Autism and Supplements

When my son was first diagnosed with Autism I was inundated with information. It seemed like everyone I met knew something about Autism. And a few even seemed to know children who were miraculously cured of their autistic behaviors. I remember being so scared. I often joked that I was still waiting for my ‘autism manual’ to come in the mail. I was not a doctor or a therapist or a teacher. I was just a mom. A mom to a little boy that needed so much care. Autism was a mystery to me.

The A-Word

I remember first time I heard Autism. I shrugged it off, smiled, and said that doesn’t sound like Cooper at all and then spent the night googling everything I could about the neurological disorder. I was so scared. And then at age three we had the diagnosis.

I of course had all the typical emotions. Fear, worry, denial, anger. But I also remember being almost relieved that we had an answer. I could now help my son. It should be simple. Make a plan. Give him the best therapy and care and he would be fine. Except, with autism, it’s not like that.Each parent is seemingly on their own journey with their unique child. They need to figure out what works for them. There is so much trial and error.

And this mama dove in head first. I even ate up every dramatic claim. You know the ones: “Mother starts this supplement and nonverbal child immediately starts talking.” “Mother removes Gluten from child’s diet and autistic child no longer has behaviors.” I’ve heard these statements and I know you have too. They are all over Facebook right now.

Trial and Error

Three years ago, when I was new to the game, I bought into all of it. I tried everything for Cooper. Essential Oils, diet modifications, fish oil, probiotics, removing gluten and dairy. I could go on and on. Unfortunately, all of them failed for us because I was simply ‘just trying everything’. I spent so much time and money chasing a fix that I made myself a little bit crazy.

My son is now almost seven. He is autistic. He is nonverbal. He is amazing. I like to say that Super Cooper and I have finally figured out our path. We have an amazing ABA team that comes to our home five days a week to work with Coops. We’ve removed gluten and dairy from his diet. He now drinks water. He no longer eats candy or excessive amounts of sugar. He eats two fruits. He willingly tries new foods. He takes 8 supplements a day. He sits. He participates. He is thriving. And I am hopeful. Our whole family is. Every single day I am seeing positive changes. I dove into these changes purely and solely to help my son feel better. And it worked. And as an added bonus so many other areas of his life have improved as well.

The Video

So here it is! The long awaited supplement video. Three months ago my autistic son was extremely anxious. He wasn’t sleeping or pooping. His behaviors were getting more intense and increasing. I knew in my gut that he wasn’t feeling well. And at the same time…I didn’t know how to help him. I felt like a failure. We visited doctor after doctor and the answer was always…’Well, he’s autistic. Some of this is to be expected.’ I refused to believe that.

So, we jumped head first into the gluten-free, dairy-free and supplement rabbit hole. And I am here to tell you it’s the best decision I have ever made as a mother to an autistic child. Cooper no longer takes Miralax daily. He is able to go the bathroom un-medicated for the first time in five years. He is sleeping. He is content. He is present. He is thriving. It’s almost like he is waking up after sleeping for six years. Here is our story. And it’s a long one. This is everything that has brought us to this point in our journey.

(Disclaimer: I am not a doctor, nor do I claim to be. I am the mother to an autistic six year old who knew her son needed help. Please consult with a Naturopath for more information. We visit Minnesota Natural Medicine.)

List of Supplements

Cooper eats the following seven supplements mixed with Daiya Dairy Free Yogurt once a day. (Please consult a doctor before adding in supplements to your child’s diet.)

  • ActiveNutrients without Copper & Multivitamin Powder
  • Probiotic with 20 billion CFU daily
  • Methyl CpG Capsule
  • Acetyl-L-Carnitine
  • Ubiquinol
  • Vitamin D3
  • Fish Oil
  • Zinc (New supplement as of August 20, 2017 to help with Cooper’s desire to suck on non-food items. I’ve seen an increase in his desire to eat leaves, grass, mulch, wood, fuzz, carpet strings, etc.)
  • Benefiber (New supplement as of August 15, 2017)

He also has Glutathione rubbed on his inner arm two times per day. Glutathione is the most powerful antioxidant in the body. One of its key functions is to reduce oxidative stress and remove toxins from the body.

