Autism and Supplements

When my son was first diagnosed with Autism I was inundated with information. It seemed like everyone I met knew something about Autism. And a few even seemed to know children who were miraculously cured of their autistic behaviors. I remember being so scared. I often joked that I was still waiting for my ‘autism manual’ to come in the mail. I was not a doctor or a therapist or a teacher. I was just a mom. A mom to a little boy that needed so much care. Autism was a mystery to me.

The A-Word

I remember first time I heard Autism. I shrugged it off, smiled, and said that doesn’t sound like Cooper at all and then spent the night googling everything I could about the neurological disorder. I was so scared. And then at age three we had the diagnosis.

I of course had all the typical emotions. Fear, worry, denial, anger. But I also remember being almost relieved that we had an answer. I could now help my son. It should be simple. Make a plan. Give him the best therapy and care and he would be fine. Except, with autism, it’s not like that.Each parent is seemingly on their own journey with their unique child. They need to figure out what works for them. There is so much trial and error.

And this mama dove in head first. I even ate up every dramatic claim. You know the ones: “Mother starts this supplement and nonverbal child immediately starts talking.” “Mother removes Gluten from child’s diet and autistic child no longer has behaviors.” I’ve heard these statements and I know you have too. They are all over Facebook right now.

Trial and Error

Three years ago, when I was new to the game, I bought into all of it. I tried everything for Cooper. Essential Oils, diet modifications, fish oil, probiotics, removing gluten and dairy. I could go on and on. Unfortunately, all of them failed for us because I was simply ‘just trying everything’. I spent so much time and money chasing a fix that I made myself a little bit crazy.

My son is now almost seven. He is autistic. He is nonverbal. He is amazing. I like to say that Super Cooper and I have finally figured out our path. We have an amazing ABA team that comes to our home five days a week to work with Coops. We’ve removed gluten and dairy from his diet. He now drinks water. He no longer eats candy or excessive amounts of sugar. He eats two fruits. He willingly tries new foods. He takes 8 supplements a day. He sits. He participates. He is thriving. And I am hopeful. Our whole family is. Every single day I am seeing positive changes. I dove into these changes purely and solely to help my son feel better. And it worked. And as an added bonus so many other areas of his life have improved as well.

The Video

So here it is! The long awaited supplement video. Three months ago my autistic son was extremely anxious. He wasn’t sleeping or pooping. His behaviors were getting more intense and increasing. I knew in my gut that he wasn’t feeling well. And at the same time…I didn’t know how to help him. I felt like a failure. We visited doctor after doctor and the answer was always…’Well, he’s autistic. Some of this is to be expected.’ I refused to believe that.

So, we jumped head first into the gluten-free, dairy-free and supplement rabbit hole. And I am here to tell you it’s the best decision I have ever made as a mother to an autistic child. Cooper no longer takes Miralax daily. He is able to go the bathroom un-medicated for the first time in five years. He is sleeping. He is content. He is present. He is thriving. It’s almost like he is waking up after sleeping for six years. Here is our story. And it’s a long one. This is everything that has brought us to this point in our journey.

(Disclaimer: I am not a doctor, nor do I claim to be. I am the mother to an autistic six year old who knew her son needed help. Please consult with a Naturopath for more information. We visit Minnesota Natural Medicine.)

List of Supplements

Cooper eats the following seven supplements mixed with Daiya Dairy Free Yogurt once a day. (Please consult a doctor before adding in supplements to your child’s diet.)

  • ActiveNutrients without Copper & Multivitamin Powder
  • Probiotic with 20 billion CFU daily
  • Methyl CpG Capsule
  • Acetyl-L-Carnitine
  • Ubiquinol
  • Vitamin D3
  • Fish Oil
  • Zinc (New supplement as of August 20, 2017 to help with Cooper’s desire to suck on non-food items. I’ve seen an increase in his desire to eat leaves, grass, mulch, wood, fuzz, carpet strings, etc.)
  • Benefiber (New supplement as of August 15, 2017)

He also has Glutathione rubbed on his inner arm two times per day. Glutathione is the most powerful antioxidant in the body. One of its key functions is to reduce oxidative stress and remove toxins from the body.

Want to know more about our journey with supplements? Click HERE.

