Posts Tagged ‘severe regressive autism’
This Is Regression
This is the hardest week I remember in a long time. This is regression. This is aggression. This is self-injuring. This is our hardest hard. This is all hands on deck. This is researching, brainstorming, spending every waking moment trying to figure out what and why. This is phone calls to doctors, questioning med dosages, trying to figure out the mysteries of autism, cursing nonverbal, and worrying. This is praying and sleepless nights. This is losing him. This is fighting for him. This is putting safety plans in place. And…
Read MoreMy Son, I am So Sorry
My sweet boy, how I love you so. We have had such a long week and I’m sorry. I am so tired of doctors, and needles, and hospitals, and machines, and all of it. I’m tired of having to be the one who makes you suffer through this stuff. But the doctors tell me there is more to look for, so in the hopes of doing the best I absolutely can for you, I keep looking. I keep fighting, and I keep pushing. And I know you are even more…
Read MoreAll That’s Locked Inside
Autism comes with so many difficulties. There are serious medical issues. Constant vigilance is required to prevent wandering and accidents. Often, a Herculean effort is required to complete the most basic of tasks. And every victory, every milestone was earned with blood, sweat, and tears. But I want to write about one of the biggest difficulties that comes with autism. It weighs on me daily. I can only imagine how it affects my son, Christopher. And it might even be THE biggest issue for me – the main reason why…
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