Want to know more about our journey with supplements? Click HERE.

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Comments

  • Jo

    July 10, 2017 at 3:44 pm
    Reply

    Thanks so much for posting and sharing this. I appreciate your thoughtful and cautious approach. Our amazing 3 year old daughter has a chromosomal deletion […] Read MoreThanks so much for posting and sharing this. I appreciate your thoughtful and cautious approach. Our amazing 3 year old daughter has a chromosomal deletion and struggles with hypotonia, and has had similar GI issues as Cooper. I know what it's like to spend a lot of time wishing someone else would poop! We're in MN, in the Twin Cities too and well seeded in the various MN children's clinics and systems and I believe in our docs and therapists methods, but I'm curious how supplements might work for us and what kind of positive affect they could have on our girl. Just wanted to shout out a thank you for the encouragement. Read Less

  • Susan Bradbury

    July 10, 2017 at 6:32 pm
    Reply

    Please email me privately. I would like to know what brands you are using.... thx

    • Nell
      to Susan Bradbury

      July 10, 2017 at 9:27 pm
      Reply

      I would like to know what brands you're using as well. Really happy for you both, I know what it's like seeing your child come […] Read MoreI would like to know what brands you're using as well. Really happy for you both, I know what it's like seeing your child come out of a fog. Read Less

      • findingcoopersvoice
        to Nell

        July 11, 2017 at 3:21 pm
        Reply

        Hi there! Right now I am using the brands directly from the Naturopath. So, it's Minnesota Natural Medicine. I think eventually I may go elsewhere […] Read MoreHi there! Right now I am using the brands directly from the Naturopath. So, it's Minnesota Natural Medicine. I think eventually I may go elsewhere for cheaper brands but right now these are working well! Read Less

        • Maria Vega
          to findingcoopersvoice

          August 20, 2017 at 2:01 pm
          Reply

          Hi! Can you please send me the brand names of the multivitamin, Vitamin D, and probiotics that you are using with Cooper? My daughter it's […] Read MoreHi! Can you please send me the brand names of the multivitamin, Vitamin D, and probiotics that you are using with Cooper? My daughter it's five and have extreme deficiencies with Vitamin D, B-12, and iron. Her neurologist told me to use a multivitamin but didn't want to recommend any brand. My daughter doesn't chew gummies or pills. Also, her diet it's very restrictive. How you describe your son it's my daily with my kid. I will really appreciate your advice. Read Less

  • Kristina

    July 11, 2017 at 1:04 am
    Reply

    Great job mama! I have been bio medically healing my son for about 13 months and he went from a kid who wouldn't even […] Read MoreGreat job mama! I have been bio medically healing my son for about 13 months and he went from a kid who wouldn't even look at mickey mouse at Disneyland because he was too busy stimming on his hands...to a kid who is so so so social, interactive, chatty, and fun to be around. His physical issues like constipation, vomiting and chronic fatigue , etc is either so much better or almost resolved. We are so much happier as an entire family. Cooper reminds me of my son in some ways. I saw in your video that he is taking ubiquinol and acetyl l Carnitine. Those are supplements for mitochondrial dysfunction which is very common in autistic children. If he hasn't had a OATS test done by great plains labs then I highly recommend it! Somethings that may also help are leucovorin and levocarnitine, and vitamin b12 shots. Those interventions have been life changing for my kiddo. Obviously every kid is different and like you we supplement off labs and symptoms. I just know you mention cooper being tired. Anyways....here is Dr Rossignols website and he is consider a Autism/mito expert. He has a lot of good evidence based studies supporting supplementation and some meds to help all sorts of issues that go along autism. https://www.rossignolmedicalcenter.com/articles/ I totally know what it is like to be a desperate mom who has a child who is suffering...my son use to be physically and emotionally so unhappy. Thankfully bio-med has helped him so much that he is finally happy again =). Great job mama! You have a whole army of warrior mamas standing right behind you Read Less