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Comments

  • Jo

    July 10, 2017 at 3:44 pm
    Reply

    Thanks so much for posting and sharing this. I appreciate your thoughtful and cautious approach. Our amazing 3 year old daughter has a chromosomal deletion […] Read MoreThanks so much for posting and sharing this. I appreciate your thoughtful and cautious approach. Our amazing 3 year old daughter has a chromosomal deletion and struggles with hypotonia, and has had similar GI issues as Cooper. I know what it's like to spend a lot of time wishing someone else would poop! We're in MN, in the Twin Cities too and well seeded in the various MN children's clinics and systems and I believe in our docs and therapists methods, but I'm curious how supplements might work for us and what kind of positive affect they could have on our girl. Just wanted to shout out a thank you for the encouragement. Read Less

  • Susan Bradbury

    July 10, 2017 at 6:32 pm
    Reply

    Please email me privately. I would like to know what brands you are using.... thx

    • Nell
      to Susan Bradbury

      July 10, 2017 at 9:27 pm
      Reply

      I would like to know what brands you're using as well. Really happy for you both, I know what it's like seeing your child come […] Read MoreI would like to know what brands you're using as well. Really happy for you both, I know what it's like seeing your child come out of a fog. Read Less

      • findingcoopersvoice
        to Nell

        July 11, 2017 at 3:21 pm
        Reply

        Hi there! Right now I am using the brands directly from the Naturopath. So, it's Minnesota Natural Medicine. I think eventually I may go elsewhere […] Read MoreHi there! Right now I am using the brands directly from the Naturopath. So, it's Minnesota Natural Medicine. I think eventually I may go elsewhere for cheaper brands but right now these are working well! Read Less

        • Maria Vega
          to findingcoopersvoice

          August 20, 2017 at 2:01 pm
          Reply

          Hi! Can you please send me the brand names of the multivitamin, Vitamin D, and probiotics that you are using with Cooper? My daughter it's […] Read MoreHi! Can you please send me the brand names of the multivitamin, Vitamin D, and probiotics that you are using with Cooper? My daughter it's five and have extreme deficiencies with Vitamin D, B-12, and iron. Her neurologist told me to use a multivitamin but didn't want to recommend any brand. My daughter doesn't chew gummies or pills. Also, her diet it's very restrictive. How you describe your son it's my daily with my kid. I will really appreciate your advice. Read Less

          • James
            to Maria Vega

            June 11, 2018 at 10:30 am
            Reply

            Thorne makes a very good vitamin d3/k drop... https://www.amazon.com/Thorne-Research-Dispenser-Supplement-Vitamins/dp/B0797MKL7B/ref=sr_1_1_a_it?ie=UTF8&qid=1528730950&sr=8-1&keywords=thorne+vitamin+d3+vitamin+k

          • James
            to Maria Vega

            June 11, 2018 at 10:35 am
            Reply

            for B12, I would get a whole food vitamin of B complex https://www.amazon.com/Garden-Life-Vitamin-Supplement-Capsules/dp/B00280M12A/ref=sr_1_5_s_it?s=hpc&ie=UTF8&qid=1528731161&sr=1-5&keywords=b%2Bcomplex%2Bwhole%2Bfood&dpID=51gMFHGb6WL&preST=_SY300_QL70_&dpSrc=srch&th=1

          • James
            to Maria Vega

            June 11, 2018 at 10:38 am
            Reply

            Iron smart is what we are using for our son - https://www.amazon.com/Iron-Smart-60-vegetarian-capsules/dp/B00GBGVOHK/ref=sr_1_4_s_it?s=hpc&ie=UTF8&qid=1528731375&sr=1-4&keywords=liposomal+iron&dpID=41SfC7SL5RL&preST=_SY300_QL70_&dpSrc=srch

  • Kristina

    July 11, 2017 at 1:04 am
    Reply

    Great job mama! I have been bio medically healing my son for about 13 months and he went from a kid who wouldn't even […] Read MoreGreat job mama! I have been bio medically healing my son for about 13 months and he went from a kid who wouldn't even look at mickey mouse at Disneyland because he was too busy stimming on his hands...to a kid who is so so so social, interactive, chatty, and fun to be around. His physical issues like constipation, vomiting and chronic fatigue , etc is either so much better or almost resolved. We are so much happier as an entire family. Cooper reminds me of my son in some ways. I saw in your video that he is taking ubiquinol and acetyl l Carnitine. Those are supplements for mitochondrial dysfunction which is very common in autistic children. If he hasn't had a OATS test done by great plains labs then I highly recommend it! Somethings that may also help are leucovorin and levocarnitine, and vitamin b12 shots. Those interventions have been life changing for my kiddo. Obviously every kid is different and like you we supplement off labs and symptoms. I just know you mention cooper being tired. Anyways....here is Dr Rossignols website and he is consider a Autism/mito expert. He has a lot of good evidence based studies supporting supplementation and some meds to help all sorts of issues that go along autism. https://www.rossignolmedicalcenter.com/articles/ I totally know what it is like to be a desperate mom who has a child who is suffering...my son use to be physically and emotionally so unhappy. Thankfully bio-med has helped him so much that he is finally happy again =). Great job mama! You have a whole army of warrior mamas standing right behind you Read Less

