Posts Tagged ‘autism’
The Ability to be Vulnerable
Hi. My name is Carrie. I have five kids, and my second son is diagnosed with autism. His name is Jack. He is fifteen years old, and over six feet tall. As an autism mama, I am pretty used to advocating for the things we need, whether it’s an adjustment to his IEP, or a new kind of therapy, or a change in his medication. This has not always been easy for me. I have sat in many meetings, and through many appointments, with a bubble of rage in my…
Read MoreNever, Ever Give Up
Dear Autism Moms and Dads, We’re not so different, you and I. I imagine our days are filled with similar struggles, similar frustrations, similar fears. Sure, our kiddos might have different diagnosis or fall in different areas on the autism spectrum, but at the end of the day we can relate to one another more so than a lot of other parents can. With that being said, from one autism parent to another, I hope you can take this message to heart; never ever give up. You see, my husband…
Read MoreThe Importance of Grace as a Special Needs Parent
I talk a lot about grace on this page. A word that honestly didn’t mean all that much to me before this journey. But now, well, grace is everything. Because as parents, we can be way too hard on ourselves. When I speak to parents of newly diagnosed kids, and parents of kids diagnosed long before autism was a common word, they all tell me similar stories. Every single parent. They tell me about the things they didn’t know. They didn’t know that their child was in pain. Or they…
Read MoreThe New Normal
I’ve always hated phrases like, “the new normal,” or “it is what it is.” In my eyes these expressions are just the lazy person’s way of not trying hard enough to make a difficult situation better. We’ll just call it, “the new normal” and move on. I can’t make it better so, “it is what it is.” I’m getting older but it’s cool because, “50 is the new 40.” You get the idea. When my youngest of four children was diagnosed with autism eight years ago, it felt like anything…
Read MoreAcceptance
Yesterday my husband asked me, “have you really accepted the fact that Hank has Autism?” It’s one of those conversations we always find a way to circle back to. Between talking about services, school, behavioral interventions, potty training, aggressions, speech, etc, etc, we always come back to this. “Acceptance” There’s a pause. A comma perhaps,Most likely a big fat question mark? Usually when we ask it to each other, we are really in a sense asking it to ourselves. We are seeking reassurance and validation for our feelings. What we are…
Read MoreThe Rewards of Parenting
Yesterday my father in law reached out over text message to see how we were doing. It has been an unusually busy and chaotic time for our family and he was just checking in. I told him we were doing Ok, hanging in there at least. He responded with empathy stating he remembers how hard it is parenting three small children and having zero energy left at the end of the day to do anything for yourself. He went on to say “You sort of put your life on hold,…
Read MoreAutism Saved My Son’s Life
I first met my son when he was 11. It was in a group session I had been invited to as a teacher because I would be getting the kids the following year. It was a chance to meet everyone and for the group to get to know me. I was immediately drawn to one student because he certainly had a lot to say! I quickly learned that he was in foster care and that he had a twin brother who was also in group with us. One talked, one…
Read MoreThe Skills We Have
When you were about six, we had a party at our house. By this point, you talked pretty well. You were still behind other kids your age, but you could get your point across for the most part and ask for juice and tell us which DVD you wanted to watch. Jack-a-boo, language has always been hard for you. You didn’t say a word until you were well past three. Sentences were slow to come. Even now, as a teenager, you hesitate for a few beats when someone asks you…
Read MoreMom, What Happens When You Are Gone?
My daughter Isla is 11 years old and has a unique subset of autism that has broken me and put me back together in ways I never could have dreamed. You always assume you will have so much to teach your children and then God giggles a little bit and sends you your greatest teacher in the form of a 7lb 14oz bundle of curls who will eventually be diagnosed with something that is forever. Interestingly enough I have recently been reflecting on the lessons that motherhood has taught me…
Read MorePolice Officer’s Reward Boy in Most Amazing Way
Last week, I asked for help in rewarding my grandson. Bricen has autism, and works hard at controlling his emotions, and making good decisions. He receives therapy which promotes positive programs. A part of Bricen’s therapy is earning tokens. Over a three week period, Bricen earned 75 tokens, and his one and only wish was to have a soda with a policeman at McDonalds. Officer Chris Vines, from the Sumner County Sheriff Office, responded saying he’d like to meet Bricen. He shared Bricen’s story with fellow officers at the Sheriff…
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