You Answered my Prayers

It was a beautiful warm day in Hawaii. I was sipping my favorite tropical cocktail and watching my boys, ages 13 and 11, splash in the pool. We had just started our three week summer vacation. I should’ve been in the ultimate state of relaxation but, every few minutes, I hear my youngest. He’s been making his way from pool to pool in an exact pattern for the last half hour and, every time he gets close to my lounge chair, I can see he’s having a rough time. He…

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My Son is Not Less

The hardest parts of autism, of special needs, of disability, of parenting a child with significant and complex needs…Well, they aren’t the parts you would think. The practical parts of parenting a child like ours, the trials and tribulations, well, you could write a book. He’s a wheelchair user. He requires all of his cares to be done by an adult, and when we go for dinner you best be sure to move all of the crockery out of arms reach, unless you fancy being speared by a fork or…

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When Do We Stop Trying?

When do you stop trying to do the normal stuff? Is it like introducing a new food to a toddler? I read years ago about weaning a baby and introducing food saying you should try your child with something 8-10 times before you accept they don’t like it. Is life the same? Or am I being cruel? We are in our last couple of days of our vacation (we call it a holiday). I have tried my best not to push my son’s boundaries too much but just enough to…

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Angels on the Seas

On a chilly, blustery day somewhere in the Gulf of Mexico, I sat on the deck of a cruise ship watching two young women in orange T-shirts lift a wheelchair-bound teenager out of his seat, carry him up a flight of stairs, and slide down a water slide with him.  I watched as his face reflected pure glee at the bottom of the slide.  The ladies lifted him out of the water and carefully placed him back in his wheelchair.  Then they did the whole thing again. All to give…

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