    • Bill Brittain
      to Kristina

      November 25, 2017 at 12:29 pm
      Reply

      Please send me your list of the supplements& the doses. My grandson is 3 years old, his name is Ethan. I get his supplements from […] Read MorePlease send me your list of the supplements& the doses. My grandson is 3 years old, his name is Ethan. I get his supplements from pureencapulations.com I also have him LDN from ldndoctor.com that stands for low does naltrexone. Please do research on that. It is for treating autism,,,, Thank you Bill Brittain Read Less

  • Jim

    July 11, 2017 at 2:03 pm
    Reply

    Kate, my wife and I watched your video and we can relate to pretty much every experience you shared regarding Cooper. Watching this was […] Read MoreKate, my wife and I watched your video and we can relate to pretty much every experience you shared regarding Cooper. Watching this was very encouraging and we are discussing a similar course of action for our son. Thank you so much for doing this! I'm not sure if you had mentioned this in a previous post but what was the dosage of the ActiveNutrients powder that you put into Cooper's yogurt? Thanks again Kate! Read Less

    • findingcoopersvoice
      to Jim

      July 11, 2017 at 3:19 pm
      Reply

      Hey Jim, So glad to hear that. I give him one scoop full. I'm thinking it might be a tablespoon? It's just the scoop that […] Read MoreHey Jim, So glad to hear that. I give him one scoop full. I'm thinking it might be a tablespoon? It's just the scoop that comes with it. It has a strong flavor though! Good luck! Read Less

  • Cheryl

    July 11, 2017 at 3:43 pm
    Reply

    I'm so glad you are have such great success and it gives me the motivation to seek out ways to help our grandson. I […] Read MoreI'm so glad you are have such great success and it gives me the motivation to seek out ways to help our grandson. I am also glad that you are straight forward and aren't telling us that your son is "cured" by these remedies. He has autism. But he is relieved of the symptoms and pain which will allow him to focus and allow the therapy take hold because now he is not suffering. This is exactly what we need. I don't need to be told that by doing these things there will be a magical cure for autism. I know that isn't realistic. But to know that we can get real help, that makes all the difference. Read Less

  • Danielle

    July 12, 2017 at 5:37 am
    Reply

    Thank you for posting this. I'm having the same bathroom issue with my 4 year old son. Doctors are constantly pushing miralax and water. […] Read MoreThank you for posting this. I'm having the same bathroom issue with my 4 year old son. Doctors are constantly pushing miralax and water. You are a wonderful mom, and awesome for sharing all this great knowledge. This life is hard, hang in there! Read Less

  • Nat

    July 12, 2017 at 8:34 pm
    Reply

    Yes thanks so much for sharing this info. My son's doing aba as well but I'd also like to try biomed bc I feel it […] Read MoreYes thanks so much for sharing this info. My son's doing aba as well but I'd also like to try biomed bc I feel it should only help . hearing how well coppers doing is such a relief:) Read Less

    • Mye
      to Nat

      August 28, 2017 at 11:51 am
      Reply

      Hi. I just want to ask how do you make him take the supplements? Does he take it without any challenge at all? My asd […] Read MoreHi. I just want to ask how do you make him take the supplements? Does he take it without any challenge at all? My asd son doesn't like taking medicines 😦 Read Less

  • Katy

    July 14, 2017 at 12:00 pm
    Reply

    What brand of glutathione rub-on stick are you using?

  • Sarah

    August 10, 2017 at 12:59 pm
    Reply

    Hi Kate! My son is 4 and sounds a lot like your precious Cooper. It sounds like we're on the same path as […] Read MoreHi Kate! My son is 4 and sounds a lot like your precious Cooper. It sounds like we're on the same path as you in your journey...having done all the therapies, just started ABA and supplements after seeing a naturopath doctor, transitioning to a gfcf diet. Thank you for sharing your story with us! It's so encouraging to me to listen to someone else that "gets us". Most people don't understand the tiny things we know are huge victories when all they can see is how far we still have to go. Thank you for your candor!! Read Less

    • Audra
      to Sarah

      March 1, 2018 at 1:49 pm
      Reply

      Hi! My kiddo is 9yrs old. After getting an organic acids test done we worked with a wellness dietician who recommended several supplements and diet […] Read MoreHi! My kiddo is 9yrs old. After getting an organic acids test done we worked with a wellness dietician who recommended several supplements and diet changes. So we went gfdf for a year. At first we thought we saw big change! Then behaviors came back. For me one of the most frustrating things is that you can't nail down the problem! He is nonverbal so he can't tell me what's wrong. But I am constantly thinking "did he get some gluten? Is this because he ran out of calcium? His new enzyme? Did he not sleep last night? Does dye affect him more than I know? Do chips?" My son has never had bathroom trouble, but he has all the rest of it! And believe me people if that's the case, you do whatever you can to find joy for your child and peace for your family. Read Less

  • Laurel

    August 14, 2017 at 11:59 am
    Reply

    Hi! Are the micro-nutrients a prescription? where do you purchase them?

