Posts Tagged ‘special needs grief’
Being a Light for Others
This newspaper article has been hanging on my fridge since my son E was five years old. And it will stay there forever. It is the fourth interview I did with our local newspaper and has my favorite title: “Autism doesn’t change children’s core”. This aged paper, changing with time, is part of us. We age and change along with it. To me it is a reminder of where we were and how far we have come from the darkest times of our Autism journey. The times of loneliness and…
Read MoreThe Words I Couldn’t Say
Last night, when the mosquitoes stirred on our damp lawn, Willow stirred too. I asked her to grab her sandals and we went for a walk. We walked to the end of our street where I lit a sparkler for her. She danced entranced swinging the metal stick in the air. I took her for a walk because her mind and body needed to regulate. She was a mess and going for this walk would very methodically prevent a meltdown and a potential bolt. I scratched my eyes and thought…
Read MoreThe Hard Doesn’t Own Me
We’re not supposed to complain. Special needs families, that is. The world calls you an ableist when you lament an ability or lack thereof. I’ve never felt this child of mine was lacking. He’s nothing short of amazing. How could someone so funny and clever and filled with light be anything besides perfection? But, boy, is he hard. Nearly seven years of eternal toddlerhood and a few words repeat themselves on the many pages of his complicated history. Developmental delay, genetic disorder, autism, anxiety, adhd. These are the tricky pieces…
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