  • Jim

    July 11, 2017 at 2:03 pm
    Reply

    Kate, my wife and I watched your video and we can relate to pretty much every experience you shared regarding Cooper. Watching this was […] Read MoreKate, my wife and I watched your video and we can relate to pretty much every experience you shared regarding Cooper. Watching this was very encouraging and we are discussing a similar course of action for our son. Thank you so much for doing this! I'm not sure if you had mentioned this in a previous post but what was the dosage of the ActiveNutrients powder that you put into Cooper's yogurt? Thanks again Kate! Read Less

    • findingcoopersvoice
      to Jim

      July 11, 2017 at 3:19 pm
      Reply

      Hey Jim, So glad to hear that. I give him one scoop full. I'm thinking it might be a tablespoon? It's just the scoop that […] Read MoreHey Jim, So glad to hear that. I give him one scoop full. I'm thinking it might be a tablespoon? It's just the scoop that comes with it. It has a strong flavor though! Good luck! Read Less

  • Cheryl

    July 11, 2017 at 3:43 pm
    Reply

    I'm so glad you are have such great success and it gives me the motivation to seek out ways to help our grandson. I […] Read MoreI'm so glad you are have such great success and it gives me the motivation to seek out ways to help our grandson. I am also glad that you are straight forward and aren't telling us that your son is "cured" by these remedies. He has autism. But he is relieved of the symptoms and pain which will allow him to focus and allow the therapy take hold because now he is not suffering. This is exactly what we need. I don't need to be told that by doing these things there will be a magical cure for autism. I know that isn't realistic. But to know that we can get real help, that makes all the difference. Read Less

  • Danielle

    July 12, 2017 at 5:37 am
    Reply

    Thank you for posting this. I'm having the same bathroom issue with my 4 year old son. Doctors are constantly pushing miralax and water. […] Read MoreThank you for posting this. I'm having the same bathroom issue with my 4 year old son. Doctors are constantly pushing miralax and water. You are a wonderful mom, and awesome for sharing all this great knowledge. This life is hard, hang in there! Read Less

  • Nat

    July 12, 2017 at 8:34 pm
    Reply

    Yes thanks so much for sharing this info. My son's doing aba as well but I'd also like to try biomed bc I feel it […] Read MoreYes thanks so much for sharing this info. My son's doing aba as well but I'd also like to try biomed bc I feel it should only help . hearing how well coppers doing is such a relief:) Read Less

  • Katy

    July 14, 2017 at 12:00 pm
    Reply

    What brand of glutathione rub-on stick are you using?

  • Sarah

    August 10, 2017 at 12:59 pm
    Reply

    Hi Kate! My son is 4 and sounds a lot like your precious Cooper. It sounds like we're on the same path as […] Read MoreHi Kate! My son is 4 and sounds a lot like your precious Cooper. It sounds like we're on the same path as you in your journey...having done all the therapies, just started ABA and supplements after seeing a naturopath doctor, transitioning to a gfcf diet. Thank you for sharing your story with us! It's so encouraging to me to listen to someone else that "gets us". Most people don't understand the tiny things we know are huge victories when all they can see is how far we still have to go. Thank you for your candor!! Read Less

  • Laurel

    August 14, 2017 at 11:59 am
    Reply

    Hi! Are the micro-nutrients a prescription? where do you purchase them?

  • Lissette Giovia

    August 16, 2017 at 7:53 am
    Reply

    Hi Kate, I've been following your post for some time. My son Justin is sooo much like Cooper. I totally get it when you say […] Read MoreHi Kate, I've been following your post for some time. My son Justin is sooo much like Cooper. I totally get it when you say he hasn't been present. :( love the supplement video. I'm gonna give it another shot. Trying to find a way to get back to the naturalpath. I wanted to ask you where you get the glutathione rub. I've tried gluthione liquid but it's smells and taste so bad I can get it in. Thanks Read Less

  • Jen Ritter

    August 21, 2017 at 3:24 pm
    Reply

    Hey Kate what brand probiotics do you use?

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About Me
About Me

Hi, I'm Kate. I am the mother to a little boy with severe, nonverbal Autism. This is a glimpse into our heartwarming, sad, scary, funny, loving and secret world. Check out my video tab to hear me ramble about Autism.

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