  • Lissette Giovia

    August 16, 2017 at 7:53 am
    Reply

    Hi Kate, I've been following your post for some time. My son Justin is sooo much like Cooper. I totally get it when you say […] Read MoreHi Kate, I've been following your post for some time. My son Justin is sooo much like Cooper. I totally get it when you say he hasn't been present. :( love the supplement video. I'm gonna give it another shot. Trying to find a way to get back to the naturalpath. I wanted to ask you where you get the glutathione rub. I've tried gluthione liquid but it's smells and taste so bad I can get it in. Thanks Read Less

  • Jen Ritter

    August 21, 2017 at 3:24 pm
    Reply

    Hey Kate what brand probiotics do you use?

  • sarah

    August 26, 2017 at 9:00 pm
    Reply

    Hi! What brand of Glutathione are you using?

    • sarah H.
      to sarah

      November 16, 2017 at 11:23 pm
      Reply

      I also want to know what brand and type of glutathione you use. Thanks so much :)

  • Alyson

    September 1, 2017 at 12:54 am
    Reply

    How did you get your son to drink water? My son only drinks milk and I want to eliminate it from his diet. Any tips?

    • Karl
      to Alyson

      November 28, 2017 at 2:13 am
      Reply

      How about juices? My opinion would be orange juice. I hope you will find a way how to get rid of a milk. Unfortunately, dairy […] Read MoreHow about juices? My opinion would be orange juice. I hope you will find a way how to get rid of a milk. Unfortunately, dairy products causes so many troubles. Cheers Read Less

  • Max Jones

    September 15, 2017 at 1:57 pm
    Reply

    My sister has been looking for some therapy treatment for her son with autism, and I think that being able to figure out how to […] Read MoreMy sister has been looking for some therapy treatment for her son with autism, and I think that being able to figure out how to communicate with him through trial and error like you mentioned is hard, but worth it! I think that being able to have some of the help you've had like an ABA team would be really good for my sister. I'm going to have to refer her to your article and see if we can figure out how to best help my nephew! Read Less

  • Holly Frazier

    November 17, 2017 at 8:02 pm
    Reply

    You are an awesome mom. Thank you for sharing. How do you get the aba therapy in your home? Is it covered by medical? […] Read MoreYou are an awesome mom. Thank you for sharing. How do you get the aba therapy in your home? Is it covered by medical? I've been concerned about this therapy as i have heard conflicting results. Can u explain what is involved and how it affects your son? Have you done a video regarding his therapies? Very interested. Thank you Read Less

  • Darlene Debty

    November 18, 2017 at 1:39 pm
    Reply

    Well, I totally believe you and everything you've said. I've had almost the same experience. People looked at me like I had a third head […] Read MoreWell, I totally believe you and everything you've said. I've had almost the same experience. People looked at me like I had a third head and why can't you fix your daughter?! Our story is a little different because we had other factors, but my girl sees a holistic doctor and has several supplements. It is all expensive but less costly than if we had tried to get regular doctors to figure all this out. So, I'm not complaining about the price. If you would like a list of my daughter's supplements, let me know. I have several online stores that I buy from depending on the availability and price. Thank you for the video. I just know this is going to help lots of people. Read Less

  • Sheila

    December 4, 2017 at 4:05 pm
    Reply

    Thank you so much for this video! I'm excited to share it. For those reading, tacanow.org is a great place to get started […] Read MoreThank you so much for this video! I'm excited to share it. For those reading, tacanow.org is a great place to get started to learn more. You can also find a doctor at medmaps.org. Read Less

  • Jack Duff

    January 23, 2018 at 7:51 pm
    Reply

    Wow, this is really interesting info on supplements. My nephew has autism, and my brother wants to add some things to his diet that might […] Read MoreWow, this is really interesting info on supplements. My nephew has autism, and my brother wants to add some things to his diet that might help. I like what you said about zinc decreasing his desire to suck on things he shouldn't. My nephew does that a lot, so I will pass this on. Read Less

