooper's Voice from her couch while her now 11-year-old son Cooper was being diagnosed with autism. Back then it was a place to write. Today it is a living, thriving community of people who want to not only advocate for autism, but also make the world a better place for individuals with disabilities and their families. Her first book, Forever Boy, will be released, April 5, 2022.

Share this post: