Posts Tagged ‘Fragile X diagnosis’
Finding The Ones Who Understand
When I was pregnant for the first time, so were a bunch of my friends. We had plans. Our kids were going to be best friends and grow up together. We would watch them meet milestones together and bring them to the park for playdates. It was going to be the, let’s be honest, the somewhat unrealistic expectation most first time moms have, but I have seen it happen, the pictures posted online to prove it. Some best friends do get to extend those deep connections to their children and…
Read MoreLetting Go of the Things Beyond our Control
We all know mothers can be portrayed as being a bit dramatic. I am not saying I agree with that, but I do think moms, particularly new moms, put an enormous amount of pressure on themselves to raise perfect children. Something that is completely unattainable, especially when you are a new mom trying to figure out why your child is so different than all your friends’ kids. This was me 4 years ago, and I, of course, tried to come up with a way to “solve” these differences. What is…
Read MorePlease Make Room For Us
Last Tuesday started like every other day. I woke up way too early, tried to coax my son Ben back to sleep for an hour and lost that battle. Then, I gave in, got up and got ready while trying to keep him entertained. I woke up Caleb and shuffled both boys off to daycare. It’s the story most working moms could tell every single day. It was my usual stress, the usual morning hustle, but then someone stopped me in my tracks, both figuratively and literally. The boys’ daycare…
Read MoreThank You to the Best Aunt and Uncle
After our son Emmett’s official Fragile X diagnosis we told all our family members about it and posted about it on social media. Everyone told us or wrote to us telling us how much they care and how it will be OK and if we needed anything to let them know. But after the Fragile X diagnosis their was a quiet pause from these individuals. No one says anything or asks us about Emmett. They don’t ask about the multiple diagnosis’ he received after the Fragile X diagnosis. I have often…
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