  • Robyn

    February 26, 2018 at 8:46 pm
    Reply

    Hi sweetheart.....I just wanted to share that I work for an Integrative Medical Doctor and have seen a few autistic children come through the doors […] Read MoreHi sweetheart.....I just wanted to share that I work for an Integrative Medical Doctor and have seen a few autistic children come through the doors (though primarily he serves a different market of clients). I really do not know anything about your story, your hardships, all the paths you've been down etc so this may not be of any value, but there have been children with autism who have been chelated from heavy metals (and put on a limited keto diet) who have experienced a complete 180. I do not know the whole protocol the doctor recommends - and I'm sure it's very case-specific - but if it's not something you've explored it may be worth looking into?!?! Are there any Integrative and/or Functional Medical doctors near you? Have you tried heavy metal chelation (IV chelation)? Again, sorry if this is useless.....I just recently revisited a story about a boy who came through the office with autism and who is now thriving without it (entirely or mostly? I'm not positive on all of the details of his day to day). Read Less

  • Liz

    February 26, 2018 at 9:24 pm
    Reply

    Please research the Nemecheck protocol - super easy to add to what you've go going on already but without the probiotic. Made a huge difference […] Read MorePlease research the Nemecheck protocol - super easy to add to what you've go going on already but without the probiotic. Made a huge difference in my child. There is a Facebook group. Best wishes to you. Read Less

  • Christy

    February 27, 2018 at 11:33 am
    Reply

    I just watched your video and want to say thank you!! My journey with my severely autistic daughter, Mikayla, started in 1997 when she was […] Read MoreI just watched your video and want to say thank you!! My journey with my severely autistic daughter, Mikayla, started in 1997 when she was newly diagnosed at age 2. Here we are and she is now 22 and doing really well, considering where she started. Very similar to your son Cooper, Mikayla was completely non-verbal (just sounds), wouldn't sleep, wouldn't stop moving, the awful poop problems you describe were a huge part of our life too, going out in public was a nightmare, on and on, I could totally relate to your story. Unfortunately, in 1997, there wasn't yet a lot known about Autism, and when she was diagnosed, the doctors gave me a sheet of paper with some speech and ABA therapists contact numbers on it and said "good luck!" I grieved, but like you, I was off and running to save my child. We were doing 25 hours of therapy a week, got eye contact after about 4 months of this intense therapy, which was a huge celebration! The therapies were the only thing we were doing primarily until about age 9 when her immune system completely crashed, she was always sick, wouldn't eat, skin and bones, 43 pounds at 9 years old!! She didn't want to wear clothes, she couldn't handle sound, she almost stopped walking because the feeling of the ground bothered her feet. Her sensory system was a mess. I panicked and wondered what to do. We heard about a special therapy here in Colorado on the news channel that used lights, sounds, and motion to balance sensory issues. We went there and our lives began to change. She responded to the therapy!! We also learned from another parent at the sensory therapy about an autism specialized natural doctor near us that specialized in diet and supplements. That's when we started down the supplement and diet journey. Mikayla now takes about 20 different types of supplements, some 2-3 times daily, and is gluten free (in our case, we stopped dairy free when she seemed ok with having dairy). As mentioned above, she is now 22, still living at home (and always will :) ) is very strong with receptive language, has some expressive language (not actual sentences, but can piece 2-3 words together and can label 100s of items, and we continue to work on speech through an online program that she loves to do), she attends a day program with other special needs peer young adults and they do a ton of community activities, sports, she loves it! She's a happy girl, sleeps well, occasional meltdowns but we have learned the triggers and work with a behavior therapist to minimize them. One of the best things that has developed over the years is that we can now take her almost anywhere without having issues. She loves to go to stores, the zoo, you name it, and walks right next to us or holds my hand, and enjoys the experiences with us with a smile on her face (most of the time). The growth is slow and steady, but looking back, I can see how much progress we have made, which I bet you will also relate to when your son is 22. I believe you and I are both doing all of the right things for our children. Wow, this message ended up longer than I thought it would be, but I just found so many similarities in your son and my daughters stories during the younger years that I wanted to share and let you know what life could look like at age 22. :) It's definitely not what I imagined, I occasionally (much less that in earlier years though) still wish for what could have been, but this really has become our new normal. We celebrate Mikayla's new accomplishments and focus on her being happy and the joy she brings. Thank you again for sharing your experiences. I wish I would have had your blog to read when I first started our journey. It is so hard and parents can feel so alone, and I know you are helping so many parents cope and not feel alone. You're doing a wonderful thing. :) Best, Christy from Colorado Read Less

  • Alicia

    March 9, 2018 at 11:16 am
    Reply

    I've seen there are different varieties of zinc (gluconate, citrate, etc). Which one are you using?

