The Moment No One Talks About in Special Needs Parenting

Remember that time The Today Show created and shared a video about me? I sure do. My world was turned upside down.

When all was said and done the video was viewed nearly 20 million times between two different Today sites. Thousands and thousands of comments and reactions. Mostly positive. Some negative. Which is to be expected I guess when you are reaching that volume of people. So many encouraging and positive messages though.

I’m still shocked and surprised about the backlash. I’ve decided to be more private with my life. I’ve spoke to my boys schools about security. I’m still scared to share. I hold my breath when I read every comment. It’s different now. And I hope it goes back to being fun.

Anyhow, my mission has not changed. Create a place where families of severely autistic children can talk about the unique worries, joys, and struggles that we face. I won’t vary from that.

Click to watch…

Kate Swenson, creator of “Finding Cooper’s Voice” about parenting a child with autism, shares an emotional and raw vlog describing the moment her vision for her son’s future shifted dramatically. “I know that his joy should be enough,” she says. “It is a lot of the time, it really is. But last night I lay in bed and I thought about his funeral. What if no one goes?”

This article and video originally appeared on Today.com.

Finding Cooper’s Voice is a safe, humorous, caring and honest place where you can celebrate the unique challenges of parenting a special needs child. Because you’re never alone in the struggles you face. And once you find your people, your allies, your village….all the challenges and struggles will seem just a little bit easier. Welcome to our journey. You can also follow us on Facebook and subscribe to our newsletter.

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  • NEIL MCFADDEN

    March 11, 2018 at 1:10 am
    Reply

    Kate . I Have a 5 year old. none verbal boy Henry who is my world . You give me the hope and love to keep […] Read MoreKate . I Have a 5 year old. none verbal boy Henry who is my world . You give me the hope and love to keep going... Neil Northern Ireland....UK Read Less

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About Me

Finding Cooper's Voice is a safe, humorous, caring and honest place where you can celebrate the unique challenges of parenting a special needs child. Because you're never alone in the struggles you face. And once you find your people, your allies, your village....all the challenges and struggles will seem just a little bit easier. Welcome to my page!

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When my son was first diagnosed with autism no one was talking about it. Autism was hidden. I vow to change that.
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