Posts Tagged ‘nonverbal autism’
Balance and Progress
We just went for a family walk plus two. Cooper knew there was a train magazine waiting for him at the mailbox so even though it was not ideal walking, (90 degrees!) we got a good walk into the park before getting the mail. Before we stepped off the porch, Cooper grabbed my arm to get my attention, covered his ears with both hands, and pointed to the sky. Fireworks. He was scared. I think about his world sometimes. Fire and noise in the sky. Scared to step off the…
Read MoreBalancing Two Different Worlds
Tomorrow is the 4th of July. A fun, typically outdoor, social, loud, hot holiday. It’s also a holiday that can be very challenging for families like mine. And put a lot of stress on us. See, our older son struggles with a lot of the parts that make up the fourth. He is scared of fireworks, although he loves to watch them on his iPad. The second he hears one, no matter how far away, he takes off running and hides in our pantry. Parties overwhelm him. Most noises are too…
Read MoreI Choose Gratefulness
It’s interesting to know how much my attitude plays into this whole mothering thing. When my oldest was diagnosed with autism six years ago, my focus was him and him only. He was the one who was struggling. I needed to help him. I learned after hitting my breaking point, that my mental health mattered too. I was exhausted. I was worn down. I felt the weight of hope firmly on my back. And my attitude was being affected. I was looking at things through a sad lens. A heartbroken one.…
Read MoreQuarantine, Autism and Never Giving Up
Oh, quarantine and autism. You have been a doozy. You would think we would have embraced this socially distant period like all the autism memes suggested at the beginning of this lockdown. “We’ve been social distancing since before it was a thing!” No. These past few months at home have allowed regression to creep back in, distressing my boy at a whole new level. I knew it would, right when we said goodbye to his routine back in March. It was inevitable. Unfortunately, that expectation did not make these months…
Read MoreI’ve Been a Primary Caregiver for 30 Years. Here is What I Want you to Know:
Hi, my name is Kelly and I am the mother to an amazing young man named Steven. He was diagnosed with autism at age 2 and later apraxia. He recently turned 30 and is a dynamic, smart, interesting, funny young man. We share our story on Instagram at Growing Up Steven. Being a primary caregiver for the last 30 years has rewarded me with a few things: A panic disorder, depression, anxiety, excessive worry, marriage struggles, and at times, not the mom my kids deserved. I want you to learn…
Read More10 Things That Helped Me During Meltdowns As An Autistic Child
One of the more common questions I get asked as a professional speaker and autism self-advocate is about my communication challenges. After this question though the majority of the questions are about my previous meltdowns due to sensory-overload. As a nonverbal child until I was 3, most people think my main obstacle was communication when actually it was sensory integration dysfunction. My main challenges included loud noises, inclement weather, bright lights and not being able to be bathed until 18 months old due to the textural feeling of water on…
Read MoreCaptain’s Log: Day 6, Social Distancing
I want to be crystal clear about something. Never once have I wondered what it would be like to spend 24 hours a day with my husband and beautiful children. Never have I considered homeschooling my children. Never have I considered moving out to a remote area, having a dozen more children, living off the land and singing songs like the Von Trapp family for fun. I like work. I love daycare and school. I love people and socializing. And I love Target. So, it’s safe to say this has…
Read MoreAutism and Anxiety
I have the most amazing son. He is 9-years-old. Almost double digits. He loves dancing and holding hands and Steve Harvey. He loves climbing in my bed at 1 am and carrying around 17 sheets of paper, all different colors of course. He smells like the wind. And he can find mud anywhere. He has autism. He is autistic. It is part of him like his blonde hair and ruddy eyes. He was nonverbal until he was 8-years-old. Today, he has 15 or so words. They come and go. He…
Read MoreCaptain’s Log: Day 5, Social Distancing
There are no rules during Corona. It seems we have entered into a reality where time doesn’t matter. Like a Las Vegas casino or the days in between Christmas and New Years Day. Or that movie Groundhog’s Day where every day is the same. Our calendar is wide open until July. Every planned event now with a red line through it. The weekdays are the same as the weekends. We wake up. Drink coffee. Eat breakfast midday. And again an hour later if you are my children. And then ask…
Read MoreCaptain’s Log: Day 4, Social Distancing
Positives: I finished my laundry for the first time in nine years. All of it. Done. We are cleaning our basement and finding amazing treasures and crap. So, that’s great. Struggles: We are all spending entirely too much time together. I feel like I’m not going to know how to socialize after this. Sawyer: ‘Mom, who was your favorite boyfriend besides Dad? Was he better than Dad?’ Me: ? Sawyer: ‘Mom, the baby is in your drawer! You know the one, beside your bed, that I am not allowed to open…
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