  • AMY

    April 10, 2018 at 5:35 pm
    Reply

    Thank-you for sharing your story. This sounds exactly like my son. I have been searching information and protocols and therapies. He is 9yrs […] Read MoreThank-you for sharing your story. This sounds exactly like my son. I have been searching information and protocols and therapies. He is 9yrs old nonverbal and is making slow progress. You have given me hope and I want to try these supplements with my son. Again thank-you from the bottom of my heart. God bless you. Read Less

  • Lisa Reisner

    April 13, 2018 at 3:46 pm
    Reply

    You're an inspiration. We are starting slow and going to go dairy-free. Love this post.

  • Marg

    April 18, 2018 at 5:10 am
    Reply

    Hi Kate, i would also love to know the brand of Glutathione, Probiotic, and Fish Oil you use if possible. Thanks so much.

    • findingcoopersvoice
      to Marg

      April 20, 2018 at 6:15 am
      Reply

      Hi there. The glutathione is an actual prescription from the pharmacy. Out of all of his supplements that is the only one that is not […] Read MoreHi there. The glutathione is an actual prescription from the pharmacy. Out of all of his supplements that is the only one that is not over-the-counter. The Fish Oil is Nordic Naturals. They have a kid version. I miss it in flavored yogurt along with the other supplements. And lastly, the rest of the supplements I order directly from his Naturopath, Minnesota Natural Medicine. I never know what to buy when I go to Amazon so I just get them directly from the doctor. Good luck! Read Less

  • Angie schlueter

    April 25, 2018 at 6:27 am
    Reply

    Thank you so much for this supplement blog. Everything you have talked about is my son Sean. I know I can't afford the Dr. You […] Read MoreThank you so much for this supplement blog. Everything you have talked about is my son Sean. I know I can't afford the Dr. You are talking about but you have me some insight in the supplements we can try. As far as gluten free dairy free will be tough for my son only eats about 5 foods. And oh boy the water thing its like pulling teeth to figure how to get water in him. I am hoinhbto start my own research on these supplements and try our own journey. I only pray I see some good results as well. I have known all along my son is in there just not sure how to get him out. Read Less

  • Erin

    April 27, 2018 at 10:38 am
    Reply

    The cost of your supplements, is that per month? I was just curious. My son is 4, non verbal, autisic. He's currently in speech therapy and […] Read MoreThe cost of your supplements, is that per month? I was just curious. My son is 4, non verbal, autisic. He's currently in speech therapy and OT, and our pre-K class in our district. He is getting speech and will be getting OT there as well. We have been very happy with the successes he's made so far, but were looking into supplements to add. Not that my goal is to do what you are doing, but I've been doing a lot of research and am going to take that to his doctor for her thoughts as well. We love your journey and thank you so much for sharing it all with us! Read Less

  • Leticia

    April 29, 2018 at 8:06 pm
    Reply

    What did you to help him eat other stuffs? My son only eats meat,chicken french fries (made by me) yogurt and almond milk .

  • Carla

    May 2, 2018 at 1:21 am
    Reply

    My son has been gluten and dairy free since birth as he's allergic to basically all foods. He has a few meats, vegetables, fruits and […] Read MoreMy son has been gluten and dairy free since birth as he's allergic to basically all foods. He has a few meats, vegetables, fruits and grains he can eat. I remember someone early on in our autism journey, around the time of diagnosis, telling me that diet could CURE him. What a joke. My son has medical issues so is on supplements and medications and it does help him to feel better and therefore engage, but my issue with the supplements is when people expect miracles. Which I know that Kate is not advocating or suggesting, but soooooo many do. Read Less

  • Julie Paul

    May 11, 2018 at 7:44 pm
    Reply

    Kate, now that 10 months has passed are you still seeing marked improvements in Cooper due to the diet and supplements? Do you think ABA […] Read MoreKate, now that 10 months has passed are you still seeing marked improvements in Cooper due to the diet and supplements? Do you think ABA combined with this has made the difference? Just curious. We are currently researching all of this for our 6yr old son with non verbal autism. It seems to be the piece of the puzzle we are missing for him. I just keep thinking if he can sleep, he can poop,(or vice versa) and if he can sleep and poop he wont feel so dysregulated. And if he is not as dysregulated he can deal with life easier. Is this what you are seeing in Cooper? Thx for all the Info! Read Less

  • Shay

    May 25, 2018 at 4:13 am
    Reply

    Parents of children with autism should know that vitamins and supplements are not proven to be effective by research. The Association for Science in […] Read MoreParents of children with autism should know that vitamins and supplements are not proven to be effective by research. The Association for Science in Autism Treatments wrote a helpful article about vitamins and supplements scientific facts for treating autism: Vitamin and Supplement Therapy Read Less

