Posts Tagged ‘blindness’
Beauty in the Broken-ness
The older he gets, I often find myself focusing on the things my son Benjamin struggles with. Because naturally, the older he gets, the harder things become for him. It is a knee jerk reaction to hone in on the difficulties he’s experiencing because as his mother I want to “fix it” for him; I don’t want him to continue to struggle with things most children his age have no problem with. But the fact of the matter is, he will always be blind, and he may or may not…
Read MoreAll I Want for Christmas
Dear Santa, Instead of toys, trucks and the usual boy stuff, I wanted to ask you for something a little different this year. All I want for Christmas is to be treated like everybody else. I’m just a regular little boy after all! It makes me sad to miss out on things. I want so much to be welcomed and included in ALL school and church activities. I want to be included in sports teams and clubs at school. I really want to be invited to parties and dances and…
Read MoreThe Water Slide Less Traveled
Myrtle Beach, South Carolina and the Embassy Suites at Kingston Plantation will always hold bittersweet memories for our family. Even before we were married, my husband and I would attend medical and dental meetings at the beautiful oceanfront oasis, enjoying romantic candlelight dinners, soaking up every precious second of our time away from the purse strings of life. After marriage, we introduced our beautiful baby boy, David, to our seaside retreat. He attended every meeting, quickly showing his affinity for the sand between his toes. It was just after his…
Read MoreWhen a Doctor Told Me I Wasn’t a Terrible Mother
So, here’s a thing that happened the other day. I took my son Ivan to the dermatologist to have a look at his moles. We have a history of melanoma in the family and it seemed like the responsible thing to do. Are moles Ivan’s biggest challenge or at the top of our medical list? Heck no! Ivan is totally blind, nonverbal, in a wheelchair and he has uncontrolled epilepsy resulting in multiple seizures a day. We see about a dozen different specialists and dermatology is definitely at the very…
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