The Different Stages of Accepting Autism

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I had no idea that there would be so many different stages surrounding my son’s autism.

For example I thought getting the diagnosis would be the hardest part. I really did.

I thought going through the pain of realizing something was wrong, making the phone call for the appointment, bringing my baby to be evaluated and hearing the words, ‘yes he is autistic,’ would be the hardest parts we would ever have to go through. We would get help and it would be fine. I was wrong.

There are so many stages that happened after that.

Learning that my son was nonverbal and that some kids never ever talk shocked me. Finding out the severity of his autism was another one.

And then accepting forever. That one is still so real for me.

I am sure there are many more stages to come. I have no doubt.

Take a listen…

https://www.facebook.com/findingcoopersvoice/videos/1899697166796172/

Finding Cooper’s Voice is a safe, humorous, caring and honest place where you can celebrate the unique challenges of parenting a special needs child. Because you’re never alone in the struggles you face. And once you find your people, your allies, your village….all the challenges and struggles will seem just a little bit easier. Welcome to our journey. You can also follow us on Facebook and subscribe to our newsletter.

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Kate Swenson

Kate Swenson lives in Minnesota with her husband Jamie, and four children, Cooper, Sawyer, Harbor and Wynnie. Kate launched Finding Cooper's Voice from her couch while her now 11-year-old son Cooper was being diagnosed with autism. Back then it was a place to write. Today it is a living, thriving community of people who want to not only advocate for autism, but also make the world a better place for individuals with disabilities and their families. Her first book, Forever Boy, will be released, April 5, 2022.

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4 Comments

  1. Morgan Medeiros on December 13, 2018 at 5:36 am

    Those parents are out there. Speaking as a sibling, someone on the other side of the “forever” you’re currently reckoning with. My mother owns a 501(c)3 nonprofit AFH for men with developmental disabilities, and there are MANY people like Cooper out there in the world. There is a place for you, and a community for you, and I hope you find the support you need in your journey.



  2. Morgan Medeiros on December 13, 2018 at 5:36 am

    Also, for context, I am a Sawyer- my brother Austin is 30.



  3. Shay on December 13, 2018 at 8:51 am

    I’m hoping you find some more friends to share your circle! I recently wrote you a highlight of the year and I actually felt guilty writing it bc I know you and I did all the same things, but with different results. I really wanted to share some hope bc when my son was diagnosed I searched for positive stories and there wasn’t a lot out there. Just know that it’s almost comical how similar our sons are even tho coop is more sever the behaviors are usually very similar around the same time, so I really enjoy your posts!



  4. Josephine Curry on December 13, 2018 at 8:47 pm

    You are not alone.
    My 3rd child has autism with severe anxiety, crippling rigidity and OCD. The anxiety and OCD actually started about three years ago and has made all of our lives very very small. More so than the autism actually. It is heartbreaking.