    • James
      to Shay

      June 8, 2018 at 3:58 pm
      Reply

      Vitamin research is certainly a maze on the internet. Besides avoiding gluten/lectin/dairy/dyes, many people are somewhat deficient in vitamin d, k, potassium, magnesium, calcium, […] Read MoreVitamin research is certainly a maze on the internet. Besides avoiding gluten/lectin/dairy/dyes, many people are somewhat deficient in vitamin d, k, potassium, magnesium, calcium, and omega3s. A search on the internet for common vitamin deficiencies is helpful. Personally we have struggled with iron levels which plays a critical role in learning, we are hopeful the liposomal iron solves the problem for us - purchased on amazon, marketed towards women. An excellent resource for dietary research is the healthbeat.com Some supplements worth trying https://www.naturalgrocers.com/nutrition-and-health/nutrition-library/nutrition-article/supplements-for-optimal-focus-and-concentration-nutrients-to-maximize-a-childs-full-brain-potential/ Read Less

  • James

    June 8, 2018 at 3:31 pm
    Reply

    Wonderful site. While following up on this article about Kelly Clarkson, I came across some information on Lectin, gluten is a form of Lectin. […] Read MoreWonderful site. While following up on this article about Kelly Clarkson, I came across some information on Lectin, gluten is a form of Lectin. You might find this information helpful also. Kelly Clarkson lost weight eliminating gluten/lectins from diet. https://www.billboard.com/articles/columns/pop/8460051/kelly-clarkson-thyroid-condition-what-we-know Lectin / gluten connection to thyroid issues - also fasting info https://drruscio.com/low-lectin-diet-evolution-gluten-free-diet-dr-steven-gundry/ Read Less

  • Kristina Bucciarelli

    June 22, 2018 at 9:11 am
    Reply

    Thank you so much for your helpful insight. My son was diagnosed 2 years ago in 7th grade. He has since been put in […] Read MoreThank you so much for your helpful insight. My son was diagnosed 2 years ago in 7th grade. He has since been put in two different antidepressants and two anti-anxiety meds plus strong medication for acid reflux. Your video made so much sense to me. My son keeps getting worse and the doctors keep giving him more medicines. It is devastating. I am going to find a homeopathic doctor today. He ONLY eats carbs and sugars and the doctor thinks it's ok as long as he takes vitamins. I am so thankful for the hope you have given us. Thank you so much for generously sharing your story. Best of luck to you and Cooper. Read Less

  • Michela Migliaccio

    July 7, 2018 at 7:57 am
    Reply

    What Glutathione cream did you use?

  • James

    August 9, 2018 at 10:32 pm
    Reply

    Lisa Geng of the Cherub Foundation says the ratio of of omegas should be 695 epa and 280 dha. Her group also recommends a […] Read MoreLisa Geng of the Cherub Foundation says the ratio of of omegas should be 695 epa and 280 dha. Her group also recommends a small amount of omega 6 (GLA) - 70mg. This is also the same ratio used by the Lifetrients company in their formula. See more at http://pursuitofresearch.org/2016/09/13/dosage-of-fish-oil-for-children/ Read Less

  • RM

    August 14, 2018 at 3:35 pm
    Reply

    Heads up, you might want to double check if Benefiber has gluten in it. My son with ASD has stomach issues and I was looking […] Read MoreHeads up, you might want to double check if Benefiber has gluten in it. My son with ASD has stomach issues and I was looking for fiber for him. It said the fiber comes from wheat on the bottle. Just wanted to give you a heads up. We've gone with a Garden of Life fiber blend with probiotics in it for now. But if your kid tolerates it fine you are probably okay then. Read Less

  • James

    August 19, 2018 at 11:52 pm
    Reply

    Helpful tip - Fish oil and vitamins a,k,e are all absorbed better with a fatty meal. Adding olive oil is a great alternative if […] Read MoreHelpful tip - Fish oil and vitamins a,k,e are all absorbed better with a fatty meal. Adding olive oil is a great alternative if there is no fat in the meal. See https://www.consumerlab.com/answers/is-it-best-to-take-fat-soluble-supplements-like-coq10-curcumin-and-vitamin-d-with-fats-to-increase-absorption/fat-soluble-vitamins-fish-oil/ Read Less

  • James

    August 26, 2018 at 7:04 pm
    Reply

    I have been researching probiotics, two that are geared towards ASD are "D-Lactate Free"(Im using this one) and GutPro. This article by […] Read MoreI have been researching probiotics, two that are geared towards ASD are "D-Lactate Free"(Im using this one) and GutPro. This article by GutPro goes over some of the issues with probiotics - https://organic3.com/supplements/probiotics/gutpro/ Read Less

  • James

    August 28, 2018 at 12:01 pm
    Reply

    Helpful tip - if supplementing Vitamin D, make sure to include the co-factors vitamin K, Calcium, and Magnesium. see http://www.nutritionalmagnesium.org/calcium-vitamin-k2-and-vitamin-d-must-be-balanced-with-magnesium. Also […] Read MoreHelpful tip - if supplementing Vitamin D, make sure to include the co-factors vitamin K, Calcium, and Magnesium. see http://www.nutritionalmagnesium.org/calcium-vitamin-k2-and-vitamin-d-must-be-balanced-with-magnesium. Also at the bottom of this article for dosages - https://thehealthbeat.com/how-much-calcium-magnesium-and-vitamin-d-should-athletes-take. Read Less

  • Jessica

    September 13, 2018 at 11:01 pm
    Reply

    Cooper is awesome and so incredibly smart! You’re doing an amazing job and I find myself looking to you for the realness factor. Our son […] Read MoreCooper is awesome and so incredibly smart! You’re doing an amazing job and I find myself looking to you for the realness factor. Our son is 21 months and doing ABA, speech, and now PT. I absolutely appreciate your supplements video (among your other videos) and our little one has started on many of the same supplements as Cooper as well as the GF/CF diet. His diet combined with therapy and supplements has produced amazing results so far in our 3 month journey. Like you, I’m diving head first and will spend my last dollar and give everything I am into helping my son. He hasn’t been given an official diagnosis yet (as he’s too young), but he’s been labeled as at risk for moderate to severe autism....challenge accepted. We all want to be the parent of the child who “recovers” and of course I hope so much that all of us will be in one form or another. But in the end, all we want is for our kids to be safe and happy. Know that we’re all in this together! I relate to you on so many levels and I thank you immeasurably for being a shining light in this never ending maze of life with autism :) Read Less

  • JAMES

    September 26, 2018 at 8:54 am
    Reply

    The protein supplement "IQed" has helped some people with speech issues. I am using Orgain protein with greens currently, but trying IQed next.

  • Kathy

    October 26, 2018 at 6:58 am
    Reply

    I am also a fellow MN mom. We have a 2 year old that we know in our gut is in the spectrum somewhere. He […] Read MoreI am also a fellow MN mom. We have a 2 year old that we know in our gut is in the spectrum somewhere. He is getting therapy through the school currently and an autism evaluation before the end of this school year. The recommended a medical diagnosis too. Where does one start though? Read Less

  • Robin

    November 12, 2018 at 8:08 pm
    Reply

    I'm so excited you shared this information. Even non autistic kids are malnourished these days. They have ADD, stomach issues, autoimmune problems... Our food is […] Read MoreI'm so excited you shared this information. Even non autistic kids are malnourished these days. They have ADD, stomach issues, autoimmune problems... Our food is grown in dirt that has been depleted of nutrients and sprayed with poison. We eat processed foods that's been fortified with folic acid, which is toxic to our bodies. We need folate not folic acid which is a synthetic form of folate. The MTHFR genetic defect is also something people need to learn about. People with MTHFR can't detox. We're the ones that get sick first. About 50% of the population has MTHFR. Read Less

  • James

    November 25, 2018 at 12:39 am
    Reply

    Vitamin A tip - salmon, cod, and liver have this vitamin in the natural form the body needs, no additional conversion is needed. Vitamin […] Read MoreVitamin A tip - salmon, cod, and liver have this vitamin in the natural form the body needs, no additional conversion is needed. Vitamin A has been used by Dr. Megson in her treatment of autism/speech. I will be switching from Fish oil to Cod Liver oil(Look for minimally processed brands) for Omegas and natural vitamin A. One word of caution, make sure you are supplementing vitamin D as it is necessary co-factor to prevent Vitamin A toxicity. Dr. Megson has youtube videos available and several articles talk about her research like this one - https://www.independent.co.uk/life-style/health-and-families/health-news/through-the-eyes-of-autism-5544570.html Read Less

  • Orla Mc Laughlin

    December 3, 2018 at 5:02 am
    Reply

    Hi, thank you for sharing this video. I'm not a mother but I'm a functional nutritionist in Ireland and I work with children that have […] Read MoreHi, thank you for sharing this video. I'm not a mother but I'm a functional nutritionist in Ireland and I work with children that have autism and I'm just in awe of the commitment mothers and fathers make in trying to change their kids diets. It's so vital and important but so incredibly difficult when your child will only eat 5 foods so I'm always grateful for your creativity and ingenuity that helps me learn more. Thanks. Read Less

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About Me

Finding Cooper's Voice is a safe, humorous, caring and honest place where you can celebrate the unique challenges of parenting a special needs child. Because you're never alone in the struggles you face. And once you find your people, your allies, your village....all the challenges and struggles will seem just a little bit easier. Welcome to my page!

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When my son was first diagnosed with autism no one was talking about it. Autism was hidden. I vow to change that.
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